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Author Topic: Magic Scarf next journey  (Read 102027 times)

It is what it is

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Re: Magic Scarf next journey
« Reply #45 on: July 02, 2012, 11:39:35 pm »
Hurray!!!!  Now you have tangible proof that we are all there with you.  (I sure hope Lisa can leave it at HEI or Seton Hall for the two of us immediately following both of you.)  You are almost a postie!  Thoughts and prayers are with you all day tomorrow.

karen 
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

LizAN

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Re: Magic Scarf next journey
« Reply #46 on: July 29, 2012, 05:09:16 pm »
Just wanted to let everyone know that I passed the scarf on to Lisa Robie on the 11th.  It was a big help to have it with me.

For those of you with access to my Caring Bridge site, I added pictures yesterday.  If you don't have access, PM me your email address and I'll set it up for you.

I can also post pics here, but it's not likely to happen today.  Time for me to rest...

Liz
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8/20/2010 - 9mm AN on left side 
Fullness, tinnitus, mild hearing loss
2/20/2011 - 8mm
4/20/2012 - 12.4 mm
Moderate to severe hearing loss, LOUD tinnitus, deteriorating balance
Facial numbness and twitching, which subsided pre-surgery
Translab at House, 7/3/2012, Slattery and Schwartz

lrobie

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Re: Magic Scarf next journey
« Reply #47 on: July 31, 2012, 02:31:55 pm »
FYI  - It was nice to meet Liz and for her to pass the Magic Scarf on to me.  I cherished my time with it and have passed it on to Karen.  I haven't been on for a while, but her surgery is scheduled for tomorrow.  I had to leave the Scarf with Laurie at HEI as I was leaving LA before Karen was arriving.  Good luck to you, Karen.

Lisa

P.S.  I have a picture on my Caring Bridge site, but will also try to post it here as well.
« Last Edit: September 07, 2012, 07:31:19 pm by ppearl214 »
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6/2009 7mm x 4mm  W&W
8/2011 9.5mm x 5mm
2/2012 UPMC Follow-up , slight growth
Surgery on 7/18/12 w/Drs. Friedman & Schwartz (mid-fossa)
www.caringbridge.org/visit/lisarobie

It is what it is

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Re: Magic Scarf next journey
« Reply #48 on: August 23, 2012, 06:33:01 am »
Thanks Lisa!  I received the scarf and was able to share it with a 17 year old who had surgery immediately after mine.

Who would like it next??????

Karen   
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

Aprilcl

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Re: Magic Scarf next journey
« Reply #49 on: September 07, 2012, 08:10:07 am »
Is it possible to put "dibs" in for Oct 26?  I will be hitting MassGen with Barker/McKenna then.  Chris
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Diagnosed 2011
Surgery 10/26/2012
Mass Gen and Mass Eye and Ear
Drs. Barker & McKenna
AN size 1.5 cm
Also vascular compression of facial nerve

It is what it is

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Re: Magic Scarf next journey
« Reply #50 on: September 07, 2012, 03:00:39 pm »
Yes!  Please send me your mailing address and I will mail it to you. Maybe you can PM me with that information? 

My thoughts are with you. 

Karen
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

Glenda

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Re: Magic Scarf next journey
« Reply #51 on: October 16, 2012, 09:04:28 pm »
I'm down for surgery on November 28th and if possible would love to have it also.... I think it would be a comfort to have it but understand if I can't get it.  I know there are alot of surgeries going on...

Prayers to all who are facing surgery right now!!

Glenda
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Diagnosed 5 mm AN  Jan 2008
Deep in IAC
June 2010 7 mm
July 2011 8.5 mm
July 2012 1.1 cm
Nov 28, 2012 Mid Fossa Surgery Wake Forest Baptist Hospital-Winston-Salem NC, Dr John Wilson and Dr Eric Oliver


SSD tinnitus dizziness

It is what it is

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Re: Magic Scarf next journey
« Reply #52 on: October 16, 2012, 09:31:36 pm »
I passed it on to Chris.  Hopefully you'll be able to receive it for your surgery.  You'll be in my thoughts and prayers. 

Karen
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

Aprilcl

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Re: Magic Scarf next journey
« Reply #53 on: October 17, 2012, 04:28:56 am »
Glenda,
I have the scarf!  My surgery is next week, so there is plenty of time to get it to you.  Please send a pm with your information and the scarf will be there for you also.  Chris
Logged
Diagnosed 2011
Surgery 10/26/2012
Mass Gen and Mass Eye and Ear
Drs. Barker & McKenna
AN size 1.5 cm
Also vascular compression of facial nerve

It is what it is

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Re: Magic Scarf next journey
« Reply #54 on: October 17, 2012, 05:12:06 am »
Chris, please post updates.  You are in my thoughts and prayers.  The scarf is representative of all of is in the AN community offering you caring and support through your surgery. 

Karen
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

Glenda

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Re: Magic Scarf next journey
« Reply #55 on: October 17, 2012, 08:39:48 pm »
Hi Chris!!

My thoughts and prayers are with you!  Praying you have a very successful surgery and recovery! 

Glenda
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Diagnosed 5 mm AN  Jan 2008
Deep in IAC
June 2010 7 mm
July 2011 8.5 mm
July 2012 1.1 cm
Nov 28, 2012 Mid Fossa Surgery Wake Forest Baptist Hospital-Winston-Salem NC, Dr John Wilson and Dr Eric Oliver


SSD tinnitus dizziness

lrobie

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Re: Magic Scarf next journey
« Reply #56 on: October 18, 2012, 01:58:16 pm »
I felt like I wasn't alone in this journey by having the magic scarf with me.  I'm glad that you both will be able to have it with you.

Lisa

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6/2009 7mm x 4mm  W&W
8/2011 9.5mm x 5mm
2/2012 UPMC Follow-up , slight growth
Surgery on 7/18/12 w/Drs. Friedman & Schwartz (mid-fossa)
www.caringbridge.org/visit/lisarobie

Glenda

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Re: Magic Scarf next journey
« Reply #57 on: October 25, 2012, 09:56:51 pm »
Hi Chris!

 I know that your surgery is coming up tomorrow.  You are in my thoughts and prayers! If possible I hope someone posts and lets us hear from you! Wellness hugs to you!

Glenda
Logged
Diagnosed 5 mm AN  Jan 2008
Deep in IAC
June 2010 7 mm
July 2011 8.5 mm
July 2012 1.1 cm
Nov 28, 2012 Mid Fossa Surgery Wake Forest Baptist Hospital-Winston-Salem NC, Dr John Wilson and Dr Eric Oliver


SSD tinnitus dizziness

It is what it is

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Re: Magic Scarf next journey
« Reply #58 on: October 25, 2012, 11:09:16 pm »
Ditto to everything Glenda said to Chris.   Thanks again Lisa for passing on the scarf to me so I could pass it on to Chris. 

Karen
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.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

Aprilcl

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Re: Magic Scarf next journey
« Reply #59 on: October 28, 2012, 02:35:44 pm »
I am home!!! feeling great.  surgery was Friday.  Spent Saturday in neuuroe icu, got out about 2 hours ago and drove back to CT.   but this is all I can type now.  Will definetnatly write more tomorrow.   
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Diagnosed 2011
Surgery 10/26/2012
Mass Gen and Mass Eye and Ear
Drs. Barker & McKenna
AN size 1.5 cm
Also vascular compression of facial nerve
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