Author Topic: Magic Scarf next journey  (Read 70508 times)


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Re: Magic Scarf next journey
« Reply #105 on: December 02, 2013, 03:12:28 pm »
Hi, all!  Finally, I updated the list of Scarf recipients!  If I missed anyone, please let me know!  I think that a couple of people had it, but didn't have an entry in the journal...maybe?  There are 44 listed here!  How awesome!  It is currently with Deborah who has surgery tomorrow!  Wishing you the best, Deborah!  I see that rm516 has surgery coming up in mid Jan...are you interested in having the Scarf?  Anyone else have treatment coming up soon?  Just let us know and someone will see that the Scarf gets to you!  And, as always, even if you don't get to physically have the Scarf, the virtual magic it has spreads far and wide ;D   Cindy

Apr 08 Debbi (Debbi) NY
Jun 08 Wendy (wendysig) NY
Aug 08 Sue (Lamsue23)
Aug 08 Cathy (Dog Lover) IA
Oct 08 Cheri (CWood) TX
Oct 08 Mathilda (mathilda) Netherlands
Nov 08 Cindy (cindyj) GA
Nov 08 Amy (AMD) IN
Dec 08 Ken (1cANadian) Cananda
Jan 09  Kathy (KathyM) OH
Feb 09 Kim (zinger 1905) DC
Mar 09 Ernie (EJTampa) FL
Mar 09 Scarlett (SML) MA
Apr 09 Nancy (NancyMc) NH
Apr 09 Laura (allegro17) AZ
Jun 09 Molly (MissMolly) MA
Aug 09 Ken (mandy721)
Sep 09 Cheryl (AnotherNYpostie) NY
Oct 09 Amy (newmommyLA) CA
Nov 09 Dennis (DR) MI
Nov 09 Mike (loosescrews) CA
Dec 09 Tammy (Tamster) UT
Dec 09 Jay (jaylogs) AZ
Dec 09 Marie (gingerbread6) MA
Jan 10 Lynn (LynnMC) MA
Mar 10 Jacqui (kiwi) New Zealand
May 10 Sue (sues1953) Mi
May 10 Carol Ann (iluuvpups) MI
Apr 11 Christine AZ
May 11 Clarice (CHD63) NC
Mar 12 Mindy (mindyandy) ND
May 12 Dave (davecz) CA
Jul 12 Liz (LizAN) TX
Jul 12 Lisa (lrobie) PA
Aug 12 Karen OR
Aug 12 Shefon (17 yrs old!)
Oct 12 Chris (AprilCL) MA
Nov 12 Glenda NC
Mar 13 Kathy GA
Apr 13 Connnie MI
May 13 Rachel MI
Aug 13 Lili MA
Nov 13 Adrienne CA
Dec 13 Deborah (deborahgordon) IN
rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

It is what it is

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Re: Magic Scarf next journey
« Reply #106 on: December 02, 2013, 03:39:36 pm »
Thanks for your scarf update Cindy!   ;D
.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.


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    • Dennis vs. The Tumor
Re: Magic Scarf next journey
« Reply #107 on: January 22, 2014, 07:05:12 pm »
Wow, its been a few years since I have checked in.  I'm glad to see the Magic Scarf is still making the rounds!
AN right side 12mm x 9mm x 9mm
Middle fossa surgery 11/4/09 at House (Dr. Brackmann/Dr. Schwartz)
Tumor removed, no facial issues, hearing intact!

"The greatest trick the devil ever pulled was convincing the world he did not exist."


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Re: Magic Scarf next journey
« Reply #108 on: January 22, 2014, 09:47:58 pm »
I still have the scarf if anyone is set for surgery let me know I will send it!
Character is how you treat those who can do nothing for you.


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Re: Magic Scarf next journey
« Reply #109 on: August 06, 2015, 07:37:05 am »
Hi deborahgordon .....

Do you, by any chance, still have the Magic Scarf?  Or, know who might have it?  There is a precious, 5-year-old girl who is scheduled for AN surgery in September, who could sure use it.

Let me know what you know .....

Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011


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Re: Magic Scarf next journey
« Reply #110 on: August 07, 2015, 03:29:57 am »
My surgery is November 3 so even having the virtual magic scarf will confer its special powers. Thank-you!   
12/2013 5mmx4mmx4mm left
tinnitus, w&w
5/2015 7mm-louder tinnitus, occasional dizziness
retro sigmoid 11/2015