Author Topic: Disappointed with Transear  (Read 18307 times)

kaykay

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Disappointed with Transear
« on: June 10, 2011, 06:00:15 am »
Last night I picked up my Transear...the company sent the old model and the new model. I tried both in the office, and the audiologist asked if I could hear a difference in her voice.  Nope. sounded the same.
I took them home anyways to test them out some more, but I tried again this morning before i went to work..........no difference. :(
This sucks.
Last month I talked to the Soundbite company and they said it wont be available in WI until the late fall. :(
That sucks even more.
Nothing like being so excited..and then being shot down. just gotta love it. (im being sarcastic)
and I refuse to have a hole drilled in my head and wear a BAHA.

Kaybo

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Re: Disappointed with Transear
« Reply #1 on: June 10, 2011, 07:52:03 am »
Sorry that it is not what you had hoped for...maybe the audiologist can do some tweaking.

Just out of curiosity, why are you so opposed to a BAHA?  I don't have one, myself, so I am not biased...you just sound pretty strongly against it & I was wondering why...Everyone is certainly entitled to their own opinion! :)

;D
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SSD
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keithk

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Re: Disappointed with Transear
« Reply #2 on: June 10, 2011, 11:18:36 am »
Kaykay

I was like you and refused to have another hole in my head let alone have another surgery.  I originally looked at the CROS system. After doing some research I decided it wasn't for me. I did some research on the Transear and liked what read. I was all set to go ahead with it until I found out that our insurance company will pay for it because it is not a "hearing aid". Early in my research I discounted the BAHA because, like you, I didn't want another hole in my head and to go thru another surgery. My AN surgery was in Aug, 2010 and 9.5 hrs long. Anyway, I had the BAHA surgery in Nov 2010 and my BAHA was activated 4 months ago. I took 3 trips to get it tuned to my liking, now I love it and actually feel lost when I don't have it on.

I oversold myself on the BAHA at first and thought it would be as good as my left ear once was. I finally got it thru my thick skull, probally thru one of the holes in it, that it would never replace my hearing but it is a vast improvement over SSD.

If you have any questions on a BAHA just message me. I am from WI also.
« Last Edit: June 10, 2011, 11:21:39 am by keithk »
AN surgery 8/19/10, 9.5 hrs
8mm x 5mm left side
Retrosigmoid, Drs Reichert & Harvey
Severe hearing loss in the left ear before surgery. SSD after surgery. Balance issues. Tinnitus (mild). Buzzing in left ear.
BAHA implant surgery 11/17/10
BAHA activation 2/1/11

james e

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Re: Disappointed with Transear
« Reply #3 on: June 10, 2011, 11:57:12 am »
First of all, I'm really sorry about your disappointment. I know that can really be crushing. I have a BAHA, and I was hoping it would restore me to near normal hearing, and I was disappointed when I first heard it. My expectations were set way too high. As I used the BAHA, I became more accepting of what it does, and I am super happy to have it. You might not want to give up on the Transear so soon. You will never get that good old hearing back, so just give yourself an opportunity to use it for a few days. I will suggest that you buy a set of the crushable foam ear plugs, and block your good ear, and just use the transear for hearing for at least a day. It might suprise you.

Getting a BAHA is usually covered by insurance, and it really is not a big deal to get it done. It is easily covered by hair, and even if it is seen, most people ask about it, and I'm happy to explain. Just this morning, I had a retired surgeon see it and asked if I had an AN...his mother had one, and she has a BAHA...small world.

My good ear is  rapidly getting worse, and I will get a cochlear implant when it is time. My nerve on my AN side was preserved for that purpose. I know that it will not sound like what I hear now, but that will not stop me. The technology is changing, but right now the BAHA/Ponto Pro are top drawer. Come join the club!

Brewers7

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Re: Disappointed with Transear
« Reply #4 on: June 10, 2011, 02:46:38 pm »
I am sorry that you were disappointed.  I have had the Transear for a few months and overall I have been satisfied.  It is not as good as regular hearing, of course.  My audiologist tested me with and without the Transear.  On my AN ear, I tested at 0 without the Transear and 85 with it.  I tried the Baha (test headset) and to me, the Transear is at least comparable to the Baha test headset.  I still struggle to understand words if there is a lot of background noise (such as in restaurants).  I work in a courtroom and the Transear has been very useful to me in that setting.  I do not wear it much at home because it is not as needed and I am cheap on batteries.  Keep us posted.  Susan
Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

JAndrews

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Re: Disappointed with Transear
« Reply #5 on: June 10, 2011, 02:47:40 pm »
No hole in my head either:) Transear sucks, tried it for 4 months- waste of money
2.5cm x2.0cm cerebellapontine angle meningioma. 100% removal 2/2009. House Ear Institute. Dr Brackmann and Dr. Schwartz. SSD right ear. No balance problems except when really tired, no headaches. Transear hearing aide made no difference, tried it for 4 months.

leapyrtwins

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Re: Disappointed with Transear
« Reply #6 on: June 10, 2011, 06:35:18 pm »
My opinion - absolutely nothing wrong with having a "hole in your head" if it helps you hear. 

And I say that sincerely, and from experience.

BAHAs aren't for everyone, but those who have them are very happy with them.  And personally not having to wear something in my ear - or in my mouth - thrills the hell out of me.

You couldn't pay me enough to use a Soundbite.

Just my two cents worth,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Patti UT

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Re: Disappointed with Transear
« Reply #7 on: June 11, 2011, 09:04:14 pm »
KK,
  I have been "testing" a Transear since lat Feb.  I am not satisfied with it, but I can say they are super to work with. I too had my expectations way too high.  Neither the Transear or BAHA will ever make you feel like you have your hearing back. My experience has been it does not really make you "hear" from the bad side in everyday life, it's really not noticeably different . But more you notice how deaf you are when your not wearing it. Like you they originally sent one of each the old and new models.  I started off with the newer model. After a week or so we concluded the fit was not good so they remade it and I tried the older, larger model while waiting for the remake to show up.  I did not like the vibration of the older model at all, so I only lasted a day with it.  Then the remake stopped working, a short or something from the audiologist changing out the wires, bent a pin inside.  So they remade it again, and it unfortunately was remade to the size of the first one which was not right.  So they remade it yet again.  Each time they have extended my trial period.   I tested really really well in the audiologist office, but I find that when I am out and about, I don't feel it is helping me any.  If I block my good ear, like when watching TV,  I can hear the sound transfer to my good ear real well, but as soon as I move, of talk (movement of jaw) I seem to loose the contact with the bone on the inside of the ear canal.  If I push it in deeper I get the contact back again. So the fit is still not right and I am starting to think we are probably at the end of trying it.  It could very well be the shape of MY ear canal that is causing it.  The audiologist was going to talk to Transear about maybe making it one last time making it a little longer.  It's hard since they are working off a mold and not seeing me in person.  I am VERY disappointed, but I am VERY happy with the customer service I have received from Transear. I am hopeful that there will someday be a device like this that will work better for me.  As far as a Baha goes, I too am not in a hurry to have another surgery.  And after trying out the transear, I'm not convinced that a BAHA or Transear will help all that much. But any help would be great, just not at the expense of surgery for me.  As for Soundbite, I am not thrilled with the idea of having to wear something inside the mouth as well as inside the ear and behind the ear.  Too many parts and batteries.

Patti UT
2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

nftwoed

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Re: Disappointed with Transear
« Reply #8 on: June 12, 2011, 07:36:53 am »
kay kay and Patti;

  Must say the audiologist needs to take some time with this if even it comes down to hand sanding the half shell in order for it to fit perfectly. I mean, exactly perfectly!
  I wonder how many truly dedicated and knowledgeable specialist exist to fit Transear.
  With either BAHA, or Transear, I wonder if we aren't looking at a skull vibration transferance rate of only 60% or less.
  Life is certainly less complicated w/o Cros devices and one gets used to single sided deafness.

Patti UT

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Re: Disappointed with Transear
« Reply #9 on: June 12, 2011, 08:09:47 pm »
a Fellow  local AN'er says she puts an ear plug in her good ear when out and about, it seems to muffle out any background noise and lets her hear someone talking to her, she claims it works especially good in a restaurant.  I will have to try this, and maybe just use that as my 'helper" since Transear is not working.  I agree, It needs to fit "perfectally"  I don't think there are many audiologist able to fit it well enough.  I think the mold didn't go deep enough to begin with.

Anyway, since trying the Transear, I feel it has made my tinnitus worse. (as if it could get any louder ???)  I'm thinking it has confused my brain and so the "T" has been trained up. especially within 15 min or so after taking the Transear out. 

Patti UT
2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

kaykay

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Re: Disappointed with Transear
« Reply #10 on: June 16, 2011, 01:11:28 pm »
I sent it back yesterday.  I tried wearing it at work........didnt hear squat. I really think she didnt take a good mold. I could feel it move when I ate.
and the thing is....i had to go back twice for molds. first mold she took was the wrong material. (she hasnt fit anyone with it in 2 years)...and when i had that done...wow! did i feel that foam thing going in. holy crap. LOL.
when i went back the 2nd time to get the correct material....when she put the foam thing in I didnt feel anything. so i dont think she went far enough.
I really dont want to drive all that way again. So Im just gonna wait. I have near perfect hearing in my good ear...and sometimes i think my brain doesnt realize I am deaf on one side.
Im just gonna wait for the Soundbite. figured I had braces and retainers...and a permanent retainer....think I can handle something attached to a tooth. keeping my fingers crossed.
I give kudos to everyone that got the BAHA but its just not for me. Im just dont want anymore surgeries...

leapyrtwins

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Re: Disappointed with Transear
« Reply #11 on: June 16, 2011, 03:39:22 pm »
I give kudos to everyone that got the BAHA but its just not for me. Im just dont want anymore surgeries...

Kaykay -  I can totally relate to that comment.  After my AN surgery - a BIG surgery - I didn't even want to think about something involving my head and a sharp object  ;)

However, BAHA implant surgery is absolutely nothing like AN surgery.  It's quick, outpatient, can be done with local, and they don't open up your head (although they do drill a hole in it). 

For the majority of BAHA recipients, there are no surgical or healing complications.  It's similar to going to the dentist to have a cavity filled - except for the healing involved, which can take a little time.

You are right, it's not for everyone, but don't let the fear of another big surgery stop you. 

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Debbi

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Re: Disappointed with Transear
« Reply #12 on: June 23, 2011, 09:40:13 am »
Hi KayKay,

So sorry to hear about the Transear experience.  I do know people who love their Transear, so wondering if the fact that your audiologist doesn't seem to do many of them is part of the problem.  When I was researching this for myself, I also remember reading that if you have a narrow ear canal, it can be hard to fit.  Like you, I was in no mood for more surgery, but I finally did go ahead after nearly 3 years and get a baha.  Very happy with my decision, but also understand the desire not to have any more holes in your head!

One thing I want to mention.  When I was getting my baha "installed" the audiologist told me that I should wear it every day, even if I wasn't going to be in situations where I thought I needed it.  She said that my brain needed time to adjust to the new noise source, and the fact that it is a very different type of sound than what the brain is used to receiving.  She said that if I only wore it occasionally, I would not get the full value.  I would imagine that the Transear is the same way, since it also relies on bone conduction.    I do not consciously hear a difference when I am wearing my baha, but what I notice is that I hear conversations that I was never able to hear before, if that makes sense.  It's made a huge difference in terms of the quality of my life.

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

tenai98

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Re: Disappointed with Transear
« Reply #13 on: June 23, 2011, 01:44:25 pm »
Deb, I sure do know what you mean... I dont hear any difference when wearing the Baha..but when not wearing it is when I notice the difference...If that makes any sense...I quite often plug my good ear to hear only from the Baha..and marvel at the technology
JO
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cyberknife on June 7

Debbi

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Re: Disappointed with Transear
« Reply #14 on: June 23, 2011, 02:16:53 pm »
Jo, that's SO funny!  I do the exact same thing - when I'm sitting in a restaurant, when I'm driving down the road, when I'm watching tv ... I cover my hearing ear just so I can hear with my "digital ear."  I guess I am easily amused!

I also used the "share with a friend" rod and let my 3 1/2 year old grand nephew try it - he shrieked (ow) with delight and asked his mom if he could have "an ear like Aunt Debbi."  So funny.

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com