Author Topic: Headcount of Forumites attending Cinci Symposium  (Read 49539 times)

ppearl214

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Headcount of Forumites attending Cinci Symposium
« on: May 23, 2011, 04:26:55 pm »
Hi all

Judy from the ANA office did a post here requesting who, from the forums, IS attending, as they are planning something for the forumites:

http://www.anausa.org/smf/index.php?topic=13937.new#new

Please note here if you ARE attending so she will know.

thanks!
Phyl


Attending:
ppearl214/Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Cheryl R

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #1 on: May 23, 2011, 04:59:59 pm »
I have my own personal list of people who attend the symposium regularly but not on the forum here.    One couple from MI said last time was their 9th one.    She had the AN.    Know of 7 people/ or couples who have come 2 or more prior to this one and aren't here or were a long time ago.
   There has been mention of it on the ANA facebook too but not sure who might be coming of them      Several drs have been there regularly, including the HEI drs.     Dr Slattery now recognizes me from previous symposiums and he is wonderful to talk to.  Dr Ravi Samy was in on my first AN surgery while as a fellow in Iowa City.     My surgeon says I am to tell him hello from him.   
                                                    Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

ppearl214

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #2 on: May 24, 2011, 03:54:13 am »
Cheryl

Will you and that marvelous spouse of your's be there? I can't keep up with who noted they were coming from the forums......  Totally agree about Dr. Slattery.  Not my doc but met him at the last symposium and since then, have had communications with him.... great guy!

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Cheryl R

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #3 on: May 24, 2011, 07:19:16 am »
Phyl, yes we are coming but I am the only symposium person.       I do make him come to the NF2 mini session.      Driving and will be there on Thurs.    Time is coming fast.                    Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

CHD63

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #4 on: May 24, 2011, 07:35:38 am »
Truman and I are driving and will be there. Wouldn't miss it!!!

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

ksiwek

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #5 on: May 24, 2011, 08:17:26 pm »
Hi all!

My husband and I will be driving in on Friday night!  Looking forward to meeting everyone!

Kris
Translab 6/4/10 for 4+ cm left AN.  Drs Friedman and Schwartz at HEI saved my life!
BAHA surgery on 10/7/10 with Dr Battista of Chicago Ear Institute (Oticon Ponto Pro)

Barb909

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #6 on: May 24, 2011, 10:04:39 pm »
Hi,
I will be there by Thursday evening and can't wait to meet everyone! My 3rd MRI is scheduled for June 1 and I hope to leave that weekend of "AN immersion" with a plan. See you there!

Barb
Feb. 2010    4 x 8 x 5mm
June 2011   4.7 x 8.9 x 4.0mm
May 2012    4.5 x 9.1 x 3.9mm
Sept. 2013   5 x 10.1 x 5mm
Feb. 2015     6 x 13 x 5 mm
In IAC near cochlea
Mild hearing loss, tinnitus
W & W, thinking about treatment

ppearl214

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #7 on: May 25, 2011, 03:46:09 am »
Great! So looking forward to seeing old and new friends... and Clarice.... Oh my word!  :o  Soooo soon after your surgery!  Got a healing huggle on reserve for you!  :-*

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Kaybo

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #8 on: May 25, 2011, 06:30:52 am »
So sad to not be in the thick of things - about this time for Chicago, I was trying to help get a Thurday night dinner together for Forum folks...somebody better jump on that!!

Will miss seeing familiar faces & meeting new ones!  :-[

Try to have fun without me (& all the others that can't make it this year!)

;D

Hope the next Symposium is in Boston or HOUSTON or somewhere fun!!  ;)
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
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ombrerose4

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #9 on: May 25, 2011, 03:49:21 pm »
I will be getting in sometime Thurs. evening. Can't wait to meet you guys ;D
Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

leapyrtwins

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #10 on: May 25, 2011, 10:20:02 pm »
Will miss seeing familiar faces & meeting new ones!  :-[

Try to have fun without me (& all the others that can't make it this year!)

;D

Ditto for me  :'(

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

CHD63

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #11 on: May 26, 2011, 07:40:30 am »
Is anyone up for organizing a Forumites supper together on Thursday night?  I really physically probably should not take on this responsibility, but I would sure like to have an additional time to see everyone.

If anyone is familiar with the area near the symposium hotel, can you suggest a quiet restaurant (or one that has a separate room) where we could gather?  We gathered in Chicago on Thursday night, but unfortunately the restaurant was lovely but noisy so it made talking difficult.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Cheryl R

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #12 on: May 26, 2011, 08:13:47 am »
Clarice, Thanks for mentioning this .  I was going to post something about it, too.  We aren't leaving till Weds afternoon so will get in Thurs afternoon as it is not going to be an all the way trip with no stop.   I wonder if the hotel would have an idea of a good place?   Could we let the symposium planner know?  They might be able to ask the hotel where a good place is.  Anyway, we will miss the friends who came last time - and can't wait to meet the new friends this time!

                                                      Cheryl R
« Last Edit: May 26, 2011, 02:00:56 pm by Jim Scott »
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

CHD63

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #13 on: May 26, 2011, 02:38:08 pm »
OK, I inadvertently made a connection on the Chicago Thursday night supper gathering place.  Did not mean to imply that anyone was responsible for choosing a noisy restaurant.  As I remember there were not that many choices for quiet places near the Drake ...... being the hopping city Chicago is in that area.  Most people enjoy loud music to make them feel "with it."  One of the local AN gals knew the food was good there and each could have a choice for type of food so that's how we ended up going there.  Nothing wrong with the restaurant, just not an easy place to talk with each other.

(Sorry, Kay!)

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

deheisel11

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #14 on: May 26, 2011, 06:42:06 pm »
As a newbie, I am attending my first symposium in Cincy.  I am really looking forward to meeting some other forumites.  Although I live in Ohio, my knowledge of restaurants in Cincy is totally nil.  See you all there.
translab surgery of 2.6cm neuroma, right side, by Dr. Welling at Ohio State, 6-18-10.  BAHA base placed on same day.  Facial paralysis. Gold weight 7-14-10.