Author Topic: Headcount of Forumites attending Cinci Symposium  (Read 49538 times)

Cheryl R

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #150 on: June 30, 2011, 07:55:03 am »
It is Laura.     Didn't catch last name or if on here but Phyl would know.    She is a Boston support group leader.                       Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Mei Mei

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #151 on: June 30, 2011, 08:37:58 am »
Yes, she is really nice.  I am meeting with her next week when I am in Boston.  She comes down here sometimes.
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

ppearl214

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #152 on: July 01, 2011, 04:06:10 am »
It is Laura.     Didn't catch last name or if on here but Phyl would know.    She is a Boston support group leader.                       Cheryl R

You are correct Cheryl! :)

Hey MeiMei,
Laura is the local Metro Boston ANA Support Group leader. Her user name on the forums is MZB475.  You can send her a PM/Email here and you all can share personal contact info in emails to catch up for your time here in town.  Hoping next Sunday works out.  Send me PM/email with details for you in this area (you know which area I am in) and Laura, as you know, isn't far from me at all, so we can try to coordinate.  Not sure of Laura's schedule so can can respond on that! Would LOVE to see you again! Been too long! ;)

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Mei Mei

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #153 on: July 01, 2011, 07:10:31 pm »
 ;D  Yes, looking forward to getting together with you and Lauren somewhere on the road back from York Beach on Friday.   I have the feeling that Kathy won't want to stay overnight in Maine and will just beeline it back to Mass.  Can you give us a name of a restaurant to meet at off of 95 or 128?

I saw a clip on NBC Nightly News tonight about a doctor from Minn that is helping Palestinians to hear again.   I wish that I could work with him.   I am trying on doing some volunteer work with the hearing impaired in my retirement.  I'm starting back at the gym next week.

Huggles,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Barb909

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #154 on: July 07, 2011, 10:32:55 am »
Hi all,

I am just now home from Cincinnati; I stayed to visit my sister and other friends. Symposium and meeting folks from the forum was so great! Thanks for the pictures.

Met with Dr. Theo the following week and he advises me to hold steady till next spring or summer. Suits me just fine!

Wish I could meet up with you all but, as Phyllis kept reminding me, I am from the "wrong coast"!!! Hope you have a great time. If ever in Seattle look me up. LA is just down the pike, so will see you all there. Already looking forward to that!

Cheers,
Barb
Feb. 2010    4 x 8 x 5mm
June 2011   4.7 x 8.9 x 4.0mm
May 2012    4.5 x 9.1 x 3.9mm
Sept. 2013   5 x 10.1 x 5mm
Feb. 2015     6 x 13 x 5 mm
In IAC near cochlea
Mild hearing loss, tinnitus
W & W, thinking about treatment

Mei Mei

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #155 on: July 07, 2011, 09:33:01 pm »
Awww shucks!   There's no right or wrong coast.   We love west coasters!     :-*
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

ppearl214

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #156 on: July 09, 2011, 07:27:26 am »
Wish I could meet up with you all but, as Phyllis kept reminding me, I am from the "wrong coast"!!! Hope you have a great time. If ever in Seattle look me up. LA is just down the pike, so will see you all there. Already looking forward to that!

The "Left" Coast... the "Left" Coast.... :)  Thrilled to hear the rest of your trip was a good one, Barb! :)


Ok, here they are, with apologies for the delay in posting (ie: Queenie Beanie the Pug Healing Toot queen has taken very ill and we are packing to move in 2 weeks....).....

PICS FROM THE SYMPOSIUM BANQUET!!!!!!

See how many you can recognize?  There are a few of famous ANA faces and..... a lovely one of me and Francesco! :)  Was thrilled to finally meet him after ALL of these years!  So many new faces.... and so many memories!

Pics posted on Photobucket. If you have issues accessing, let me know.

http://s1177.photobucket.com/albums/x354/ANAModerator/?albumview=slideshow

"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Mei Mei

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #157 on: July 09, 2011, 08:18:20 am »
Great Pics, Phyl
Hoping to take some more today at lunch with you at Bertucci's.   I'll send them and the Flip pics to Steve of course because he is less Wonky head than me.   Would you believe I used to work at MIT in Electrical Engineering and Computer Science and was hired to put the department on a data base which they didn't have at the time.   Later I worked at the NIH Computer Center.   Now I am a wonky head.
Thanks Steve for the technical support.
Hugs all,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

CHD63

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #158 on: July 09, 2011, 08:34:42 am »
Phyl .....

Thanks for sharing the pix.  What a wonderful week-end!!

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Barb909

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #159 on: July 09, 2011, 08:57:03 am »
Great fun to "see" everyone again! Thanks for posting. Clarice, Truman is such a very nice man and that is a sweet pic of you both. Tell him "hello" from me!

B.
Feb. 2010    4 x 8 x 5mm
June 2011   4.7 x 8.9 x 4.0mm
May 2012    4.5 x 9.1 x 3.9mm
Sept. 2013   5 x 10.1 x 5mm
Feb. 2015     6 x 13 x 5 mm
In IAC near cochlea
Mild hearing loss, tinnitus
W & W, thinking about treatment

CHD63

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #160 on: July 09, 2011, 10:39:21 am »
Barb .....

I think he's pretty nice myself!   ;D  It was great getting to know you, as well.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Jim Scott

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #161 on: July 09, 2011, 03:02:29 pm »
Phyl ~

Great photos!  On behalf of all of us who couldn't be there: thanks!
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

skipg

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #162 on: July 09, 2011, 03:59:20 pm »
Great pix, thanks for sharing. Now your next assignment is to go back and label everyone.  Had a wonderful and rewarding time.
Skip
Self diagnosed 11/17/2010 (love the internet)
MRI 12/2010 Official diagnosis 1/3/2011 RT AN 7x6x4mm's
MRI 6/17/2011 no change still 7X6X4
MRI 7/20/2012 growth spurt to 14mm
Aug 8th consult and decided on Proton Therapy
Proton Therapy @ Hampton Proton Institute,       done on 11/20/12

leapyrtwins

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #163 on: July 10, 2011, 06:40:23 am »
Thanks for the pictures, Phyl.

Love the one of you and Francesco.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

G_Man

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #164 on: July 15, 2011, 10:07:13 pm »
Great pics.  Someone was going around taking official pics for the website gallery.  He took one of Lauren and her husband with me.  So I'm betting they took a whole bunch more.
Diag: 08/11/2009 Left side
AN: 0.6cm.  65% Hearing loss, tinnitus, fullness, minor motion issues.
hearing loss over 25+ years.  MRI in 2000 showed nothing.
Optical Atrophy from infantcy
Watch and Wait.
As of 2017 I am on a 2 year MRI frequency.