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Author Topic: I Got It!!!!!!  (Read 6591 times)

keithk

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I Got It!!!!!!
« on: February 01, 2011, 01:02:35 pm »
This moring I was switched on. It was nice to "hear" from my SSD side.
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AN surgery 8/19/10, 9.5 hrs
8mm x 5mm left side
Retrosigmoid, Drs Reichert & Harvey
Severe hearing loss in the left ear before surgery. SSD after surgery. Balance issues. Tinnitus (mild). Buzzing in left ear.
BAHA implant surgery 11/17/10
BAHA activation 2/1/11

Kaybo

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Re: I Got It!!!!!!
« Reply #1 on: February 01, 2011, 01:32:24 pm »
Yea Keith!!

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Tod

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Re: I Got It!!!!!!
« Reply #2 on: February 01, 2011, 02:41:48 pm »
Yay!


-Tod
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Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

Jim Scott

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Re: I Got It!!!!!!
« Reply #3 on: February 01, 2011, 03:16:07 pm »
Congratulations, Keith!

Can you hear me, now?  ;)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

dalern

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Re: I Got It!!!!!!
« Reply #4 on: February 01, 2011, 09:59:59 pm »
I know it is just the neatest feeling!  Congratulations!
~Dale
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Dale Barnes, RN, MSN, CLNC
Tarzana, CA
1998 Sudden Onset Idiopathic Sensorineural  hearing loss diagnosed at House Ear Institute, Los Angeles
BAHA June 30, 2010 Dr. Jeffrey Harris UCSD San Diego

dianehen

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Re: I Got It!!!!!!
« Reply #5 on: February 01, 2011, 10:44:22 pm »
Congratulations Keith!  I can't wait to get mine on March 21!
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leapyrtwins

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Re: I Got It!!!!!!
« Reply #6 on: February 02, 2011, 08:22:25 am »
Congrats, Keith!  ;D

BAHAs rock!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Debbi

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Re: I Got It!!!!!!
« Reply #7 on: February 02, 2011, 03:06:34 pm »
Hey Keith,
Okay, I am officially jealous!!! I don't get mine until Feb 17.  So, tell ALL - how is it? 

Debbi, right behind you...
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

keithk

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Re: I Got It!!!!!!
« Reply #8 on: February 02, 2011, 04:55:16 pm »
Well, there are several  concerns I have. One is I can't adjust the volume to match my good ear, there seems to be some white noise and I can' wear a hat. I have a follow up on the 17th.
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AN surgery 8/19/10, 9.5 hrs
8mm x 5mm left side
Retrosigmoid, Drs Reichert & Harvey
Severe hearing loss in the left ear before surgery. SSD after surgery. Balance issues. Tinnitus (mild). Buzzing in left ear.
BAHA implant surgery 11/17/10
BAHA activation 2/1/11

Debbi

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Re: I Got It!!!!!!
« Reply #9 on: February 02, 2011, 05:56:23 pm »
Oh, too bad you have to wait that long. ???  I am approx 2 hours away from the audiologist who is "fitting" mine, so am hoping she gets it right quickly so I don't have to try to get back and fortth.  I am trying to keep my expectations for the baha reasonable, but that said, it's hard not to feel a bit excited at the idea of being able to hear things.

Hope your concerns get resolved. Not sure about the hat, though ...

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

ombrerose4

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Re: I Got It!!!!!!
« Reply #10 on: February 02, 2011, 06:55:13 pm »
Congrats on your Baha turn on :) I am not sure if the Baha can be programmed to match the hearing in your good ear. I am still trying to get mine programmed better- it seems to be a trial and error approach or maybe just finding the right audiologist who has had alot of Baha experience. As for wearing a hat, I can't , so I just keep the Baha off until my hat comes off. Good luck!
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Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

dalern

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Re: I Got It!!!!!!
« Reply #11 on: February 02, 2011, 08:46:24 pm »
Don't expect the hearing in your SSD ear to match to good ear, even with the BAHA.  It will never be the same, but it will be a great improvement over what you had prior to the BAHA.
~Dale
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Dale Barnes, RN, MSN, CLNC
Tarzana, CA
1998 Sudden Onset Idiopathic Sensorineural  hearing loss diagnosed at House Ear Institute, Los Angeles
BAHA June 30, 2010 Dr. Jeffrey Harris UCSD San Diego

wendysig

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Re: I Got It!!!!!!
« Reply #12 on: February 04, 2011, 05:51:24 pm »
Keith,

Congratulations on getting "turned on!"  Like Lauren, I'm not sure BAHA will be able to match your hearing ability on your deaf side to your good side.  BAHA is a huge improvement over being SSD but, realistically, not the same as natural hearing.  That said, I think once your BAHA is properly programmed you will be very happy with it anyway.

Best wishes,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Kencutus

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Re: I Got It!!!!!!
« Reply #13 on: February 05, 2011, 11:33:25 am »
Congrats and you will love your BAHA. It's not perfect but much better than before I would imagine.  ;D 
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"Hearing Resistance is Futile!"
Treacher Collin's Syndrome
First surgery left side 12-08, Baha Intenso 3-09
Abbutment came loose on 5-09
Bilateral Baha surgery 6-09 Baha refitted 9-09
Richard & Mark Wiet MD from Ear Institute of Chicago.

keithk

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Re: I Got It!!!!!!
« Reply #14 on: February 17, 2011, 03:18:12 pm »
I had my follow-up today with my audiologist. He was able to encrease the volume, and now I am a happy camper. The hearing test he gave me was simulating a crowd. There was a 7db increase wearing my BAHA over not wearing it. I am extreamly happy with it.
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AN surgery 8/19/10, 9.5 hrs
8mm x 5mm left side
Retrosigmoid, Drs Reichert & Harvey
Severe hearing loss in the left ear before surgery. SSD after surgery. Balance issues. Tinnitus (mild). Buzzing in left ear.
BAHA implant surgery 11/17/10
BAHA activation 2/1/11
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