Author Topic: Donnalynn's Husband - Please Pray  (Read 60904 times)

ppearl214

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Re: Donnalynn's Husband - Please Pray
« Reply #15 on: August 31, 2010, 05:15:44 pm »
D... you KNOW J is in my thoughts and prayers, as are you and V.  With MUCH love, m'dear.

xoxooxoxoxoxoxxooxox
P
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Cheryl R

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Re: Donnalynn's Husband - Please Pray
« Reply #16 on: August 31, 2010, 05:53:42 pm »
I am so sorry to hear of this and will keep you in my thoughts.        Too many things happening to those here and we just have to hope for the best!                            Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Rich56

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Re: Donnalynn's Husband - Please Pray
« Reply #17 on: August 31, 2010, 05:59:43 pm »
This is horrible, Jim and Donnalynn are surely in our thoughts and prayers, that he makes a full recovery as Sara’s pastor did.

Hang tough Donnalynn, Jim will be okay,

Rich & Scarlett

P.S. Thanks Cheryl
SML (Scarlett's) other half, she had - 1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid on 3/18/09 at MGH in Boston, MA. Dr. Barker & Dr. Lee of MGH/MEEI
no facial issues, SSD right side, balance issues to work on.
The AN Calendar is here: http://www.my.calendars.net/AN_Treatments

free2be

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Re: Donnalynn's Husband - Please Pray
« Reply #18 on: August 31, 2010, 06:16:37 pm »
Donnalynn,

You are such a sweet person and I'm sure Jim is too. I'm so sorry you are going through this; our prayers for a miracle are with you both and I do believe in miracles!

Take care,
Connie
Diagnosed Nov. 2008 Right AN 7 mm x 9 mm
Incremental MRIs enhancing mass
June 2010 1.4 cm x 0.9 cm extension into the CP angle
Pre-CK Stanford measurements 1.6 X 1.1 cm
9/29/10 - 10/1/10 CK completed with Dr Steven Chang and Soltys, Stanford.
6-month thru three year (8/13) follow ups MRI: stable

Brendalu

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Re: Donnalynn's Husband - Please Pray
« Reply #19 on: August 31, 2010, 07:30:05 pm »
prayers and more prayers
Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

msmaggie

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Re: Donnalynn's Husband - Please Pray
« Reply #20 on: August 31, 2010, 09:21:41 pm »
Just got in and am so sorry to hear about this!  Prayers are being sent on their behalf.
Priscilla
Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

yardtick

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Re: Donnalynn's Husband - Please Pray
« Reply #21 on: August 31, 2010, 09:24:24 pm »
Donnalynn and Jim I am praying for you.

Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

4cm in Pacific Northwest

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Re: Donnalynn's Husband - Please Pray
« Reply #22 on: August 31, 2010, 10:28:08 pm »
OMG

We were expecting them here in Oregon, this week, as they were planning a camping trip down the west coast. I had not had a reply from Donnalyn from my PM and I could not figure out why... Oh my this is scary.

Thank goodness this did not happen while they were here in the USA... far away from family and their doctor.

I will contact Steve and Jackie as we were hoping to all connect with them when they were to be here.

They are in my prayers. Thanks for letting us know.

DHM
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

leapyrtwins

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Re: Donnalynn's Husband - Please Pray
« Reply #23 on: September 01, 2010, 11:04:26 am »
Oh man  :o

SO sorry to hear this.

Prayers to Jim. 

Those of you in contact with Donnalynn, please keep us updated.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Jim Scott

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Re: Donnalynn's Husband - Please Pray
« Reply #24 on: September 01, 2010, 04:28:14 pm »
Donnalynn ~

Thank you taking the time to post this informative update.  I'll keep this brief by simply saying that you and Jim will continue to be in my prayers.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

saralynn143

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Re: Donnalynn's Husband - Please Pray
« Reply #25 on: September 01, 2010, 04:41:15 pm »
Oh Donnalynn, I'm sending all the love I can your way and will pray continuously.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

leapyrtwins

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Re: Donnalynn's Husband - Please Pray
« Reply #26 on: September 01, 2010, 04:47:08 pm »
Donnalynn -

so sorry you and Jim are going through all of this.  I was hopeful he was out of the woods after his last health issue.

You are right, God is in control.  And he's hearing the prayers of numerous Forumites even as we speak.

Know that we are here for you - and for Jim.

Best  :-*

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Captain Deb

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Re: Donnalynn's Husband - Please Pray
« Reply #27 on: September 01, 2010, 04:51:43 pm »
Donnalynn and Jim,

I'm keeping you both in my thoughts and prayers. Thanks for the update.  Wish I could just wrap my arms around you both--you are such special people.

Hugs,

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

CHD63

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Re: Donnalynn's Husband - Please Pray
« Reply #28 on: September 01, 2010, 05:08:39 pm »
Donnalynn .....

Thanks so much for giving us the detailed update.  It helps to know how to pray more specifically.

Much love and many prayers coming your way and for you and Jim.  Heparin is a good drug to keep the blood from clotting any more and now we just pray that the existing clots will quickly be absorbed by his body.

Many prayers for you to be able to get some rest.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Cheryl R

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Re: Donnalynn's Husband - Please Pray
« Reply #29 on: September 01, 2010, 05:32:25 pm »
Donnalynn,   This is such a scary time for you both and I can't even imagine having to be home in this situitation. I hope your guardian angel continues to watch over you both and keep him safe.     The right medications are there but having to be the one watching over him is very hard for you.            I wish all of us nurses here were closer so could do a shift and let you get the rest you need.                    My prayers are with you.                          Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

 


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