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AN Community => AN Community => Topic started by: another NY postie on August 31, 2010, 06:30:25 am

Title: Donnalynn's Husband - Please Pray
Post by: another NY postie on August 31, 2010, 06:30:25 am
Donnalynn's husband, Jim, had a blood clot in his leg that broke free and several clots moved to his lung.  His condition is critical and she said they need a miracle, so please everyone start praying hard for them.
Title: Re: Donnalynn's Husband - Please Pray
Post by: iluuvpups on August 31, 2010, 06:41:09 am
OMG.  I am so sorry to hear about this.  Donnalynn has been so helpful to me.  I wish there was something I could do.  I will pray for him!
Title: Re: Donnalynn's Husband - Please Pray
Post by: saralynn143 on August 31, 2010, 07:02:57 am
Jim and Donnalynn will be in my thoughts and prayers continuously. My pastor recently made a full recovery from the very same condition, so I know that there is every reason for hope.

Sara
Title: Re: Donnalynn's Husband - Please Pray
Post by: Brewers7 on August 31, 2010, 08:56:46 am
Donnalynn,  Praying for both of you.  Love, Susan
Title: Re: Donnalynn's Husband - Please Pray
Post by: cindyj on August 31, 2010, 09:22:30 am
Oh, no...they have had so much more than their share over the past few years...thanks for letting us know, Cheryl.  Of course we will be thinking of and sending prayers for Jim.

Cindy
Title: Re: Donnalynn's Husband - Please Pray
Post by: texsooner on August 31, 2010, 09:27:06 am
Donnalynn,

We all know you're a strong lady....hang tough. We are praying for you and Jim.

Patrick
Title: Re: Donnalynn's Husband - Please Pray
Post by: Kaybo on August 31, 2010, 09:47:50 am
Oh my! I hadn't talked to her since his weekend - she was afraid that would happen. She didn't want me to post until they found out more on Monday. Guess they found a hospital bed for him now...he wasn't hospitalized at first b/c they had no beds! :(

Definitely praying for them all!

K
Title: Re: Donnalynn's Husband - Please Pray
Post by: CHD63 on August 31, 2010, 11:06:33 am
Just reading this ......  many prayers for both Jim and Donnalynn!!

Clarice
Title: Re: Donnalynn's Husband - Please Pray
Post by: lori67 on August 31, 2010, 11:37:53 am
Praying extra, extra prayers for Donnalynn and Jim!

Lori
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on August 31, 2010, 12:00:37 pm
Donnalynn and Jim,
Praying for a miracle, hoping they can dissolve the clots. So sorry to hear.
Hang tough, Donnalynn.
Maureen
Title: Re: Donnalynn's Husband - Please Pray
Post by: Lizard on August 31, 2010, 12:47:48 pm
Oh my that's just aweful, saying a prayer right now for healing.  Calling my Mom too, she's got a whole prayer tree she can "activate".  I really hope everything turns out well.
Hugs,
Liz
Title: Re: Donnalynn's Husband - Please Pray
Post by: opp2 on August 31, 2010, 01:12:00 pm
Strength and love to both of you.
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jim Scott on August 31, 2010, 02:50:50 pm
Donnalynn ~

I'm so dismayed to just learn of this latest problem with Jim 's lungs (blood clot).  Of course, you'll both be in my prayers.  Jim, for healing and you, for strength.  God bless you both.

Jim
______________________________________________________________________________________________________________________________________________________________

Cheryl ~

As painful as it is to read, we appreciate you conveying this information.  I know that prayer changes things.  Now, those prayers will be offered.    Merci beaucoup.


Jim
Title: Re: Donnalynn's Husband - Please Pray
Post by: jerseygirl on August 31, 2010, 03:02:20 pm
Donnalyn and Jim,

I wish you much strength in these difficult times for your family and pray that everything will be fine. So sorry to learn about the hospital situation, hope it was not too long.  >:(
       
       Eve
Title: Re: Donnalynn's Husband - Please Pray
Post by: ombrerose4 on August 31, 2010, 04:20:41 pm
OMG, I wish you both all the strength you need to get through this. Believe in the miracle of prayers.
Title: Re: Donnalynn's Husband - Please Pray
Post by: ppearl214 on August 31, 2010, 05:15:44 pm
D... you KNOW J is in my thoughts and prayers, as are you and V.  With MUCH love, m'dear.

xoxooxoxoxoxoxxooxox
P
Title: Re: Donnalynn's Husband - Please Pray
Post by: Cheryl R on August 31, 2010, 05:53:42 pm
I am so sorry to hear of this and will keep you in my thoughts.        Too many things happening to those here and we just have to hope for the best!                            Cheryl R
Title: Re: Donnalynn's Husband - Please Pray
Post by: Rich56 on August 31, 2010, 05:59:43 pm
This is horrible, Jim and Donnalynn are surely in our thoughts and prayers, that he makes a full recovery as Sara’s pastor did.

Hang tough Donnalynn, Jim will be okay,

Rich & Scarlett

P.S. Thanks Cheryl
Title: Re: Donnalynn's Husband - Please Pray
Post by: free2be on August 31, 2010, 06:16:37 pm
Donnalynn,

You are such a sweet person and I'm sure Jim is too. I'm so sorry you are going through this; our prayers for a miracle are with you both and I do believe in miracles!

Take care,
Connie
Title: Re: Donnalynn's Husband - Please Pray
Post by: Brendalu on August 31, 2010, 07:30:05 pm
prayers and more prayers
Title: Re: Donnalynn's Husband - Please Pray
Post by: msmaggie on August 31, 2010, 09:21:41 pm
Just got in and am so sorry to hear about this!  Prayers are being sent on their behalf.
Priscilla
Title: Re: Donnalynn's Husband - Please Pray
Post by: yardtick on August 31, 2010, 09:24:24 pm
Donnalynn and Jim I am praying for you.

Anne Marie
Title: Re: Donnalynn's Husband - Please Pray
Post by: 4cm in Pacific Northwest on August 31, 2010, 10:28:08 pm
OMG

We were expecting them here in Oregon, this week, as they were planning a camping trip down the west coast. I had not had a reply from Donnalyn from my PM and I could not figure out why... Oh my this is scary.

Thank goodness this did not happen while they were here in the USA... far away from family and their doctor.

I will contact Steve and Jackie as we were hoping to all connect with them when they were to be here.

They are in my prayers. Thanks for letting us know.

DHM
Title: Re: Donnalynn's Husband - Please Pray
Post by: leapyrtwins on September 01, 2010, 11:04:26 am
Oh man  :o

SO sorry to hear this.

Prayers to Jim. 

Those of you in contact with Donnalynn, please keep us updated.

Jan
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jim Scott on September 01, 2010, 04:28:14 pm
Donnalynn ~

Thank you taking the time to post this informative update.  I'll keep this brief by simply saying that you and Jim will continue to be in my prayers.

Jim
Title: Re: Donnalynn's Husband - Please Pray
Post by: saralynn143 on September 01, 2010, 04:41:15 pm
Oh Donnalynn, I'm sending all the love I can your way and will pray continuously.

Sara
Title: Re: Donnalynn's Husband - Please Pray
Post by: leapyrtwins on September 01, 2010, 04:47:08 pm
Donnalynn -

so sorry you and Jim are going through all of this.  I was hopeful he was out of the woods after his last health issue.

You are right, God is in control.  And he's hearing the prayers of numerous Forumites even as we speak.

Know that we are here for you - and for Jim.

Best  :-*

Jan
Title: Re: Donnalynn's Husband - Please Pray
Post by: Captain Deb on September 01, 2010, 04:51:43 pm
Donnalynn and Jim,

I'm keeping you both in my thoughts and prayers. Thanks for the update.  Wish I could just wrap my arms around you both--you are such special people.

Hugs,

Capt Deb
Title: Re: Donnalynn's Husband - Please Pray
Post by: CHD63 on September 01, 2010, 05:08:39 pm
Donnalynn .....

Thanks so much for giving us the detailed update.  It helps to know how to pray more specifically.

Much love and many prayers coming your way and for you and Jim.  Heparin is a good drug to keep the blood from clotting any more and now we just pray that the existing clots will quickly be absorbed by his body.

Many prayers for you to be able to get some rest.

Clarice
Title: Re: Donnalynn's Husband - Please Pray
Post by: Cheryl R on September 01, 2010, 05:32:25 pm
Donnalynn,   This is such a scary time for you both and I can't even imagine having to be home in this situitation. I hope your guardian angel continues to watch over you both and keep him safe.     The right medications are there but having to be the one watching over him is very hard for you.            I wish all of us nurses here were closer so could do a shift and let you get the rest you need.                    My prayers are with you.                          Cheryl R
Title: Re: Donnalynn's Husband - Please Pray
Post by: iluuvpups on September 01, 2010, 05:59:21 pm
We are here for you - praying and supporting you, Donnalynn!  Hang in there.
Title: Re: Donnalynn's Husband - Please Pray
Post by: free2be on September 01, 2010, 06:26:30 pm
Donnalynn,

I'm so sorry you are both going through all this. Do you have any friends or family that could help out, especially one that's a nurse? How terrible a situation to be put in. I have you on our church prayer list and we'll all be praying for Jim.

Hang in there.
Connie
Title: Re: Donnalynn's Husband - Please Pray
Post by: msmaggie on September 01, 2010, 06:30:31 pm
Donnalynn,
 You can cry all you need to, and we will pray all the prayers needed to give you the strength and peace that are necessary.  Know that we are with you during the small hours.

Priscilla
Title: Re: Donnalynn's Husband - Please Pray
Post by: JerseyGirl2 on September 01, 2010, 06:35:03 pm
Donnalynn,

Thoughts and prayers are with you and your family.

Catherine (JerseyGirl 2)
Title: Re: Donnalynn's Husband - Please Pray
Post by: Rich56 on September 01, 2010, 07:12:22 pm
Donnalynn we are so sorry that this is happening to the two of you, what a terrible situation.  Our thoughts and prayers remain with you and Jim, that the meds and Jim’s body each do their part, and restore his health.

Rich & Scarlett
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on September 01, 2010, 07:21:34 pm
Praying for strength for you Donnalynn, and for the clot to dissolve peacefully.
Do you have home health nurses who can come and check on him, draw blood? He needs that, especially since he can't be walking on the leg.
I'd be there in a heartbeat. How scary for you-  Hang in there, I'm so sorry you have to be going through yet another ordeal.
Maureen
Title: Re: Donnalynn's Husband - Please Pray
Post by: Kaybo on September 01, 2010, 08:26:35 pm
Just got home and reading this (these super long days are killing my ability to stay "up" with things on the Forum!)...You know that you are in my prayers...wish I could do more!

Peace and Love,
Title: Re: Donnalynn's Husband - Please Pray
Post by: ombrerose4 on September 02, 2010, 07:28:41 am
Just want to add more prayers for both Jim and you to give you the strength to get through this horrible ordeal. We are all there for you.
Title: Re: Donnalynn's Husband - Please Pray
Post by: Lizard on September 02, 2010, 09:21:26 am
Donnalynn,
Thank you for posting the update, I too wish i live just around the corner so I could come and give you a big hug.  Lots of love and cyber hugs your way.
hang in there, and try to have faith that Jim will not have anymore clots.
Liz
Title: Re: Donnalynn's Husband - Please Pray
Post by: Pooter on September 02, 2010, 02:32:18 pm
Donnalynn,

Please know that you and Jim have been in my thoughts and prayers.  I've been following along with the conversation behind the scenes up until now.  Please keep us updated.

Regards,
Brian
Title: Re: Donnalynn's Husband - Please Pray
Post by: saralynn143 on September 02, 2010, 07:56:38 pm
Still praying, Donnalynn, how are the two of you holding up?

Sara
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on September 02, 2010, 08:07:36 pm
I have been MIA and I am saddened to hear this ... will keep my rock in hand and pray for Jim ... and for the strength you will need to be there for him
Title: Re: Donnalynn's Husband - Please Pray
Post by: saralynn143 on September 03, 2010, 05:58:10 am
Is that next Friday as in the 10th? You can check with the office and check wthether they keep a cancellation list, and ask that Jim be put on it to possibly get in sooner.

In the meantime, I pray that Jim gets relief from the pain and that both of you are given peace to wait during this difficult time.

Love from Missouri.

Sara
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on September 03, 2010, 10:08:09 am
Wishing and praying for a GOOD day for BOTH of you, and some answers to easy your anxiety.
Blood clot be gone, plz.
Maureen
Title: Re: Donnalynn's Husband - Please Pray
Post by: iluuvpups on September 03, 2010, 02:34:28 pm
How did Jim's appointment go today, Donnalynn?
Title: Re: Donnalynn's Husband - Please Pray
Post by: Captain Deb on September 03, 2010, 04:45:22 pm
That's what we get for living in the boonies!  No hospital bed for your hubby and my ENT is putting me through 2 surgeries because there was no operating room pathologist on duty at the time to figure out the nodule they were removing was cancerous and they needed to remove my whole thyroid.  Jeesh!

As I was falling asleep I was fantasizing about all of us forumites chipping in and chartering a plane to get Jim to a large city with a world class hospital.  I know I'd chip in!  Hope things go well for you and the sooner the better!

Hugs and more hugs,

Capt Deb
Title: Re: Donnalynn's Husband - Please Pray
Post by: MLB57 on September 03, 2010, 07:30:57 pm
Hi Donnalynn,

I can't imagine what a stressful time this must be for you and your beloved husband..  You both will certainly be in my heartfelt thoughts...It's so hard for us here in MA to comprehend there isn't a bed at the hospital for your husband--we have so many hospitals here... Can he be life-flighted to a larger hospital?  Just blows my mind--like you said it must feel like Africa...

Take care and all my best wishes to both of you...

Mary (aka GrammyMary)...
Title: Re: Donnalynn's Husband - Please Pray
Post by: yardtick on September 03, 2010, 08:11:56 pm
I'm hoping the appointment was productive and Jim is receiving the care that he deserves.  Do you have home care nurses in your area?  If you do demand the service.  I hope all of the medical staff that are attending to Jim know about your own health issues and this added stress of taking care of him at home could have an adverse effect on you.  

Can you bring Jim through the ER and refuse to take him home?  I'm just thinking of a proactive approach to get him into the hospital so you both can get some rest.

Take care both of you.......I know it is easier said than done!

Anne Marie
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jill Marie on September 03, 2010, 09:42:14 pm
Donnalynn,

It is so hard reading what you Jim & Vanessa have been going through.  I can't even begin to imagine what it is like to hear the doctor tell your beloved Jim to get his affairs in order and then on the other hand schedule tests and appointments for next week when something should be done NOW!  If there is something they can check for test for and do then it should be done NOW!!! Hospitals are open 24/7 to save lives, why aren't they doing that? 

I'm so glad to hear that the Fire Hall Crew was there to take care of you.  I believe it was Capt. Deb that said she would gladly help pay to get Jim help here in the US and that others here would do the same, I totally agree.  We also wish that we were there to help you like the Fire Hall Crew did but we can't so we will continue to think about you, pray for you and support you!  Jill Marie
Title: Re: Donnalynn's Husband - Please Pray
Post by: saralynn143 on September 04, 2010, 06:07:27 am
Donnalynn, I'm so sorry about this difficult situation. It truly is in God's hands, and I believe that God cured Jim's lung cancer, and He can take care of the blood clots too.

Jim's fire crew is indeed a wonderful bunch and I am glad they are there for you.

I wish I could do more, but know that I continue to pray for all of you.

Love, Sara
Title: Re: Donnalynn's Husband - Please Pray
Post by: msmaggie on September 04, 2010, 06:30:09 am
I am praying for God's perfect peace and strength for you and yours, Donnalynn....

Priscilla
Title: Re: Donnalynn's Husband - Please Pray
Post by: iluuvpups on September 04, 2010, 07:43:36 am
Sending you strength and love, Donnalynn!
Title: Re: Donnalynn's Husband - Please Pray
Post by: Cheryl R on September 04, 2010, 07:58:51 am
Donnalynn, may your guardian angel keep you all under her wings!         I am surprised too that his sats are as good as they are.    I hope that continues.   Right off I have never seen any other meds used for this but I was at a smaller hospital and not a big university where new drugs are tried out.          The cause of it all can play a part in what might work or might not.           
      We are all thinking of you and  hope for the best.                       Cheryl R
Title: Re: Donnalynn's Husband - Please Pray
Post by: pjb on September 04, 2010, 08:47:23 am
Donnalynn I am so so sorry I have not been on here much wallowing in my own self pity... I cannot believe what is happening to your husband and you as well...I am praying that all will work out and God will see you through this....... I do not have much but I will also contribute in helping you get him to the States...

My thoughts and prayers are with you both you have been an inspiration to all of us and I wish there was more that we can do for you..

Best Wishes,

Pat
Title: Re: Donnalynn's Husband - Please Pray
Post by: CHD63 on September 04, 2010, 11:44:30 am
Donnalynn .....

This is truly troubling news, on many fronts.  Thoughts and prayers seem so inadequate at this point, when so many of us feel that he deserves so much more in the way of medical care than he is getting.

Try to rest when you can and know that we are all shouldering this burden with you as best we can.

Love, thoughts, and prayers.  Clarice
Title: Re: Donnalynn's Husband - Please Pray
Post by: Lizard on September 04, 2010, 12:59:10 pm
Donnalyn,
It breaks my heart to see you and Jim going through this.  I'm praying for the best and that all the test come back negative for cancer.
Take care and know you are both in my thoughts.
Liz
Title: Re: Donnalynn's Husband - Please Pray
Post by: ppearl214 on September 04, 2010, 07:34:15 pm
D, I send love and MAJOR healing hugglez. I'm sorry to hear of the recent turn of events and please know that you, J and V are in our thoughts, prayers......the bloke and I send our very very best.

xoxooxoxoxoxo
Hugglez!
P
Title: Re: Donnalynn's Husband - Please Pray
Post by: ksiwek on September 04, 2010, 08:02:19 pm
Donnalynn,

You were my 'angel' when I needed you.  You helped me more than I could ever express in words.   You held my hand and heart over the phone and provided such support to someone who was a complete stranger.  You are such an amazing person and it breaks my heart to know you are hurting.

Please let me know if there is anything you need!  I am a phone call away.  For now, know that I am praying for your whole family...for health, comfort in these stressful times and for you to know that you are never alone.

Stay strong...and lean on your AN family!

XOXO
Kris
Title: Re: Donnalynn's Husband - Please Pray
Post by: ombrerose4 on September 04, 2010, 08:09:14 pm
Donnalynn,
I hope today was a better day for Jim and for you. I wish there was more we all could do to help you..But I hope the power of our healing thoughts will do the trick. Just know that we all are here for you and for Jim. Lots of prayers going on right now.
Title: Re: Donnalynn's Husband - Please Pray
Post by: free2be on September 04, 2010, 09:04:39 pm
Donnalynn,

I'm so sorry you are both going through all this and that you are having such trouble with the medical services there. How far are you from a city in the states? God must be looking out for Jim and so He must have bigger plans for him yet. Hang in there and try to rest. Our church is praying for him and I'm praying for you both.

Connie
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on September 05, 2010, 01:01:14 pm
Donnalynn,
I'm praying for you and Jim, and for a resolution to his blood clot problem.
He sees the cardiologist this week? Or is that the doctor he already saw.
Being a nurse,  I have seen patients with implanted device called IVC filter.

This is the quick blurb from Wikipedia:

An inferior vena cava filter, also IVC filter a type of vascular filter, is a medical device that is implanted by surgeons into the inferior vena cava to prevent fatal pulmonary emboli (PEs).
Inferior vena cava filter - Gunther Tulip.[1]

IVC filters are used in case of contraindication to anticoagulation, failure of anticoagulation or complication to anticoagulation in patients who have a venous thromboembolic disease or in prophylactic use for patients with a high risk of pulmonary embolism.

He needs one of these in my opinion to catch any further blood clots before they get to the lung. Ask at your next appt. Hopefully not another wait, but definitely something that needs to be looked into. Or go to the states to get one if you are looking at a wait. Unfortunately I don't know of services in the state :(

Hopefully he is on oxygen or you have it in the home if he gets more short of breath.

Again, my prayers for both. I 'm so dismayed. Hang in there, you and Jim WILL get through this!
Maureen

Title: Re: Donnalynn's Husband - Please Pray
Post by: cindyj on September 05, 2010, 05:25:08 pm
Been out of town since Wed and just now cathcing up a bit here...so very sorry to hear that things are no better with Jim, worse in fact, it sounds like.  Continued thoughts and prayers headed your way.  Your strength has been tested again and again, but I know you guys can get through this also.

Many hugs,

Cindy
Title: Re: Donnalynn's Husband - Please Pray
Post by: msmaggie on September 05, 2010, 07:29:57 pm
Dear Donnalynn,
If you are going to think about coming to the states for cancer treatment, then I will mention MD Anderson in the Houston Medical Center.  It has a great reputation, and my whole upstairs is empty and at your disposal.  Well, it isn't completely empty, but it is available for use . :D  I always need an excuse to get moving on the de-cluttering projects!

I am continuing to send prayers for strength, peace, and healing.

Priscilla
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jill Marie on September 05, 2010, 07:43:32 pm
Donnalynn,  So glad you posted again.  I check for an update on Jim at least 3 times a day, hoping that he is hanging in there so he can get to the appointment on Tuesday.  I have a very good feeling that he will be at that appointment with you and his crew.  Of course we continue to hope that it isn't cancer causing the clots but of course something serious is going on and hopefully they can figure out the cause and cure soon.  It's Labor Day weekend so I have Monday off and am not anxious to go to work on Tuesday but considering that you & Jim want Tuesday to get here quickly I hope the time goes fast.  So glad to hear that you are getting some much needed rest, you need it so you can take care of yourself & Jim.  Take Care, Jill
Title: Re: Donnalynn's Husband - Please Pray
Post by: iluuvpups on September 05, 2010, 07:50:43 pm
Thanks for the update, Donnalynn!  We are sending you continued strength, hope, and love!!

As for major cancer centers, Priscilla is right.  MD Anderson in Houston is reknowned.  So is Sloan Kettering in NY and Mayo in Rochester, MN.  You can't go wrong with any of those.

Hugs.  --Carol Ann
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on September 05, 2010, 08:13:44 pm
continued prayers coming your way ...
Title: Re: Donnalynn's Husband - Please Pray
Post by: CHD63 on September 05, 2010, 08:19:14 pm
Donnalynn .....

Thanks for your update.  I am so glad you have such good support with friends and your dear Vanessa.  This is one of those times when the love and care of those around you is so vitally important.

Love and prayers continue .....

Clarice
Title: Re: Donnalynn's Husband - Please Pray
Post by: Kaybo on September 05, 2010, 08:39:29 pm
Sweet Donnalynn~
I am so sad the trials that y'all are going thru and that I am so far away, but I am so relieved to hear of the support that Jim's crew is giving to you.  So glad to hear that you are able to get some rest - you need to be able to keep YOUR strength up so that you can best care for him. 

I agree WHOLEHEARTEDLY that you need to come to MD Anderson here in Houston!!  It is one of the best...let me know if you are seriously leaning that way...I think we (my FIL) could MAYBE make some calls...You need the Houston crew to take care of you!  I know Priscilla and I can give you a lot of time and I bet there are others too!

Still holding you up in prayer!!
Love & Hugs,
K
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jackie on September 05, 2010, 09:24:32 pm
Donnalynn darling,

So glad you took the time to let us all know the latest. At such a difficult time you continue to be your ever thoughtful self and that is why we all love you so much. You and Vanessa, must stay strong and healthy to take care of dear Jim. Isn't it wonderful how his crew is there to help! Wow, Cops and firefighters, what a remarkable bunch! We know, don't we!!!! Our continued prayer vigils , will remain stronger than ever, and His power will see this through! Blessings to you and yours, Always,
Jackie
Title: Re: Donnalynn's Husband - Please Pray
Post by: 4cm in Pacific Northwest on September 05, 2010, 09:29:59 pm
Donnalynn and Jim,

You both, and your family, are in my family's prayers. Your frustration with Canadian healthcare is sadly one I have experienced with other family members and I am sorry you have to endure this- up there.

I pray that an advocate comes along and gives you some assistance, in the frustrating system, and you get the results you want ... and need.

Big HUGS from a fellow Canadian down here in Oregon.

DHM

Title: Re: Donnalynn's Husband - Please Pray
Post by: Cheryl R on September 05, 2010, 10:04:47 pm
Donnalynn,    I am glad we get the updates and no turn for the worse for him.         Sounds like he could use the O2 and even day time use just to keep him going better.   
I know the filters are used  but I did read something not real long ago about them and can't remmeber it exactly now but that they can cause some problems too.             I know have had at least 2 pts I had taken care of with them as part of their history but was not why was in our hospital at that time.     
                               Thinkiing of you,            Cheryl R                                 
                     
               
Title: Re: Donnalynn's Husband - Please Pray
Post by: free2be on September 06, 2010, 08:33:38 am
Donnalynn,

I wrote you on here last night, but it isn't here. Must not have hit Send or some silly thing! I'll try to recap:

I'm glad you are getting support from Jim's team and getting "some" rest. I suspect you need more, but understandable that it is difficult. We are doing a lot of praying down here in the mountains of north GA for Jim and for you. I'm glad you're considering coming to the states. Your situation there sounds impossible and frustrating and exhausting just to deal with; so, I hope that works out for you.

I'll be intersted to know the name of the doctor to whom you refer. We need to find a referral for little Wylie. Someone who handles worst case situations. They aren't offering much hope here.

You take care of yourself and hang onto Jim knowing there are lots of loving (though somewhat unknown) arms holding on with you.

Connie
Title: Re: Donnalynn's Husband - Please Pray
Post by: tenai98 on September 06, 2010, 05:04:06 pm
Just came across this thread..oh Donnalynn my heart goes out to you and Jim...You will both be in my prayers..Our Canadian health systme sure does stink...
JO
Title: Re: Donnalynn's Husband - Please Pray
Post by: pjb on September 06, 2010, 05:38:19 pm
Thanks for the update, Donnalynn!  We are sending you continued strength, hope, and love!!

As for major cancer centers, Priscilla is right.  MD Anderson in Houston is reknowned.  So is Sloan Kettering in NY and Mayo in Rochester, MN.  You can't go wrong with any of those.

Hugs.  --Carol Ann

I just wanted to mention about Sloan Kettering in NY if it is cancer that Sloan is good if it is fairly new or a different form but once it has gone too far that they are not as aggressive in their treatment... I heard this from too many people so I opt to believe it I just wanted to mention it because if it needs aggressive treatment just wanted you to research it more ?

Pat
Title: Re: Donnalynn's Husband - Please Pray
Post by: Anomar11 on September 06, 2010, 08:36:32 pm
Donnalynn,

Praying for complete healing for Jim, strength for all of you, and that you be shown the right direction to go.

Mona
Title: Re: Donnalynn's Husband - Please Pray
Post by: saralynn143 on September 07, 2010, 09:45:07 am
Good morning, Donnalynn. I see that Jim has a cardio appointment today and some other appointments finally underway this week. I will be praying for good treatment plans as a result of these appointments.

God be with you both.

Sara
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on September 07, 2010, 11:35:24 am
continued thoughts and prayers coming your way ...rock in hand
Title: Re: Donnalynn's Husband - Please Pray
Post by: iluuvpups on September 07, 2010, 11:52:51 am
Good luck today, Donnalynn!  Keep on hanging in there.
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jackie on September 07, 2010, 01:01:16 pm
Donnalynn,

Found this in the "Believe" inspirational messages, "Open your arms as wide as you can to receive all the miracles with your name on them".
Find the strength to do that! Praying for you all,
Jackie
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on September 07, 2010, 01:14:54 pm
Donnalynn,
Praying for you as your day continues, for strength ( you AND Jim and Vanessa), perseverance, and healing powers. All of us praying for you three.

Hope Jim got his Oxygen. He will feel sooo much better if he can get his sats up into the 90's when he is sleeping! He won't be soooo fatigued.

Prayers,
Maureen
Title: Re: Donnalynn's Husband - Please Pray
Post by: yardtick on September 07, 2010, 01:58:21 pm
Just checking in, thinking of you, Jim and your family.


Anne Marie :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-*
Title: Re: Donnalynn's Husband - Please Pray
Post by: Captain Deb on September 07, 2010, 05:28:31 pm
Just checking in, too--I hope you can get to Houston, good docs and quite a few forumeers for moral support.  I got a Canadian Mother Bear hug from you so I'm sending you a Southern Appalachian Black Bear hug right back atcha.  Actually 3 of 'em, for you, Jim and Vanessa!

xoxoxoxox :-* :-* :-* :-* :-* :-* :-* :-* :-* :-* :-*

Capt Deb
Title: Re: Donnalynn's Husband - Please Pray
Post by: Lizard on September 07, 2010, 08:37:42 pm
Donnalynn,
Just checking in to see how the appointment went today.  Sending some more love and hugs.  We'll keep the prayers coming, hope Jim got the oxygen he badly needs.  Thankfully you are able to come to the states for any treatment Jim may need, my heart goes out to you both.
XOXOXOXO
Liz
Title: Re: Donnalynn's Husband - Please Pray
Post by: Kaybo on September 07, 2010, 08:39:46 pm
Wondering what you found out today...tomorrow will be super long for me and then I fly out Thursday to pack up all of our stuff in our other house (that hasn't sold yet - everyone please pray!) but I WILL be checking in!

Love & Hugs and ready to whatever I can if you get to Houston...I'll be ready for houseguests in about a week or sooner - it just won't be luxuriously decorated!

K   :-* :-* :-* :-* :-* :-* :-*
Title: Re: Donnalynn's Husband - Please Pray
Post by: saralynn143 on September 08, 2010, 01:19:33 pm
Thanks, Donnalynn. I'm so glad that a treatment plan is underway, and that you are comfortable and at peace with it.

Take care of yourself as well as Jim, and we'll keep praying for all of you.

Sara
Title: Re: Donnalynn's Husband - Please Pray
Post by: Kaybo on September 08, 2010, 01:22:31 pm
Glad that you got some "good' news, a PLAN and some rest!!

K   :-*
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on September 08, 2010, 01:33:38 pm
Glad things are moving forward for Jim ... the waiting for a plan and for treatment to be in place is hard and stressful ...

get some rest and know we are all keeping you in our thoughts
Title: Re: Donnalynn's Husband - Please Pray
Post by: CHD63 on September 08, 2010, 02:15:45 pm
Donnalynn .....

Just knowing you have some direction now has to be a tremendous relief.  The unknown and the perceived uncaring by medical personnel are always the worst part of any health emergency.

Now for all of you to get some rest and trust that all will be well.

Much love and prayers continue.

Clarice
Title: Re: Donnalynn's Husband - Please Pray
Post by: iluuvpups on September 08, 2010, 02:20:51 pm
Thanks for the update, Donnalynn!  Continuing to send positive energy and love your way!  --Carol Ann
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jim Scott on September 08, 2010, 03:55:09 pm
Donnalynn ~

Great news!  I'm so pleased to learn that things are progressing in the right direction with your Jim.  I know prayers are being answered in this situation.  Enjoy your 'chill day'!  :)

Jim
Title: Re: Donnalynn's Husband - Please Pray
Post by: msmaggie on September 08, 2010, 04:20:07 pm
You all (as in y'all ) deserve a super duper chill day!  We are so pleased that things are going well and that there is a plan in place.  The other bonus is that you like the dr.  Give your Jim and Vanessa hugs from us and keep those arms open wide!!

Priscilla
Title: Re: Donnalynn's Husband - Please Pray
Post by: yardtick on September 08, 2010, 05:50:05 pm
"Chill Day", love it!!  Enjoy  :-* :-* :-* :-* :-* :-* :-*

Anne Marie


PS When you have unwound from your "Chill Day" let us know how you and Jim are.
Title: Re: Donnalynn's Husband - Please Pray
Post by: ombrerose4 on September 08, 2010, 05:56:02 pm
As I celebrate Rosh Hashana, the Jewish new year, I keep you, Jim and Vanessa in my thoughts. I pray that tonight (jewish holidays begin at sundown the evening before) will be the start of a new, healthy year for all of you. Stay strong!
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on September 08, 2010, 06:22:41 pm
Donnalynn,
I'm so glad that a plan is in place, thank you for sharing all the details. I know you must be exhausted! But you sound more optimistic-that is refreshing. Hope you were able to enjoy some cool weather and chill.
Continued prayers going out everyday. Let's pray for a restful night sleep for all of you  :)
Maureen
And he got is o2, hopefully he can have it on when he sleeps...ZZZZzzzzzzz.
Maureen
Title: Re: Donnalynn's Husband - Please Pray
Post by: lori67 on September 08, 2010, 07:56:21 pm
Donnalynn,

Sorry to chime in so late here - I've been out of town.  However, a little birdie told me you were in need of some extra prayers a few days before I left town, so although I didn't know why you needed extra prayers, you got 'em anyway!   ;)

First of all, I hope the doctor can get to the bottom of this and get things back in proper working order for poor Jim. I'm sure he's sick of being sick!   And second of all, I'm just so amazed at how any hospital can turn away a patient in his condition!  That is unbelievable that they can do that!  I get the full bed thing, but I think I would have people start sleeping on the desk in the nurses station before I'd send them home with a blood clot!  I'd say to come here, but we don't have any decent hospitals in Virginia Beach either.  You need to go to the big cities - all the ones mentioned earlier are good ones.

As far as the filter Moe mentioned, the docs used them all the time when I worked in the hospital - they used Greenfield filters, which may be different than what Moe was talking about, but I doubt it.  They always seemed to have good luck with them.  It did require lifelong anticoagulants, but at a much lower dose than you'd get for the acute stages.

Keep taking those nice firemen up on their offers of help and stay well rested.  Keep us posted and give me a call anytime.

Hugs to the family!
Lori
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jackie on September 08, 2010, 08:18:51 pm
Dear Donnalynn,

Glad to know you are getting some action in regards to Jim's care. I feel you have been given HOPE. Just remember Hope sees the invisible, feels the intangible
and achieves the impossible. Continued prayers coming your way, for your renewed spirit. Love to Jim, Van and you dear one,
Jackie
Title: Re: Donnalynn's Husband - Please Pray
Post by: dalern on September 08, 2010, 08:47:32 pm
Dear Donnalynn,
It's so much more helpful when a plan of care is underway.  I am so glad to hear that and will continue to send prayers and good thoughts your way.  I know this has been a most stressful and scary time for all of you.
Wishing you all the best,
Dale
Title: Re: Donnalynn's Husband - Please Pray
Post by: suboo73 on September 09, 2010, 04:22:04 am
Hi Donnalynn,

Am coming to this thread very very late...
SO SORRY to hear that Jim has been so sick.

I am sending more prayers to you and your family.
Stay strong and let us know how you are doing.

Sincerely,
Sue
Title: Re: Donnalynn's Husband - Please Pray
Post by: Tisha on September 09, 2010, 06:46:47 am
I'm so sorry to hear this DonnaLynn.  You have been there thru thick and thin for so many of us that past few years.  Hope our prayers help Jim.  Big hugs...Tisha
Title: Re: Donnalynn's Husband - Please Pray
Post by: saralynn143 on September 09, 2010, 08:04:05 pm
Hi Donnalynn, looking forward to hearing about today's ultrasound and tomorrow's hematology appointment.

My God continue to hold Jim in his healing hand and give you all strength and peace.

Love you,
Sara
Title: Re: Donnalynn's Husband - Please Pray
Post by: Kaybo on September 10, 2010, 06:21:59 am
In Amarillo packing up but still praying & following updates. Can't wait to talk to you soon...oh, & small good news for the day...I made sure my new phone service had FREE LD to CANADA! Yipee!

Love to all,
K
Title: Re: Donnalynn's Husband - Please Pray
Post by: pjb on September 10, 2010, 11:50:05 am
My prayers are with you and your husband and hoping this doctor will do everything possible....

Best Wishes,

Pat
Title: Re: Donnalynn's Husband - Please Pray
Post by: wendysig on September 11, 2010, 01:02:07 pm
Donnalynn,

I haven't been around for a while and I'm sorry I am coming to this thread so late and am sending my best wishes and prayers that Jim will be alright.  Please keep us posted.

Best wishes,
Wendy
Title: Re: Donnalynn's Husband - Please Pray
Post by: saralynn143 on September 11, 2010, 01:04:17 pm
Hi Donnalynn, my prayer for this weekend is that those pesky clots are quietly dissolving as you and Jim relax and enjoy each other's company.

Sending love from Missouri,
Sara
Title: Re: Donnalynn's Husband - Please Pray
Post by: ksiwek on September 11, 2010, 10:41:50 pm
Still praying for you, Jim and Vanessa constantly...I believe in miracles!  XOXO  Kris
Title: Re: Donnalynn's Husband - Please Pray
Post by: Cheryl R on September 12, 2010, 06:17:34 am
Donnalynn, ramble all you want here because right now you need a place and way to help you cope with what your family is going thru.          It is horrible to hear what the dr has put you thru and to know some is worse due to his poor care.   It just makes me sick to know you kept asking about the heparin dose and was told you were wrong.          That is something pretty basic and he should have known!                 This has to be so hard to know that what can happen is  not known!        You have been in my thoughts and prayers and hope your guardian angel is working overtime to keep Jim safe.                        Cheryl R
Title: Re: Donnalynn's Husband - Please Pray
Post by: CHD63 on September 12, 2010, 06:44:47 am
Oh, Donnalynn ..... my heart aches for what you are having to go through ..... and then to find out the medical "professionals" have botched his treatment is beyond belief.

Many many thoughts and prayers and much love coming your way.

Clarice
Title: Re: Donnalynn's Husband - Please Pray
Post by: iluuvpups on September 12, 2010, 07:01:07 am
Wow.  I can't believe all you're going through Donnalynn.  Jim sounds like a wonderful man and you're lucky to have each other.  I hope he makes it through this!  Much love and hugs.  --Carol Ann
Title: Re: Donnalynn's Husband - Please Pray
Post by: leapyrtwins on September 12, 2010, 07:37:16 am
Donnalynn, I believe in miracles and the power of prayer, too.

Continuing to believe - and to pray - for both you and Jim.

Hang in there  :-*

Jan
Title: Re: Donnalynn's Husband - Please Pray
Post by: sues1953 on September 12, 2010, 08:42:29 am
Dear Donnalynn,

I am late in reading about Jim and I am so sorry about what is going on.  You were such a support to me when I needed it and I want you to know that I am praying for you and Jim.  This is a nightmare.  God bless you.

Sue in Michigan
Title: Re: Donnalynn's Husband - Please Pray
Post by: Kaybo on September 12, 2010, 08:54:15 am
Donnalynn-
My heart, too, is breaking over all the you are having to endure. It is certainly more than enough! However, look at all you have overcome & all that Jim has overcome also. I think he must be like me - if you tell me I can't do something, I'm going work even harder to prove you wrong...even if it is just the will to make it thru a week! Thank you for taking the time & energy to keep us so well uPdated - we really do care. I would hate that we might have to meet under these circumstances, but know that if it comes to it, we would welcome you with open arms to Houston & take great care of you!

Try to rest...
Love you,
K
Title: Re: Donnalynn's Husband - Please Pray
Post by: ombrerose4 on September 12, 2010, 09:43:26 am
Donnalynn,

You truly are an amazing woman. Taking care of Jim, Vanessa and yourself, reaching out to all of us in our times of need, keeping us updated on Jim's progress- this is why there is such an outpouring of love and support for you and your family. Our prayers continue! :)
Title: Re: Donnalynn's Husband - Please Pray
Post by: free2be on September 12, 2010, 10:10:50 am
Donnalynn,

My heart goes out to you and Jim. You are both in my prayers. I can't believe the doctor messed this up even under your protests. That is so....I don't know the word. If the medicine made the leg clot multiple in the lungs would that not mean all the clots we because of the medicine mess up and that it probably isn't cancer? Maybe I'm not following it all, but just wondered. No reply needed, obviously. I just hope the new doc can get it under control and he will get better. Sounds like he is a tough one, as are you! So, with his spirit and all the prayers, he has to get better! Praying and thinking of you both.
Connie
Title: Re: Donnalynn's Husband - Please Pray
Post by: msmaggie on September 12, 2010, 11:11:38 am
Donnalynn,
We are standing firm in our offer to help here in Houston. In tne meantime, we are holding you and your family close in prayer as you move through this medical nightmare.  You are doing a remarkable job of handling all of this, and I pray that God will continue to strengthen and uphold you as only He can!   
Priscilla
Title: Re: Donnalynn's Husband - Please Pray
Post by: MLB57 on September 12, 2010, 03:41:59 pm
Hi Donnalynn,

Haven't been here for a few days--I am glad to hear your hubby is still hanging in there and that's certainly a good thing. It sounds like he will have a long road ahead of him but we can only keep positive and hope for the best.

You and hubby are in my thoughts..

Best always,  Mary (Grammie "Mimi")
Title: Re: Donnalynn's Husband - Please Pray
Post by: jaylogs on September 12, 2010, 05:33:38 pm
Oh Donnalynn, I too am just now catching up on all this! I am just in utter disbelief at how badly the initial treatments went!  My thoughts and prayers are with you!
Jay
Title: Re: Donnalynn's Husband - Please Pray
Post by: Kathy M on September 12, 2010, 06:38:45 pm
I am so very concerned for you, your wonderful husband, and your daughter.  I feel like I've known you all for such a long time...that's what happens when you touch people through caring hearts, no matter the distance.  Prayers for you all.  Thank you so much for updating us.

Much love,

Kathy
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on September 12, 2010, 10:19:36 pm
Donnalynn,
What to say? Prayers continue, I'm sooo sorry to hear about this. Makes me feel ill, I can only imagine what you are going through.

You are so strong, and you and JIM WILL get through this. Thank for the update. He sounds wonderful, just like you :-*
Maureen
Title: Re: Donnalynn's Husband - Please Pray
Post by: saralynn143 on September 13, 2010, 01:09:00 pm
Donnalynn, how are you and Jim this morning? I hope that you were both able to rest up this weekend and feel ready to proceed with Jim's treatment test and additional testing. I'm so sorry about the circumstances that led Jim to this point, and I'll keep praying for his recovery.

Sending love,
Sara
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on September 14, 2010, 09:07:15 pm
Continued prayers winging their way north
Title: Re: Donnalynn's Husband - Please Pray
Post by: free2be on September 16, 2010, 06:35:27 pm
Donnalynn,

We are all still praying for Jim and you daily. Wondering how it's going though, it's been a while...relatively.

Connie
Title: Re: Donnalynn's Husband - Please Pray
Post by: saralynn143 on September 16, 2010, 08:11:59 pm
Donnalynn, I am so sorry about the difficulty you are having getting appointments for Jim. I pray that there will be a miracle and Jim will get an earlier appointment.

Bless the Lord, O my soul, and do not forget all his benefits—who forgives all your sins and heals all your diseases, who redeems your life from the pit and crowns you with love and compassion, who satisfies your desires with good things so that your youth is renewed like the eagle's. (Psalm 103:2-5)

Keeping you all in my thoughts and prayers,
Sara
Title: Re: Donnalynn's Husband - Please Pray
Post by: Larry on September 16, 2010, 08:18:38 pm
Donnalynn

Sorry but i have been absent from the forum for a while.

My heart and prayers go to you, Jim and your family.

I'll send ya a PM


hugs laz
Title: Re: Donnalynn's Husband - Please Pray
Post by: CHD63 on September 16, 2010, 08:27:24 pm
Oh Donnalynn .....

How I wish a hug and a kiss would make it all better ..... like when we were little children.  All I can really say is take deep breaths and try to refocus on the positives of how much Jim loves you and Vanessa and he is going to fight this thing with all he has.

You had previously mentioned trying to get Jim to some place in the States for treatment.  Is he just too sick and/or fragile to risk the travel?  I'm sure the financial aspect of it must be huge.  I do not know how the Canadian insurance system works but hopefully you can get some coverage going out of the system.

Many, many, many thoughts, love, and prayers coming!

Clarice
Title: Re: Donnalynn's Husband - Please Pray
Post by: jerseygirl on September 16, 2010, 08:41:09 pm
Donnalynn,

I was crying when reading your posts. I wish I could alleviate your suffering! Hang in there... I hope our support gives you strength to go on.

             Eve
Title: Re: Donnalynn's Husband - Please Pray
Post by: Kaybo on September 16, 2010, 09:12:34 pm
Oh Donnalynn~
I just don't know what to say...know that you can vent all you want to us...I will be praying...I wish I was one of those people that had all those calming and wonderful words to make you feel better, but I just don't!  God knows what you are feeling, let Him carry you along...

Peace in the eye of the storm,
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on September 16, 2010, 09:52:37 pm
Donnalynn,
I hope and pray tomorrow is a better day. Vent, scream all you want-we are here for you, and praying non stop :-* :-* :-*
Maureen
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jill Marie on September 16, 2010, 10:51:20 pm
Donnalynn,

I suggest, NO make that, I INSIST that you go to the office tomorrow instead of calling.  If you have already called by the time you have read this and they have moved Jim's petscan up to next week or at the very latest the last week of September then disregard the following:  Now that you have cried in the produce section and have vented here it's time to take all that anger over what has been done to Jim with the lack of proper health care and all the strength you have in you because of how much you love him and head to the office that should be helping to find out what the doctors need to do next for him.

Years ago my husband hurt his back at work, I wasn't working because my boys weren't in school yet, they denied my husband L & I Insurance income because they said he didn't get hurt at work.  We had no income, my husband couldn't even get out of bed.  I took my 2 boys to the welfare office to ask for help tell the doctor and his company could settle things.  They said they could get me an appointment in 1 month, I told them it would be to late, they said I could wait there and if someone had a free minute they would help me.  By the end of the day no one had helped me so I stood on a chair and told them I wouldn't leave tell someone talked to me.  I spoke with a nice young man, got a months worth of food stamps and left.  Two weeks later they gave my husband his L & I payments. 

You need to go to that office with any documents you have to show how urgent this is and insist that they do the petscan next week and let them know that you aren't leaving tell you get that appointment.  It's a lot easier to tell someone NO over the phone then in person.  You have the strength to do this because of how much you love Jim & you know that even though all of us aren't physically there with you we are behind you all the way.  You can do it Donnalynn!  Will be thinking about you tomorrow, Jill
Title: Re: Donnalynn's Husband - Please Pray
Post by: ppearl214 on September 17, 2010, 04:07:49 am
D

You bring J and you and V to Boston, I make the call and get you a PET next week. Nuff said.  :-*  :-*  :-*

Oy, hunney.... I don't know what to say.  As you know, we reflect on the next 24 hours and in this time of reflection, know that it is ok to vent, to know that you can rely on us to be here for you.  Know that we do all in our hearts and souls to send those vibes your way to help the cause. For ALL you do for SO many, what we do seems miniscule in comparison..... but as you know, we don't "compare". We do what we can to help the cause... and know that the bloke and I are sending our wishes your way, in the hopes that the goodness you all soooooo much deserve comes quickly.

You know what I'm trying to say. Hang in there.
xoxooxoxoxoxoxox to you, my dear J and my very very dear V

P
Title: Re: Donnalynn's Husband - Please Pray
Post by: leapyrtwins on September 17, 2010, 05:24:36 am
Donnalynn -

I'm with Jill Marie.  Don't take no for an answer and dealing with people face to face does make a difference.  In addition, no one will want you "camped out" in their offices making "noise" and disturbing the other people there.  It will flat out look bad for them.  Do what you have to do to get the results you need.

Good luck and prayers,

Jan

PS - I knew Jill Marie was tough from the exercise posts, but I had no idea how tough she really is.  You go, Jill Marie  ;D
Title: Re: Donnalynn's Husband - Please Pray
Post by: Cheryl R on September 17, 2010, 06:30:36 am
Donnalynn, I can't even imagine how one with such serious issues can be put off like Jim has been.     Mayo Clinic in Rochester Minnesota would be a good place to go also.      If my Univ of Iowa can't take care of someone around here, then Mayo is where people go.    People from all over the world go there.      I have read in the past how sometimes sick people have been flown to a facility free with help from certain groups who do that.       Anyone here know of any who go to Canada?        I wish I knew more that would work for you.                There have been a lot of tears in the US for you and a hug to you all.               Cheryl R
Title: Re: Donnalynn's Husband - Please Pray
Post by: msmaggie on September 17, 2010, 06:46:40 am
I agree!  Years ago my late FIL was in such pain and no one seemed to know why or what to do.  My MIL drove him to the Mayo Clinic in Rochester and they literally camped out there until he was seen. Didn't take long. The squeaky wheel DOES get the grease, if only to make it go away!  Jim deserves all that grease and more.

Priscilla
Title: Re: Donnalynn's Husband - Please Pray
Post by: Debbi on September 17, 2010, 08:09:03 am
Oh, Donnalynn!  I have been off the Forum for awhile and just now saw your post.  I am so, so sorry for all that you are going through.  I know that others who have experience dealing with the Canadian health care system can give you far better advice than I.  So, I will just say that you and your wonderful husband are in my thoughts and prayers. 

huge hugs,
Debbi
Title: Re: Donnalynn's Husband - Please Pray
Post by: cindyj on September 17, 2010, 12:14:39 pm
Still here for and with you...

Hugs, but wish we could do more,

cindy
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jim Scott on September 17, 2010, 12:31:12 pm
Donnalynn ~

Although, as much as I wish I could, I can't be in Alberta to assist you and I won't burden you with a lot of words because you and your Jim need more than that, now.  What I can do, and what I know many others are doing right this minute, is to pray for you and Jim and for this terrible situation to be resolved, quickly.  That can do far more than any words of comfort I might be able to come up with.  You are not alone, Donnalynn.  This will pass. 

Jim
Title: Re: Donnalynn's Husband - Please Pray
Post by: free2be on September 17, 2010, 01:02:44 pm
Donnalynn,

I cannot imagine the frustration and fear that you must be experiencing. If you can, get him to the states. Any of the centers mentioned should be able to help him and post haste. You could probably get some financial assistance through foundations or just fund raisers. When you need help, it's amazing what people will do, even these days. Several fund raisers have been done here in our little town to help Wylie's family with his medical costs, etc. People will help...I assure you. Just do what you need to for Jim. This waiting for service there is ridiculous.

Still praying and thinking of you both,
Connie
Title: Re: Donnalynn's Husband - Please Pray
Post by: dalern on September 17, 2010, 02:56:32 pm
Donnalynn,
I truly ache for you.  What a horrible time you are going through, and of course, Jim as well.  I was talking to a Canadian doctor just last week.  She told me (no surprise) that the biggest problem with Canadian Health Care is the waiting.  She said the care is excellent and fair EXCEPT for that.  Well, that is a biggy. I asked her what people do that need immediate attention due to situations just like yours.  She said it is possible to get private healthcare in Canada, but of course it is costly.  What I am wondering is if it would be less expensive for you to go a private route at this time instead of coming to the States which will be doubly expensive because of your housing.  Are there good private doctors that you could go to as a last resort if this does not get resolved right away?
~Dale
Title: Re: Donnalynn's Husband - Please Pray
Post by: msmaggie on September 17, 2010, 04:01:40 pm
Housing would NOT be a problem in Houston!!!  It would be our privilege to take care of Donnalynn and her family.   ;D

Priscilla
Title: Re: Donnalynn's Husband - Please Pray
Post by: Kaybo on September 17, 2010, 04:09:35 pm
DEFINITELY not a problem...in fact, if they came here, it might prolong Ms Priscilla & I getting into trouble!! ::)

K :D
Title: Re: Donnalynn's Husband - Please Pray
Post by: msmaggie on September 17, 2010, 04:24:41 pm
And trouble is definitely brewing!  ;) ;)
Title: Re: Donnalynn's Husband - Please Pray
Post by: CHD63 on September 17, 2010, 08:27:03 pm
See ..... prayers do work!!!!!  Prayers are continuing for Jim's name to quickly come to the top of the waiting list and he is in for the PET scan.  And, prayers for peace for you and Vanessa to know that God works in His own time and in His own way.

Love and many thoughts.

Clarice
Title: Re: Donnalynn's Husband - Please Pray
Post by: leapyrtwins on September 17, 2010, 08:29:52 pm
Donnalynn, I'm always proud of you.

Glad today was a better day.

Hang in there,

Jan
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jim Scott on September 18, 2010, 02:18:28 pm
Donnalynn ~

I'm delighted to learn that prayers are being answered; progress is being made in obtaining a timely date for your husband's much-needed PET scan and that some of our AN friends are reaching out to you by phone to help you get through this struggle.  This is all marvelous news and I'm so pleased to learn about it and know that, even as you and your Jim strive to see this medical crisis through safely, others are praying for and communicating with you, offering their consolation and support as well as a needed distraction from your burden of care at this time in your life.  Allow me to, again, offer you my support and, most important, my prayers for a safe, rapid conclusion to this medical challenge you're facing with your Jim.  You're a valued, integral part of our AN family, Donnalynn.  We're proud to support you in whatever way we can.  May God bless you and your husband.

Jim 
Title: Re: Donnalynn's Husband - Please Pray
Post by: 4cm in Pacific Northwest on September 18, 2010, 09:10:02 pm
Donna-lynn

Canadian sister hugs again being sent to you from Oregon. You and Jim remain in our prayers.

DHM
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jill Marie on September 19, 2010, 12:38:14 pm
Donnalynn,

Going on vacation, no Internet access.  Glad to hear Jim's petscan is on the waiting list, still recommend going to the office if you can.  Who could resist that sweet face!  Yes, I expect to hear that his petscan has been done by the time I get back.  Hope all goes well, Jill
Title: Re: Donnalynn's Husband - Please Pray
Post by: Adrienne on September 19, 2010, 04:22:49 pm
Donnalynn,

I've been away from the board for AGES and I'm so sorry to hear about these latest struggles with Jim.  How FRUSTRATING and scary!  I really hope things turn around quickly for him and he's well on his way to a full recovery once and for all.  I can imagine how exhausting and scary this entire journey has been-and when you factor in all that you both have already been through-it is just so much more exhausting.

Huge (hugs)

Adrienne
Title: Re: Donnalynn's Husband - Please Pray
Post by: Larry on September 19, 2010, 11:48:39 pm
Good positive vibes - geesh they mean a lot.


Laz
Title: Re: Donnalynn's Husband - Please Pray
Post by: SML on September 20, 2010, 09:05:54 am
Donnalynn,

Rich and I continue to keep you, Jim and Vanessa in our thoughts and prayers …

We’re sending you a BIG HUG from Massachusetts.

Stay strong!

Scarlett & Rich
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on September 20, 2010, 04:54:41 pm
still in my thoughts ...
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jim Scott on September 21, 2010, 12:33:12 pm
Donnalynn ~

Thank you for taking the time to post the positive update.  Many of our members will appreciate learning that things are moving in the right direction for Jim, even with intermittent obstacles.  I won't burden you with a long post but I will reaffirm my promise to keep you and your Jim in my prayers and of course, to hope for more good news, soon.

Jim
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on September 21, 2010, 12:55:05 pm
Thanks for the update, dear Donnalynn :-*
Keep the faith, keep the spirits up and accept when they are down.
You are doing a tremendous job with all this, and Jim is blessed to have you!
I'm glad Jim is feeling a wee bit better. Have you tried those "yummy" Ensure type drinks? or make a milk shake out of it for some calories for sweet Jim? Or use carnation instant breakfast?
Hang in there, one day at a time.
Maureen
Title: Re: Donnalynn's Husband - Please Pray
Post by: 4cm in Pacific Northwest on September 21, 2010, 02:04:41 pm
Some firemen have also offered to come and help, so that will be wonderful! I have a tree I need to take down before the heavy snow comes, as it is leaning on my fence!


Goodness DonnaLynn- jump on that too good to pass up offer!

Jim would never do the ensure thing...
However he does love Chocolate shakes...

Others are wise here… Know that Carnation Instant breakfast powder will give him the same nutritional value but what makes is better is you get to choose the milk and how much fat it does or does not have. I suggest making him a Chocolate milkshake in the blender… and just throw in a few scoops of the Carnation Instant Breakfast powder…

Hmm maybe you should have all those firefighters over and have a milk shake party. If it starts to snow you can serve it hot with -whipped cream on top… and sprinkles.

HUGS to you and JIM

DHM
Title: Re: Donnalynn's Husband - Please Pray
Post by: CHD63 on September 21, 2010, 02:45:21 pm
Donnalynn .....

So glad to read the more positive update ......

What about eggnog?  Would he drink that?

Many thoughts, much love, and continuing prayers!

Clarice
Title: Re: Donnalynn's Husband - Please Pray
Post by: Cheryl R on September 21, 2010, 02:49:05 pm
The strawberry instant breakfast has no after taste which I think the chocolate has a little bit of but not too bad.   It can sometimes be harder to find at a store.         Does he like pudding?      That was my help after my surgeries when just not hungry.
                                                     Cheryl R
Title: Re: Donnalynn's Husband - Please Pray
Post by: ombrerose4 on September 21, 2010, 04:02:31 pm
Donnalynn,

Glad to hear Jim is making progress, and hope this ordeal will soon be over for all of you. It's great that you have a wonderful support system with so many people willing and able to help you guys out. I was thinking that since Jim's appetite is not good, maybe you can try giving him some nutritional supplements, like they give to patients in the hospital. That might help him maintain his weight and keep him strong. I am continuiing to send my prayers to you, Jim and Vanessa.

Lauren
Title: Re: Donnalynn's Husband - Please Pray
Post by: Keri on September 24, 2010, 01:33:21 pm
I've been away from the forum too, am trying to catch up on what's going on.
I'm so sad about this... I'm not sure I know the latest, but I will be praying for Jim too.

Thank you for keeping everyone updated.

Keri
Title: Re: Donnalynn's Husband - Please Pray
Post by: Denise S on September 24, 2010, 06:43:32 pm
Donnalynn,
I too am one who had not been on the site in awhile.   It saddens me so much when I read about your husband!!   I will keep your family in my prayers and hope you are doing o.k.

Cyber Hugs.....

Denise
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on September 24, 2010, 07:49:41 pm
as always ... Jim and his whole family in my thoughts
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jackie on September 25, 2010, 12:21:23 am
Dearest Donnalynn,

I hope that those forumites that are nurses or doctors can help guide you in a direction that will help Jim.
I can only be supportive and caring and praying for help, at this point! Please if anyone has any answers , let's hear from you!
Jackie
Title: Re: Donnalynn's Husband - Please Pray
Post by: saralynn143 on September 25, 2010, 05:39:54 am
These are the ideas that popped immediately into my mind. They may or may not be feasible or workable, but I'm sure others may chime in as well. First, do you know of anyone that would have influence on the medical community there? Is there a government Department of Health that you can appeal to?

Can you write a letter to the editor of your newspaper to focus attention on Jim's plight and get the attention and support of the public? Just the fact of Jim being a firefighter would rally people behind him, I would think.

Third, find the name of a particular doctor at either Mayo or the Houston facility that has been mentioned here and make direct contact with his or her office. You will probably have to start with a nurse. Is Jim capable of travel? I ask because Mayo would be closer, but you would have Kaybo, Maggie and others for support and lodging in Houston.

I will continue to pray for you, Jim and Vanessa, and will add prayers of greater wisdom and discerning for his doctors. Here is a Scripture verse that I hope will help you. When I called, you answered me; you made me bold and stouthearted. (Psalm 138:3)

Love, Sara
Title: Re: Donnalynn's Husband - Please Pray
Post by: Cheryl R on September 25, 2010, 07:47:32 am
Donnalynn, I think Mayos would be as good a choice as any other than the additional support of people you know in Houston.    I am not familiar with any drs there other than hearing of the AN ones.               I know the CEA test is used frequently but do not know if it would be one which an elevated level shows all types of cancer.         The PET scan might be what would be done first wherever you go as a way to have a better idea what is going on.        I have no idea of the very specialized tests now available.
Rochester has 2 hospitals they use for Mayo pts.                   I would ask if any of your fireman friends have heard or know how to contact a service which flies very sick people to where they need to go.                       I myself only know of googling Mayos and see what info you can find.          I have a dr appt Mon and can ask my dr too if he knows how to contact someone.   
       We arew thinking of you and hope for the best.                     Cheryl R
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jim Scott on September 25, 2010, 12:27:28 pm
Donnalynn ~

I'm terribly sorry to learn of these latest obstacles in your Jim's path to recovery and I certainly will continue praying for you, both.  This is definitely a stressful situation for you.  I can easily imagine how I would be reacting if my wife, the lovely and gracious Tina, my life's partner and soul-mate, were slowly deteriorating from relatively unknown causes while insensitive doctors equivocated. 

Unfortunately, outside of AN-related issues, I have next-to-no medical knowledge to share with you so I'll leave that to those who do.  Coming to the U.S. may be your best option, although I won't go so far as to advise that.  You'll do what seems best, I know. Meanwhile, try to continue to remain focused.  You and your Jim are in the thoughts, hearts and prayers of many.  This will be resolved.

Jim
Title: Re: Donnalynn's Husband - Please Pray
Post by: Captain Deb on September 25, 2010, 06:51:56 pm
Just letting you know, dear ones, that I am thinking of you and praying that you get some answers soon.  I think the idea of contacting the local press and trying for some local community support for one who has given so much back to his community is a great idea.  I so want you to get some answers so at least you are know what you are dealing with. 

Big Hugs and lots of love from me and Eric,
Capt Deb
Title: Re: Donnalynn's Husband - Please Pray
Post by: Keeping Up on September 25, 2010, 08:39:54 pm
I am reluctant to post because both you and I know our views differ significantly on the health care available in Canada. 

However, your posts are heart breaking.  I have faced a similar health crisis (yet, I acknowledge different) with my husband over the last two weeks - no need to list the details here but involved two four day hospital stays, inter-spaced with a very ill man sent home on homecare (antibiotic IVs, blood thinner shots, etc.), an allergic reaction, a subsequent collapse, and a 911 call.  I have never been so utterly scared in my entire life.  All this being witnessed by my four very young children only made this health crisis much more traumatic than anything I have EVER experienced - and one I hope my children will never experience again.  Similar to your description, my husband's illness (an extensive and aggressive infection) took a 5km daily runner, fit, non-smoker, not a diabetic, not over-weigh, no risk factor whatsoever, energetic guy to someone who needs to lean on a shopping cart to make the rounds in the grocery store for a few basic items (his choice to go, he wanted to feel alive again), or simply exhausted by a very short walk to down the street.  He is only expecting to be back to 100% in 6+weeks.  He remains clear of IVs at home now, but continues to take exceptionally high doses of antibiotics.  Not quite sure how long it will take me to recover from watching my husband convulse on the floor as I desperately called 911.

My message, however, is different - the Canadian system got him well.  He was seen by so many specialists, and had so many specialized tests  in the last few days (3 ultrasounds to rule out leg clots, a CT scan to rule out lung clots with enhancements (and I thought of all of you here on the AN site!), liver function tests to rule out permanent liver damage, cardiac monitoring to rule out a heart condition). He has gotten everything (for free, as we both know).   

Like you, we are partially forced to rely only on the 'assigned' doctors.  I did contact a distant family member in the medical professions  in very significant roles (who did get involved, and did agree the treatment was more than adequate) and had back-up plans for other medical contacts if we felt we didn't have proper progress.  However, my husband and I felt he was receiving great care so didn't pursue a third opinion.

So, my point of all this.  I strongly believe the Canadian system works.

1) Do you have a private medical clinic in Edmonton.  I am a pseudo-member of Medcan, a private clinic in ONtario. (look it up on Wikipedia - I read the description and it is accurate).    My firm offers as a benefit an annual health assessment - I always follow-through.  I don't have year round coverage as I would have to pay for that.   [Medcan diagnosed (or at least triggered the referral to the ENT) my AN due to the unilateral hearing difference.]   While these are all Ontario (OHIP) doctors, they are paid to spend time with you.  I have learned more from my Medcan appointments than I have from most of my GP consults as they are paid to talk to you, paid to answer your questions.  Does Edmonton have a simliar program?  Would it be helfpul to gather ALL Jim's medical records and get an appointment.  Great thing about private health care, no QUEUES!!!!   HOwever you pay for it dearly.  I know I could have gotten my husband's records and gotten a Medcan appointment and had someone walk him (me!) through every single test result so we knew the reasoning (or the lack thereof) for the explanations provided.  I know we would have also gotten the referrals (and queue bumps if, and only if, required to see specialists).   Calgary (3 hours south, same province, for the rest of the board) has these type of services - the prices are very high compared to the Ontario clinic.  My parents have this type of medical coverage/care and provide great support tothem.  (My mother needs a lot of hand holding that public care cannot simply provide.)

2) Can you get a referral to a specialist in Calgary or even a consult into the Tom Baker Cancer Centre in Calgary.  As I have mentioned here before, both of my parents are cancer survivors (breast cancer, double mastectomy and prostate cancer, Gleason 9 ... supposedly very rare and very poor 5 year prognosis) and both treated by Tom Baker.  Both of my parents are exceptionally happy of the care they received at that hospita (and my father is now 6 years post surgery and is doing AWESOME!)l.  They could have easily gone to the US - but got the care they needed in Alberta.

Even while in the depths of this crisis, I found humour and thoughgt of your Jim (my husband is a Jim too).  AFter the 911 call, the fire trucks arrived and ambulance arrived, I met a somewhat older yet very cool guy  who was obviously the captain/team lead of the fire squad.  He asked me so many questions while the paramedics attending my husband (whose condition was improving at this point) about my husband's health (I messed up his birthday, and aged him 3 years!).  He was a big burly guy with a very kind voice - and I thought of your Jim, who must have walked into many homes of 911 calls to distraught families, and provide comfort by just talking (and even cracking a few jokes) through the ordeal.

Bless you and Jim as you walk down this path.  Push for the answers you need. 

Ann
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on September 26, 2010, 08:15:52 am
Ann , I think sometimes medical treatment boils down to being in the right place at the right time ...and your husband was there at that place ...that may seem naive and over simplified but I think it holds true for many circumstances

my twins born 30 years ago would probably not be here but for the lucky intervention of a doctor friend of my dad's who came in to see the woman in the bed next to mine ... she happened to be my best friend and maid of honor ...he had performed a c-section on her and was coming to see if she was ready to go home ... there I lay in bed after nearly a month of trying to stop labor after a car wreck and the hospital decided that I was at due date and that I not sure when I got pregnant  ::)... they were going by my size and not what I was telling them and were gonna just let me have the baby ... I told them I thought there was more than one baby because of so much movement but they could never find more than on heart beat ... so they moved me in with my friend because I was getting depressed and they thought laboring there with company would cheer me ... Dr Patrick asked why I was back in the room and not in labor area and I spilled who story to him ... he ordered an ultra sound (this in the days they were not at every hospital and had to come down from Nashville about 2 hours away...should have just xrayed me )

long story short ...ultra sound tech came down in an ambulance because it was faster than a van ... he barely looked inside when he said there are 2 babies and they better get me to Vanderbilt or Huntsville where they were equipped to handle multiples or lose them ... he had to rent a van to get machine back to Nashville because they put me in the ambulance he came in and 48 hours later I had two tiny 9 week early  preemies ... timing of Dr Patricks visit saved them ... 30 minutes earlier and I was still in labor room and he would have never seen me ...both had to have immediate intervention to keep them alive ...something the small town hosital was not equip to do ...
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on September 26, 2010, 08:23:35 am
As I walked the 5K heart walk yesterday and found myself walking alone , I looked to the ground since I can walk more stable looking down a few feet in front of me and let my mind wonder to people in need ... Jim , Captain Deb and my dad were at the top of my list and they were with me and help me keep going when at half mark I was thinking about taking the short cut and kept going the full walk  ...

T&Ps still headed north
Title: Re: Donnalynn's Husband - Please Pray
Post by: free2be on September 26, 2010, 11:02:40 pm
Donnalynn,

I can't believe you and Jim are going through all this. I'm in CA, going to Stanford tomorrow to see what's up with my AN. I took a quick look online. Here is contact information for Mayo in Minn and for MD Anderson. I don't know if that is where you would want to go, if you can get there, but maybe you can call and plead to talk to someone that could advise you a bit. The Med flight idea sounded good, let the community help you Donnalynn...there has to be someone with connections!

Blessings and prayers for your both,
Connie

If your primary problem is related to your respiratory system (lungs) and you wish to schedule an appointment in the Division of Pulmonary and Critical Care Medicine, you may make an appointment in several ways.
Phone:
Appointment Information Desk: 507-538-3270
TDD service for the hearing impaired: 507-281-9786
7 a.m. to 7 p.m. Central time Monday through Thursday
7 a.m. to 5 p.m. Friday

Mayo Clinic in Minnesota
507-284-8884
507-538-7802 (Fax)
Intl.mcr@mayo.edu
Office hours: 7:30 a.m. to 5 p.m. (Central time) Monday through Friday

Here is info for MD Anderson:
Pulmonary Clinic
Cardiopulmonary Center
Main Building, Floor 6
1515 Holcombe Boulevard
Houston, Texas 77030
Phone: 713-792-4015
Fax: 713-794-4711
http://www.mdanderson.org/education-and-research/departments-programs-and-labs/departments-and-divisions/pulmonary-medicine/contact-information/index.html
Title: Re: Donnalynn's Husband - Please Pray
Post by: Keri on September 27, 2010, 05:54:28 am
Donnalynn,
Thank you for the updates. I do hope they can get the dates of tests ad all moved up quickly or that you have wisdom to know if and when to pursue another course of action.

Ann - I do hope your husband makes a full recovery as well. I know it must have been so difficult to have your kids see the very scary crisis in action. I know when we had to call an ambulance for my daughter a few months ago what a scary time that was and my other daughter (who is autistic) was around and absorbed a lot of it and I didn't realize how it was affecting her until later. But anyway, I know it makes all the difference in the world when you have a supportive and helpful EMT guy or fire fighter, police, etc that helps you get through (we had that as well). And I think it was neat how you thought of Donnalynn's Jim in that situation.

But, returning to matters at hand - I pray Donnalynn that you have peace and comfort and strength as you deal with this and for quick, good results for Jim.

Keri
Title: Re: Donnalynn's Husband - Please Pray
Post by: ombrerose4 on September 27, 2010, 07:11:32 am
Donnalynn,

My heart goes out to you, I can't even imagine how hard it is having someone you love not being able to get the care he needs. You must try to remain strong and know that you are doing everything you can in an impossible situation with your healthcare system. My thoughts and prayers go out to you, Jim and Vanessa.
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jill Marie on September 27, 2010, 10:02:47 pm
Donnalynn,

I'm back from vacation and so sorry to hear that things aren't progressing like they should be.  The last thing I did before we locked the door and left on vacation was to post a quick note to you.  It seemed odd to be heading out for fun when you have been dealing with Jim's medical issues for so long and unfortunately it looks like it will take some time before you get some answers.  I'm sure you are like me and so many others, the not knowing what is going on is worse than finding out what is wrong and dealing with it.  I realize from your last post that there isn't much they can do when they only have 2 petscans available and so many people that have been waiting for answers.  I was just so hoping that if you kept bugging them about the petscan they would find a way to get it done sooner, then I would feel like I helped in some small way.  It's hard sitting here reading what's going and not being able to help.  
Will be here with moral support as long as you need it.
Jill
Title: Re: Donnalynn's Husband - Please Pray
Post by: Cheryl R on September 28, 2010, 06:35:57 am
Donnalynn,   I asked my dr about the Mayo Clinic and pts from Canada and he was not sure how that would work.      I am glad the phone nos were posted for you so can check into it if desired.         I hope things are going as good as they can be.
                                                             Cheryl R
Title: Re: Donnalynn's Husband - Please Pray
Post by: yardtick on September 28, 2010, 02:16:59 pm
Donnalynn,

I keep checking in, (even when I was in the Caribbean last week), just to see how Jim is doing.  Many prayers, and hugs to you and your family.

Anne Marie XO
Title: Re: Donnalynn's Husband - Please Pray
Post by: CHD63 on September 28, 2010, 04:50:46 pm
Donnalynn .....

So glad you are being persistent.  Sometimes that is the only way to move the medical community ..... unfortunately!

My husband has been on Coumadin (blood thinner) for a year.  He was told that he can eat anything as long as he does not suddenly eat a bunch of green foods all at once.  When it is in his regular diet, the Coumadin dosage is simply regulated to account for his usual amount of greens.  We both love spinach and spring greens so we just make sure to eat it regularly and his INR has been fine for a long time now.  (Initially it took frequent tests and dosage adjustment to figure it out.)

Many thoughts, love, and prayers continue ......

Clarice
Title: Re: Donnalynn's Husband - Please Pray
Post by: 4cm in Pacific Northwest on September 29, 2010, 10:18:26 am
Donna Lynn,

Yowzer wowzers!

Firstly you need to focus your energy on Jim and his needs. Secondly also taking care of YOU the caregiver.

It is time to talk to the fellow firefighters and other family members to fight this beauracracy- on yours and JIM’s behalf.

You have been a very polite and patient Canadian long enough here and it is time to play hardball  >:( - the way I see the Americans do down here. Get a team together there Donna Lynn: get them to turn their baseball caps, hand them each a stick of gum  ::)  ;)  and start focusing intently on this beauracratic baseball game  >:(. Trust me you have already got folks rooting for you, in the stands and sideline, on both sides of the line. :-*


Here is the Alberta contact for your ombudsman office and others who can advocate for you.
http://www.ombudsman.ab.ca/heatlh-act.php

Out-of-country health options details where they can advocate on your behalf
http://www.ombudsman.ab.ca/outofcountry.php

The Firefighters association will support one of their retiree’s -as their advocates also… and they may have a lot of clout if they can holler loud enough.  :-\
http://www.albertafirefighters.com/html/contact.php

Alberta Ministry of Health and Wellness
http://alberta.ca/home/Feedback.cfm?

Health Canada Contacts
http://www.hc-sc.gc.ca/contact/index-eng.php

Here is some news media contact (I suggest you skip the locals, at this late stage , and do national as the clock is ticking here.)

CBC local
http://www.cbc.ca/edmonton/contact/

CBC National
http://www.cbc.ca/thenational/about/contact/

CTV Local
http://edmonton.ctv.ca/contactUs/

CTV National
ctvnewschannel@ctv.ca

CBC radio
http://www.cbc.radio-canada.ca/about/contact.shtml

Edmonton Journal
http://www.edmontonjournal.com/about-edmonton-journal/contactus.html

Calgary Herald
http://www.calgaryherald.com/about-calgary-herald/contactus.html

Globe & Mail (National Newspaper)
http://v1.theglobeandmail.com/help/contact-paper/


Canadians will be appalled to learn that a retired firefighter is being treated in this manner- as I certainly am living down here in the USA. (And Jim’ illnesses can very well be related to past burning substances he was exposed to in his line of work while saving others and their possessions)… In fact I am appalled that ANY Canadian citizen and their caregiver are going through all this rigmarole at retirement age.

And if the Canadian media has you frustrated also ...then go to the USA media… that will GET THE BALL ROLLING in no time as their news spread like wildfire…. Eventually making its way up there also... landing on THE Minister of Health's desk with embarassment.

Darln’n Donna Lynn … it is time to tell your team to play hardball.


HUGS,

DHM


One day I will tell you about my fight to have an unsafe high school in Canada condemned and later bull dozed... I was getting sicker by the day with sick building syndrome- as were my students... but I actually did get results. I actually did this without media involvement, believe it or not, ... but I had to put together a team when I was too tired to fight on my own anymore. I stopped being a polite and quiet little Canadian woman and learned to play hardball VERY fast.
Title: Re: Donnalynn's Husband - Please Pray
Post by: saralynn143 on September 29, 2010, 10:40:54 am
That is an excellent list DHM. Thank you for assembling it. I know I feel relieved just reading it over, so I can't even imagine how helpful it will be to Donnalynn.

We love you, Donnalynn, keep letting us know how we can help.

Sara
Title: Re: Donnalynn's Husband - Please Pray
Post by: 4cm in Pacific Northwest on September 29, 2010, 11:36:33 am
Darlin DonnaLynn,

Try to get Iris Evan's to play on YOUR team... as she is THE elected advocate who is suppose to represent the PEOPLE (ie citizens)
http://www.assembly.ab.ca/net/index.aspx?p=mla_contact&rnumber=74

She may be able to go up-to-bat for you... maybe she also has pitching skills

... Polite Canadian women can actually get more done behind the scenes than many may think... but God help the opponent when they decide to go- to - bat for someone and start to play hard ball. ;) :D

Here is her "player's card"
http://en.wikipedia.org/wiki/Iris_Evans

... used to be a nurse?
 ... Worked for the Ministry of Health?

Know until this last hour I had no idea who was in office as I have become so out-of-the-loop after residing down here in the USA so long.

... Bingo maybe SHE is THE advocate I prayed for a few posts of mine -back. (Time will tell) Which one of your team players can approach her in such a way she will want to play on YOUR team?


Is one of the firefighters, by chance, into youth hockey?
http://www.edmontonjournal.com/news/Service+others+inspires+Iris+Evans/3115063/story.html
... they may be able to speak the same language being it looks that for part of her career she was once a stay-at-home hockey mom...

Look at all the links I have given you in the above two posts with your most trusted team players. Let them come up with a good strategy to WIN this game of bureaucratic baseball... so you and Jim can be there for each other. Let your friends, family and fellow firefighters carry the cross for you for a while... Discern when others can carry the cross for you...

My prayer is that you win this ... and that Jim benefits along with others who follow him who will not have to suffer like this.

I will keep your family in my thoughts, prayers ... and reflections. My wheels are still churning... I will think about this some more... and get back to you if I think of any new ideas.

PEACE

Hugs,
DHM




Title: Re: Donnalynn's Husband - Please Pray
Post by: Kaybo on September 29, 2010, 12:05:48 pm
What a great list DHM - thanks for doing that for DL...just as an aside...as far as I know, Jim is NOT retired - just unable to fulfill his duties right now because of his illness...correct me if I am wrong...

K   ;D
Title: Re: Donnalynn's Husband - Please Pray
Post by: msmaggie on September 29, 2010, 12:45:44 pm
Wow!  That is one terrific list, DHM!  Donnalynn, we continue to pray for all of your needs....and that just may include someone in your corner who can bring necessary attention to this situation.  Hang in there and tell your Jim that we are sending up clouds of prayers on his behalf!

Priscilla
Title: Re: Donnalynn's Husband - Please Pray
Post by: yardtick on September 29, 2010, 02:06:40 pm
DHM,

You go girl!!!!  Many hugs and kisses to you for putting so time and effort into Donnalynn's battle.

Donnalynn,

Many hugs and kisses to you and Jim.  I'm worried about you also Donnalynn, I hope you are getting some quality rest.



Anne Marie  :-* :-* :-* :-*
Title: Re: Donnalynn's Husband - Please Pray
Post by: 4cm in Pacific Northwest on September 29, 2010, 10:24:54 pm

 I have to giggle at some of this, actually our home has been giggling some all day about your suggestions here's why.... this is just toooooo funny....and so ironic!!!!!
Firstly Iris Evans ( who was Finance Minister untill the last Cabinet shuffle these past months) has been my daughters boss!!!!!! That's right Vanessa has been working as Iris's personal Assistant here at the Edmonton Legislature Assemblies!!!!!!  In fact Vanessa recently flew with Iris on the Gov. private jet along with the Premier and discussed our problem with him!!!! ....


 As well, Iris is a personal Friend....


 ...  In fact Vanessa is with Iris as I type this at a conference......and you can bet that this is a subject that Vanessa will be again talking about...


Vanessa is considering running against Iris in the up and coming election ( next year!) Sometimes she jokes about this idea, but lately she is talking more and more about this.....


OMG :o   That is TOO HILARIOUS!!!! :D :D :D :D I had no idea who Iris even was until I looked up who your MLA was, today, and I started brain storming. That is just too darn funny. :o  :D :D :D :D


Don't worry.... I'm not done fighting this battle!


Good for you! Go Girl! and Go Vinessa too!


When Jim is better let us try again to get you both down here to meet our Oregon ANA group... I just can't wait to meet you in person.

I am so sorry you are having to deal with such a broken system. I will continue to pray for you both. I am so glad you got in some sort of laugh today... in all the irony it IS healthy to get some giggles in. Giggle therapy is good. ;D

HUGS

DHM
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jill Marie on October 03, 2010, 09:28:06 pm
Hi Donnalynn,

Just stopped by to say I was thinking about you and hoping that Jim is doing ok.  Sure is nice to read so much helpful information for you, got my fingers crossed that it will help with Jim's recovery.  Jill
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on October 04, 2010, 09:01:54 am
Good morning, Donnalynn
I've been out of town, just checking in to see how you two are doing.
Amazing that you DO have connections, and still can't get what you need in the way of PET scan.
You are an amazingly strong, persistent, intelligent woman & you  keep going  and going..(what choice do you have), kind of like the Energizer Bunny commercial :)
By the time people offer advice,it's like you've already tried that!
So hugs to you and Jim, and keep the faith, keep persisting. It will all come together :-*
Maureen
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on October 04, 2010, 09:57:41 pm
I will add a prayer that you have sweet dreams and good nights of rest ... and as always praying for Jim
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jim Scott on October 07, 2010, 02:50:07 pm
Donnalynn ~

Thank you for that encouraging update!   Suffice it to say that I'm thrilled to learn that prayers are being answered and your Jim seems to be improving.  May the good news continue!

Jim
Title: Re: Donnalynn's Husband - Please Pray
Post by: Kaybo on October 07, 2010, 03:15:47 pm
Donnalynn~
This is such good news!  I thought you sounded fairly chipper for the sec I got to talk to you this morning!  Was the Dr. call a good discussion?  I'll try to call you tomorrow, but I am subbing in the afternoon (at the school where I taught right our of college!) - I certainly won't call early since I now know that you are sleeping in!!  Glad you can get some much needed rest!!

Love to all,
K   ;D
Title: Re: Donnalynn's Husband - Please Pray
Post by: CHD63 on October 07, 2010, 04:09:54 pm
So grateful for the good news of going in the right direction, while awaiting the PET scan.

Prayers continue.

Clarice
Title: Re: Donnalynn's Husband - Please Pray
Post by: saralynn143 on October 07, 2010, 07:18:37 pm
I was just thinking that we must have passed through the three week critical period by now. I am so pleased that Jim is feeling better and pray that he continues to heal. The 15th will be here in a flash - I am taking my MIL for a biopsy of a spot on her bladder that same day. There will be lots of prayers on the 15th.

Sending my love,
Sara
Title: Re: Donnalynn's Husband - Please Pray
Post by: ppearl214 on October 08, 2010, 04:13:47 am
DL,

You KNOW I'm following along... and sending Jim MAJOR healing hugglez... and helpful hugglez to you and my very dear V.  It's about time some good news comes along..........

xoxooxoxox and all that mushy stuff.
Phyl
Title: Re: Donnalynn's Husband - Please Pray
Post by: yardtick on October 08, 2010, 10:28:30 am
Happy Thanksgiving Donnalynn and family.  I will include your family in my blessing on Monday  :-* :-* :-* :-*

I will also include all my AN friends in my blessing. 


Anne Marie


Title: Re: Donnalynn's Husband - Please Pray
Post by: ombrerose4 on October 09, 2010, 09:12:17 am
Donnalynn,

I am so happy that Jim is improving and that both of you are getting some well needed rest. I will continue to send healing thoughts your way :)
Title: Re: Donnalynn's Husband - Please Pray
Post by: free2be on October 09, 2010, 06:53:54 pm
Donnalynn,

What a blessing that Jim is doing better. I am so happy. Tell him not to over do. I hope things go well the 15th, which is just around the bend.

God Bless,
Connie
Title: Re: Donnalynn's Husband - Please Pray
Post by: questions?586 on October 09, 2010, 08:39:37 pm
Hi:

I'm new around here but want to share my prayers and concern.  I had a pulmonary embolism last year and know how scary it can be.  About the never ending blood thinners and food; eat what you think is most healthy but eat it regularly.  The more evenly you eat and exercise the easier it is to regulate.

Starr
Title: Re: Donnalynn's Husband - Please Pray
Post by: lori67 on October 10, 2010, 06:42:29 am
Donnalynn,

Make sure you check with your doctor before trying the natural route for this.  I understand your concern, but I think the benefits of the coumadin outweigh the risks.  I was on it for year for a blood clot and had no adverse effects and it took care of the problem.  With the severity of Jim's case, the doctor may want his INR even higher than 2-3, and that might be hard to achieve and regulate through diet alone.

Once I got my dose to where it needed to be, I just had to have it checked once a month and make sure I practiced some moderation in my diet.  So, not eating 20 pounds of spinach at one sitting was out, but fortunately, that wasn't really a problem. 

Hope things are going well!!
Lori
Title: Re: Donnalynn's Husband - Please Pray
Post by: Cheryl R on October 10, 2010, 07:54:15 am
I agree with Lori about staying on the Coumadin.      I have a friend who is on it long term and she told recently how her INR really jumped higher than you think it would when she was eating more of a couple foods  than she usually did.          I haven't talked to her since to see how it is now as that was maybe 3 weeks ago.            Jim isn't the usual type of pt using it so has to be careful!
                                                           Cheryl R
Title: Re: Donnalynn's Husband - Please Pray
Post by: CHD63 on October 10, 2010, 08:19:43 am
Donnalynn .....

Adding my agreement about the Coumadin.  Keeping the INR between 2 & 3 is a real balancing act.  Truman was told that it takes three days before changes in Coumadin dosage or extra Vitamin K rich food intake for it to show up in the INR.  I would be very careful about this without very frequent INR checks.  Truman's INR went from 4.2 to 1.9 in a week during his early months on Coumadin.  This is one of those instances where you really need to be cautious.

Many thoughts and prayers continue.

Clarice
Title: Re: Donnalynn's Husband - Please Pray
Post by: elliemae on October 10, 2010, 08:26:50 am
Hi, Donnalynn
I am verry behind in reading the forum, and just yesterday started reading about your husband's ordeal!! 
You have a great heart looking out for him, and so much support here!  I wish Jim and your family the best as you work thru this.

Elaine
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on October 10, 2010, 01:56:13 pm
Hi Donnalynn,
Probably the answer is no to this question, but wouldn't it be great if they could give you one of those INR machines, where you just poke his finger like for a blood sugar monitor? It gives an instant INR reading. We use them in home care.
It's called an INRation Machine. Then you wouldn't have to run to the doctor twice weekly and could even check it more frequently if need be.
They are pretty accurate. One of my patient's INR was 6.1 so I had to draw blood  and submit, since it was over 4. The lab test came back 6.4, so that was pretty accurate.
Just a thought,
Hang in there you two, and I'm SO glad you were able to NOT cook up a storm for Thanksgiving!
Happy ( belated)  Canadian Thanksgiving to you Canadians!
I too hope that a better drug comes around than coumadin. It is indeed a very dangerous drug. Hopefully we still get to check INR's though, because that is an easy home visit for me for the homebound! easy $$$$
Maureen
Title: Re: Donnalynn's Husband - Please Pray
Post by: 4cm in Pacific Northwest on October 10, 2010, 09:05:49 pm

This weekend is Our Canadian Thanks-giving, and I will be thanking the good L-rd for you all, who have kept me sane these past weeks, and have held us all up in your prayer, your good wishes and your friendships.


DonnaLynn, Jim and Vinessa,

I had 16 people over for dinner here in my Oregon farmhouse, for their very first Canadian Thankgiving dinner... MANY blessings to count... and be VERY thankful for.

 ;D My first is that I got my annual MRI and the remnant tumor was NO where to be seen.   :o Gone- zip- disappeared completely off the radar.   8)  I do not have to go back for another MRI for 2 years. :)

 :) My second that we are now see some progress in health in Jim  8) and that your family's prayers are being answered. This is good news. BIG hugs.

Yup lots to be thankful for. :)

SO my Canadian sisters up there in Northland- Anne Marie and Donnalyn (who else on this thread is Canadian?  :)... Happy Thanksgiving to you and your families!

DHM
Title: Re: Donnalynn's Husband - Please Pray
Post by: yardtick on October 12, 2010, 11:48:00 am
Had an amazing Thanksgiving.  My eldest cousin who is a spitting image of my father came up from Michigan with his beautiful wife.  Yes I cooked up a storm.  Once I got to bed I slept like a baby, but today my body is so sore, but every ache is so worth it.

Donnalynn I  thought of you when I served the cabbage rolls  ;)  I also prayed for Jim in my grace and I toasted to my AN family.  Thanksgiving is truly one of the best holidays.

Anne Marie
Title: Re: Donnalynn's Husband - Please Pray
Post by: Kathy M on October 12, 2010, 07:02:04 pm
Donnalynn, I am so happy that your Jim is getting better....What perfect timing for Thanksgiving!  I am not on the site nearly often enough but always check in to see how things are going for you and your family.  You made my night!!!

Love to you all,

Kathy
Title: Re: Donnalynn's Husband - Please Pray
Post by: another NY postie on October 15, 2010, 05:43:21 pm
Donnalynn, I have been thinking of you and Jim all day...I am not going to call you until tomorrow but if you go on this tonight...I have been praying all day that it went well...I am guessing you won't know the results right away but at least Jim finally got one.  Here's to progress and good news for him!
xxooo
Cheryl
Title: Re: Donnalynn's Husband - Please Pray
Post by: free2be on October 19, 2010, 08:23:27 pm
Donnalynn,

Sounds like you got out and had a bit of fun. That's great. I'm so glad Jim is able to do that; he must be doing better, but know that's only part of the big picture. It's great that you have the support of the Fire Dept. family. I'm glad you're getting a nap or three in; I'm sure you need it and then some. Been thinking of you and praying for Jim. Will continue to do so, of course. Let us know as soon as you can what the scan shows (or doesn't).

Take care my friend,
Connie
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on October 20, 2010, 05:50:32 am
glad that Jim has had improvement and that you all had a great night out ...

keeping Jim and your family on my "rock list"
Title: Re: Donnalynn's Husband - Please Pray
Post by: pjb on October 20, 2010, 01:03:10 pm
Hi, just checking to see how your husband is doing and the rest of the family which it takes a toll on everyone..Glad to read he had his test hoping and praying that all will be fine. I was also happy to see a message that Kathy had sent you she is always on my mine as well.

Best Wishes,

Pat
Title: Re: Donnalynn's Husband - Please Pray
Post by: alicia on October 21, 2010, 08:48:45 pm
Hi Donnalynn!!  Just reading up on you and Jim - I'm sorry for the latest journey you two have been on.  I have thought of you often and your sweet words still swirl in my head! Take care darlin! A
Title: Re: Donnalynn's Husband - Please Pray
Post by: ombrerose4 on October 22, 2010, 07:12:24 am
Hi Donnalynn,

I am happy to hear that Jim is beginning to feel stronger and that you are having some easier days. We are all hoping for good news on Jim's test.
Always thinking of you guys :)
Title: Re: Donnalynn's Husband - Please Pray
Post by: msmaggie on October 22, 2010, 10:25:41 am
Thinking of you and your family and praying for good news! So glad you are all doing well :).

Priscilla
Title: Re: Donnalynn's Husband - Please Pray
Post by: ombrerose4 on October 28, 2010, 06:44:57 am
Donnalynn,

Glad to hear the news about the petscan. It's also great that Jim's pancreas and his blood tests are normal. What is it about the liver that they are questioning- did they do any separate liver scans? The good fact with the liver is that liver cells regenerate with rest and good nutrition, so I am thinking all good thoughts right now for all of you. I do agree that you should do some research on your own, plus I am sure there are doctors in the US who would look at his tests and advise you. But for now just enjoy each good day you, Jim and Vanessa have together and keep smiling :)
Title: Re: Donnalynn's Husband - Please Pray
Post by: Lizard on October 28, 2010, 08:10:18 am
Donnalynn,
Thank you for the update on Jim's condition, its great that everything looks good, but hopefully the Dr's keep an eye on his liver.  Its a relief for you, but unfortunately not 100% relief.  I hope that Jim's liver continues to improve and it is encouraging that his bloodwork is normal.
Take care and juice away!
Liz
Title: Re: Donnalynn's Husband - Please Pray
Post by: CHD63 on October 28, 2010, 10:02:51 am
Donnalynn .....

It was good to read the good results from Jim's PETscan.  I presume he has had a liver biopsy in the past, from your reference to knowing his liver is not in great shape.  With his blood clotting issues, they may not want to do that, however.

My brother-in-law is a 10 year survivor of liver cancer (treated at Mayo Clinic).  I hope and pray Jim's does not turn out to be that, but know that it can be treated.

Many thoughts and prayers continue for both you and Jim.

Clarice
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on October 28, 2010, 10:04:09 am
Good morning!
Hope this finds you and Jim in good spirits. So glad to hear that things are not worse, but status quo and indeed better.
Still uncertainty, but at least you know his pancreas is good, and the liver blood tests are normal.
He is a mystery.
Will he continue on coumadin? And my question is, are his legs looking all better?
And do they think he is still "throwing" clots?

Anyway, thanks for the good news, and we will continue to pray for stress free days, and good health for both of you.
Cheers, :-*
Maureen
Title: Re: Donnalynn's Husband - Please Pray
Post by: Adrienne on October 28, 2010, 10:17:17 am
Donnalynn,

I can understand why you are 'celebrating' cautiously.  How frustrating that you have no definitive answers, although right now the fact that the PET didn't show cancer is a big win.  I hope Jim continues to improve.

I am a believer in holistic/natural healing and I think this could go a long way for Jim, especially if you've been given this 'warning'.  The naturopathic doctor at the herbal pharmacy that I went to when Den was diagnosed was really enthusiastic about the benefits of juicing.  They also got me going on an alkaline water machine.  Have you heard of them?  They can be pricey (unfortunately) but the theory is that if you bring your PH to a neutral state your body can not be 'diseased'.  You drink a ton of water each day to bring your PH up (many foods we eat tend to be acidic).  In addition, it's just great water with no chlorine or chemicals.  If you haven't already, I'd suggest you read up on it.  They're huge over in Japan and are making their way over here slowly.  I don't have any huge 'miracle' stories from my own experience, but I feel good knowing that I'm at least not loading more 'stuff' into my body.  I wonder though if it would be a great thing for Jim to cleanse his liver (I use the word cleanse loosely, it's not like one of those cleansing systems that you buy at the store-it's just good water).

I hope he continues to improve for you, and life soon 'levels out' with no more medical issues to deal with.  You've had your share the last while, that's for sure.

Hang in there.......

Adrienne
Title: Re: Donnalynn's Husband - Please Pray
Post by: Kaybo on October 28, 2010, 11:34:48 am
Such good news and at least you have something to look into with the liver...now if we cn get you past your dental surgery!

Love & Hugs,
K   ;D
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jim Scott on October 28, 2010, 02:30:14 pm
Hi, Donnalynn ~

Thanks for the update on your Jim - and the good news, within.  Although all his medical mysteries have yet to be solved, mainly, the cause of the clotting, things are definitely looking a lot better at this point.  I realize your cautious optimism is prudent but I trust you can both relax a bit (and we're all thankful for the answered prayers).  Your appreciation for the folks here is gratifying and another example of your graciousness and humility in the face of adversity.  I hope and will pray for continued good news for both you and your husband.

Jim
Title: Re: Donnalynn's Husband - Please Pray
Post by: cindyj on October 29, 2010, 12:06:02 pm
So glad you finally got the answer that there is no cancer at this time...even though you still don't have all the answers you seek, try to enjoy that positive news and relax for a bit...you guys have been through so much.  Take a deep breath and live in peace for awhile, ok?

Hugs to you all,

Cindy
Title: Re: Donnalynn's Husband - Please Pray
Post by: free2be on October 29, 2010, 07:22:00 pm
Donnalynn,

Been watching...hoping to hear good news. I'm glad they didn't find anything, but certainly understand that it is all still unnerving. You know I believe that natural, whole foods, and natural remedies can help. PM me if you need any referrals or whatever.

Take care my friend,
Connie
Title: Re: Donnalynn's Husband - Please Pray
Post by: Sue on October 30, 2010, 09:20:09 pm
Thinking about you Donnalynn and your beloved hubby.  Best wishes, dear.

Sue in Vancouver, USa
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on October 31, 2010, 10:51:06 am
You are a sweetie,
Responding to each person's questions! One day at a time, that's our motto in life. Enjoy each other.
Maureen
Title: Re: Donnalynn's Husband - Please Pray
Post by: Kathy M on November 01, 2010, 07:00:54 pm
Optimism, even though it's cautious, is awesome!!!  One day at a time!  I'm so very glad you are ruling things out  - keep checking things off that list!!!

Hugs to you both,

Kathy
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on November 03, 2010, 05:30:20 am
Following along and keeping you each in my prayers ... I have got a large rock spotted that I want to move to my yard as a meditation/prayer rock... getting hubby and his tractor to go along with this plan is not going so well ... but that is where my  30 year old twins come into play   ;D ...in the time being I still have Jim's Rock with me ... I have it in hand daily ... sending healing hugs north
Title: Re: Donnalynn's Husband - Please Pray
Post by: saralynn143 on November 03, 2010, 06:19:43 pm
Hi Donnalynn - been too busy to spend much time here but I always look for a post from you and am keeping you all in my prayers. MIL's bladder biopsy was negative, thank God.

Love from Missouri,
Sara
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jill Marie on November 11, 2010, 12:15:10 am
Hi Donnalynn,

Just wanted to let you know I've been thinking about you and Jim.  I'm glad to hear that things are looking better for Jim so that you both can relax a bit.  From what I've read you still have lots of doctor visits to contend with and research to do to find out what is best for Jim but at least the urgency has subsided.  I can't imagine what it must be like to have this on your mind all the time.  Hopefully the upcoming Holiday season gives you a chance to relax and enjoy being together, ok maybe relax isn't the right word to use.  As the stores and tv ad's remind us that Christmas is coming it makes me think of starting the baking which reminds me of the cookie thread here on the forum which reminds me of when I first started to get to know you.  When are you going to make Jim his Christmas Cake Bon Bon's.  I know, I know, I'm just as bad as the stores aren't I.  I should at least wait until after Thanksgiving, oh yea, you guys already had your Thanksgiving so on with Christmas preparations right?  Take Care, Jill ;)
Title: Re: Donnalynn's Husband - Please Pray
Post by: Captain Deb on November 12, 2010, 07:36:33 pm
Donnalynn, sweetie,

Just checking in--so glad Jim seems to be holding his own.  I'm seeing a great pain specialist trying to get some semblance of getting my life back--working on the back first until the Botox in my head wears off, then going for nerve ablations in the head--chronicled in the headache section.

Thinking of you and your family and hope it's not too cold up there yet!!!!

Hugs and kisses,

Capt Deb(http://i235.photobucket.com/albums/ee60/Captdeb_photos/pirate-4.gif)
Title: Re: Donnalynn's Husband - Please Pray
Post by: saralynn143 on November 21, 2010, 02:17:16 pm
Hi Donnalynn, I've been assuming no news is good news - but would still like to ask if there is any news? I had Jim's name in my heart during congregational prayers for the sick this morning.

Sending love from Missouri,
Sara
Title: Re: Donnalynn's Husband - Please Pray
Post by: Sue on November 21, 2010, 09:45:15 pm
Donnalyn, I am glad Jim is doing okay.  I do want to say that if I was homeless in northern Canada, or middle Canada, and possibly Southern Canada, or Northern USA...I'd be figuring out a way to hop a freight south.  Shiver me timbers!!

Sue in Vancouver, WA USA
Title: Re: Donnalynn's Husband - Please Pray
Post by: Jim Scott on November 22, 2010, 02:56:18 pm
We will always have the poor among us, so if we all can help in a small way, it can help... we have seen many, many people helped with the smallest of gestures!

May God bless you for your servant's heart. 

Jim
Title: Re: Donnalynn's Husband - Please Pray
Post by: Sue on November 23, 2010, 09:01:23 pm
Donnalynn, you are an inspiration.   :) :)

Sue in Vancouver, USA
Title: Re: Donnalynn's Husband - Please Pray
Post by: Captain Deb on November 24, 2010, 11:02:35 am
Hi Donnalynn!  So glad that your Jim is doing so much better--a load off all our hearts.

About nerve ablation--Cin just had hers done and you can follow her thread over in the headache section.  It is basically a process of a series of diagnostic nerve injections at first with long lasting lidocaine and corticosteroid to locate the nerves that are triggering the pain.  In my case two sessions are given two weeks apart and if relief is achieved they go ahaead with the ablation process.  This involves inserting needles into the nerves which carry a radiofrequency current which heats them up and essentially damages the nerve enough so that it no longer carries pain signals to the brain.  We have two kinds of nerves in our bodies--ones that allow feeling and ones that allow movement.  The feeling ones are the ones that carry pain signals.  The ablation can last for up to a year or possibly forever.  My new GP had one in her lumbar spine several years ago and her pain has never returned.

Right now I am going through the process on my sacroiliac region, which was damaged due to prolonged surgical position during my way too long laparoscopic hysterectomy 18 months ago.  I had over 40 injections two weeks ago and will have my second round on Monday.  I got a great deal of relief with the first round.

When I am done with my back, my Botox in my head should be worn off, so we will start on my occipital nerves and hopefully get me headache-free, or at least headache greatly reduced, possibly forever!

If you want to Google it, it is also called a rhizotomy.  I will possibly be having a "C2-C3 dorsal rhizotomy" and he will probably follow the occipital nerves where they leave the spinal chord and up the back of my head and fry those, too.  Seems that's what Cin had done as well.  She's still having some pain, but that's to be expected for 4-5 weeks following the procedure.  This definitely ain't for sissies and the docs only do it for folks who have had this kind of nerve pain for a long time.

I'm working with a great new doc who is an anesthesiologist who specializes in Pain Management, is fairly young and seems to really know his stuff. Not local, but near Charlotte, NC--about a 2 1/2 hour drive and close to my grandscallywags.

Sorry for the loooong post, but I wanted to give you a thorough updat cuz you asked!

Thank you for being the caring person that you are m'dear!

Hugs to you, Jim, and Vanessa,

Capt Deb
Title: Re: Donnalynn's Husband - Please Pray
Post by: dalern on November 24, 2010, 11:13:16 am
Hi Donnalyn,
Knowing what you do with the homeless, I now understand why you wanted to know more about what I was doing in Africa and how to help.  You are making a difference in the world doing what you do right there at home.  I still look forward to talking to you so we can compare notes and perhaps collaborate on some projects.  I definitely have some thoughts.  So glad Jim is doing so much better.  Hope to talk to you soon.
God Bless,
~Dale
Title: Re: Donnalynn's Husband - Please Pray
Post by: dalern on November 25, 2010, 02:52:59 pm
Yes, I'm back and I sent you a PM.
~Dale
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on November 26, 2010, 09:53:43 pm
glad Jim is holding his own ...being back at fire hall may be a bit of special medication he needs ... for me getting back to school and scouts helped me more than most of the medical advice doctors gave me right after surgery ... as long as the guys have his back this should be good for him

I am so proud to hear of your work ... with help of scouts we collect blankets all year long... get them at yard sales , good will , salvation army stores etc ...only buy ones in good shape ... clean and bag them and when it turns cold they are ready for homeless and people who may be in un heated or under heated house ... also gather jackets and coats ...you can pick these up cheaper during spring and summer when people want to get rid of them ... also have a few people that give us new coats and blankets ...

one year we made a bunch of quillows for homeless people  ... a quilt with an attached pocket and handles that when folded just so ended up looking like a shopping bag ... easy to carry ... alot of what is gathered goes to Nashville or Huntsville as long as we have out local needs covered and keep back a few for things that come up ...coat drive with BETA club is going on along with food drives ... the need is there year round but when the leaves begin to turn it becomes an immediate concern

if everyone puts forth the effort to help one person a world of good can be done ... and start with kids ... we have BETA club and Student Council  ringing bells for Toys for Tots , scouts and school kids  gathering warm clothing , food and blankets ...running a Santa shop at school to buy hams and turkeys to go in meal boxes for Christmas ... along with the genral pantry collection the kids are bringing in specific items to make meal boxes that will go to families in the community ... if we can get one child to grow up into an adult concerned for others we have won ... and I think we teach this skill to more than one each year


thank you for all you do for your fellow man /woman/child
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on November 28, 2010, 11:17:23 am
Wow,
You ladies are amazing! All that you do, in addition to taking care of yourselves, and Jim (BTW this thread has been officially hijacked now that Jim is doing better. Though we continue to pray
 for him.  ;) )
Hard enough just taking care of myself, but it DOES feel sooo good to help others-kind of take my mind off of my own problems. Keep doing all you do, and take care of yourselves!
Maureen
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on November 28, 2010, 12:17:43 pm
Wow,
You ladies are amazing! All that you do, in addition to taking care of yourselves, and Jim (BTW this thread has been officially hijacked now that Jim is doing better. Though we continue to pray
 for him.  ;) )
Hard enough just taking care of myself, but it DOES feel sooo good to help others-kind of take my mind off of my own problems. Keep doing all you do, and take care of yourselves!
Maureen


doing for others , be it volunteering at school so that teacher can have an extra 15 minutes away from class ( sometimes a necessity for sanity reasons  ;D ) or collecting for needy , is doing for myself ...makes me feel useful ...since I have not worked (for pay) since surgery , I feel useless at times ... so helping out where I am able is self healing treatment for me ...

did that make sense ? I have typed it several times and it just doesn't type as well as it sounds in my head ...

regardless of minor high jacks Jim , you are still in my thoughts and prayers and your rock is in my pocket ...
Title: Re: Donnalynn's Husband - Please Pray
Post by: yardtick on November 28, 2010, 09:31:53 pm
Even though this is a hijack I'm sure Jim would approve  ;D

You are all so amazing who give of your time and help the less fortunate.  This is the season and I say God Bless You from the bottom of my heart.   :-* :-* :-* :-*

Anne Marie
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on November 29, 2010, 09:19:26 am
I was at school for a bit this morning spying on the child that my daughters  and their Beta Club team drew from school angel tree and are in charge of  buying gifts for ... the girl is in kindergarten ... I told the teacher why I was there hoping for input from her on the child's likes and ended up sitting with the girl  and several others talking about Christmas and Santa wish list ... she is a girly girl that wears size six and loves jewelry and baby dolls ... she said she wanted a sweater and jeans  for Christmas and I checked her size to add to her list for Santa ...

did this with the others in the group and when I had the information I needed and helped them clean up their area  I left ... I was in hall talking to another teacher and was juggling the 3 rocks in my jacket pocket making  clicking sounds ... she asked what I had in my pocket ... I pulled them out and she asked why did I have rocks in my pocket and did they fall out of my head ?  ... first told her yep they came from my head and had been there to replace the marbles I had lost  ;D ... then told her about prayer rocks ...

PS.... she added Jim in Canada to her prayer list and is going to find a herself a rock ...

just thought I would share

   



      
         
     
            
         
           
      
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Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on November 29, 2010, 09:22:12 am
OK ... that is just weird  :o...

that is suppose to be Prayer Rock Prayer ... I cut and pasted it from a site and evidently it does not compute here ...
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on November 29, 2010, 09:29:59 am


doing for others , be it volunteering at school so that teacher can have an extra 15 minutes away from class ( sometimes a necessity for sanity reasons  ;D ) or collecting for needy , is doing for myself ...makes me feel useful ...since I have not worked (for pay) since surgery , I feel useless at times ... so helping out where I am able is self healing treatment for me ...



Soundy,
YES it makes perfect sense! I just loved volunteering when the kids were school age. The gratification is amazing. And the sense of control is wonderful. PLUS kids just warm my heart....
Would love to get back into it in some sort (maybe in a hospital or helping with the elderly homebound/church etc.......) but all my energy goes into working very part time and holding down the house (got those college tuitions to pay off....)

 I love this quote:

“In this life we cannot do great things. We can only do small things with great love.” – Blessed Mother Teresa  :) :) :)

I went to see a home health patient recently, and on my way up the side road there was a man  sitting on the ground with his dog who was on a leash, which he was having a hard time controlling.
 I drove past him, had a feeling that he "had fallen and couldn't get up" and turned around.
He HAD fallen and another car stopped. We got him up and walked him back to his house with his unruly dog.......... It's those little things.........

Enjoy the moments,
Maureen :)
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on November 29, 2010, 09:33:00 am
Oh yea, i can decipher that Prayer! Weird is right. Try again :o
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on November 29, 2010, 09:40:14 am
glad it made sense to you ...

this is the original prayer rock prayer I got about 20 years ago ... we took a little rock about an inch across is a good size ... the kids wondered the creek gravel bar looking for their perfect rock ... we had cut out 6 inch circles of Christmas print fabric and put the rock in the center and tied it with a ribbon and put the prayer on laminated cars with a hole punched in corner ... they served as a reminder for the kids to say their prayers and think of others ... later I just began carrying smooth unwrapped rocks to roll around in my pockets to remind me of people in need and to be thankful for what I have ... or sometimes to just hold and think ... kinda like permanent post it notes in my pocket ...

any way ... here it is in English ... I hope

 Prayer Rock
I’m your little prayer rock and this is what I’ll do .
Just put me on your pillow till the day is through.
Then turn back the covers and climb into your bed ,
And WHACK … your little prayer rock will hit you on your head.
The you will remember as the day is through
To kneel and say your prayers as you wanted to.
Then when you are finished just dump me on the floor,
I’ll stay there through the night time to give you help once more
When you get up the next morning CLUNK … I stub your toe
So you will remember your prayers before you go.
Put me back upon your pillow when your bed is made,
And your clever little prayer rock will continue in your aid.
Because your heavenly Father cares and loves for you so,
He wants you to remember to talk to him , you know .
Title: Re: Donnalynn's Husband - Please Pray
Post by: Lizard on December 02, 2010, 03:23:49 pm
We'll keep praying, you will get through this busy time and hopefully enjoy some relaxing evenings soon!
Liz
Title: Re: Donnalynn's Husband - Please Pray
Post by: Kaybo on December 02, 2010, 03:50:37 pm
Oh Donna!  You are certainly in my prayers for ALL of it - Jim too!

K   :-*
Title: Re: Donnalynn's Husband - Please Pray
Post by: CHD63 on December 02, 2010, 04:08:25 pm
Donnalynn .....

Prayers picking up again for both you and Jim ...... my you have a lot "on your plate" right now!

Clarice
Title: Re: Donnalynn's Husband - Please Pray
Post by: ombrerose4 on December 02, 2010, 06:11:04 pm
Donnalynn,

Happy Chanukah! I will say a special prayer for you and your Jim. I have to say you are an amazing woman-where do you find the strength? Some day I hope to have a tenth of your energy and spirit! God bless!

Lauren
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on December 02, 2010, 10:11:46 pm
Keep pluggn and God give you lots of strength to get through all you do. You are AMAZING!
And Jim, STAY WELL, plz.
Maureen
Title: Re: Donnalynn's Husband - Please Pray
Post by: CHD63 on December 07, 2010, 08:03:57 am
Donnalynn .....

I know you said you would be off the radar screen for a few days, but shutting down the forum so you wouldn't miss anything????   ;D  Seriously though, I pray you and Jim are OK.  Let us know how you both are doing when you have a chance .....

Many prayers continue!

Clarice
Title: Re: Donnalynn's Husband - Please Pray
Post by: free2be on December 07, 2010, 10:49:49 am
Donnalyn,

Sorry to hear Jim's having an issue, but in that kind of cold...man! Hope it's just the weather :)

I second and third the previous comments. I don't know how you do it. You are amazing.

I don't know how you stand that cold. It's been in the 20s and 30s here and I'm ready to move back to Florida, which I swore I'd never do. The cold is really bothering me this year. Frankly, I think you are all nuts for living in such a climate (no offense intended)!

TAKE CARE will you! Prayers contine for Jim (and you!).

Connie
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on December 07, 2010, 01:20:37 pm
Will keep you all in my thoughts and prayers ...

your temps make out lows of 18 seem balmy ... stay warm ...
Title: Re: Donnalynn's Husband - Please Pray
Post by: moe on December 08, 2010, 10:22:35 am
Dang, the bug got ya. .. >:( :(
 I am confident you'll be up and running by Sunday. Rest/sleep when you can ya hear? (Yea right......)
Moe
Title: Re: Donnalynn's Husband - Please Pray
Post by: yardtick on December 08, 2010, 09:19:47 pm
No Donnalynn, the storm just missed us, all lake effect.  We are snow free at the moment, but Saturday is suppose to be the day.  Who knows!

Anne Marie
Title: Re: Donnalynn's Husband - Please Pray
Post by: Soundy on December 12, 2010, 11:07:49 am
Sorry you have a bug ... we got hit by a stomach bug last week that hit fast and hard and was gone in about 48 hours ...luckily we didn't pass it back and forth like we usually do ... it just go you then left ...

hope tomorrow goes well for you ...

we have our family meal kits delivered and the coats from Warm Hearts for Warm Friends distributed ... only have angel tree children's gifts to deliver and will  do that Friday at school ...then nursing home delivery to get done ... so many of the kids have had bugs that we are not going to take our carolers to the nursing homes , but I am taking by gifts of socks , tooth brushes , books and lap blankets ( all things requested ) that have been collected and cards and ornaments that have been made ... the people love to see the kids come around and sing for them but passing the germs to the people there is not a good thing ...

we are taking the kids caroling Wednesday at several banks and Walmart ... then we go to Mc Donald's for lunch and spend about 2 hours with 50 kids in the play place ...I take an ear plug because the noise and echo in there makes me insane ... it is a fun day but will wear me out ...
Title: Re: Donnalynn's Husband - Please Pray
Post by: Keri on December 13, 2010, 06:18:26 pm
I hope that Jim is better and you and your daughter are too, Donnalynn. I hope the weekend events went well!

Keri