Author Topic: Very,very good news!  (Read 13165 times)

Cheryl R

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Very,very good news!
« on: April 13, 2010, 06:50:25 pm »
MRI and then audiogram and dr appt this am.       NO new tumor or recurrent ones!        Audiogram is no change!    I was expecting the worse and and very happy to know I am ok for now!    My hearing has seemed off some and I do know worse when had a sinus infection  several weeks ago.     Plus balance has it's spells too!      So anyway back to real life again and live as usual with the hearing and goofy balance due to no balance nerves but very grateful that I am not worse off than I am.        I did have a few tears of joy!                                      Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

jerseygirl

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Re: Very,very good news!
« Reply #1 on: April 13, 2010, 07:11:38 pm »
Cheryl, congratulations!!! Hope all the worst is behind you and you get only good news from now on!


       Eve
Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

Syl

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Re: Very,very good news!
« Reply #2 on: April 13, 2010, 07:30:41 pm »
That's WONDERFUL news, Cheryl!!!!
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

tenai98

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Re: Very,very good news!
« Reply #3 on: April 13, 2010, 07:35:31 pm »
congrats Chery
JO
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

james e

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  • 70 years, 1.7cm, trans lab Mar 2010, BAHA 5
Re: Very,very good news!
« Reply #4 on: April 13, 2010, 07:40:16 pm »
I always look for something that just makes my day...and YOU just did! Let's hear an AMEN.

yardtick

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Re: Very,very good news!
« Reply #5 on: April 13, 2010, 08:06:26 pm »
Great news Cheryl.  How's the hubby doing?

Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

CHD63

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Re: Very,very good news!
« Reply #6 on: April 13, 2010, 08:25:14 pm »
Whew!  What a relief to know all is well.  As Eve said, "only good news from now on!"

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Cheryl R

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Re: Very,very good news!
« Reply #7 on: April 13, 2010, 08:48:51 pm »
Mark is doing pretty well.    Just using one crutch most of the time.   Some pain some of the time but not alot and can tell moving better.               He is back to work but just in the grain elevator office.         Just going to take time to get back to normal.
                                                           Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

sgerrard

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Re: Very,very good news!
« Reply #8 on: April 13, 2010, 11:12:17 pm »
I'm happy for you, Cheryl. Nice news. :)

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Jackie

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Re: Very,very good news!
« Reply #9 on: April 13, 2010, 11:34:24 pm »
Oh Cheryl,
We love good news and glad that you are the recipient!!! You deserve it, and your hubby too! may your Blessings be many,

Jackie in Oregon
9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

leapyrtwins

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Re: Very,very good news!
« Reply #10 on: April 14, 2010, 05:12:04 am »
This IS very, very good news, Cheryl  ;D

Congratulations!

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Cheryl R

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Re: Very,very good news!
« Reply #11 on: April 14, 2010, 08:14:16 am »
More to add.    I have  96% for the speech discrim and my dr is very happy for that but has never really talked about how that is ok but still not the best out in the real world esp since no hearing on the other side.         He finally acknowledged that yesterday and surprised me by saying I am on the edge of being a candidate for a BAHA.        As good as they are for so many people,am not sure if would want to have one.      Since I am retired am not sure.            Something to think about and try the demo.         The balance problems are maybe more annoying than the hearing.                 I was also asking about if any plastic surgeon could fix the pooch between the eyebrow and eye.        I have almost no movement there so of course they think a oculo-plastic surgeon would be better.      Now going to see about a consult with the one down there.       Was hoping for one closer to me.   
  So will see about that.                                              Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

CHD63

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Re: Very,very good news!
« Reply #12 on: April 14, 2010, 08:35:56 am »
Since I have no eye issues, other than mild cataracts, I have no experience with any surgical intervention.  However, since our vision is so much a part of our balance, it seems to me it would be wise to do whatever necessary to assure that you have the best possible vision.  If the puffy place below your eyebrow is obstructing your vision, it could well be affecting your balance, as well.  Let us know what you find out.  Always something, it seems .....

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

moe

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Re: Very,very good news!
« Reply #13 on: April 14, 2010, 10:03:22 am »
Yea, Cheryl what a relief! Congrats on the good news.

I agree with Clarice, about the puffy place below the eyebrow obstructing the vision which affects balance. I guess for me it is the saggy skin. Any eye procedure with an experienced  oculoplastic surgeon is a good thing, especially if the facial nerve was compromised or little to no eye movement.
 I'm being followed by an excellent one at Madigan and plan to have two eye procedures separately in the fall (a canthopexy to bring up the lateral lower eyelid, and then a brow lift later.)

(But first my miracle surgery in May  for muscle/nerve transplant to cheek ;D)

The journey continues. At least these are procedures to help you feel better so the BAHA may be worth a try. Still got a lot of living to do!
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

kenneth_k

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Re: Very,very good news!
« Reply #14 on: April 14, 2010, 11:25:12 am »
Hi Cheryl.

I feel happy about your good news :)

Best regards, Kenneth

 


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