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Author Topic: Mystery Diagnosis cable show will show a story about an AN patient  (Read 16657 times)

Syl

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Mystery Diagnosis cable show will show a story about an AN patient
« on: March 02, 2010, 09:12:26 pm »
This March 8 at 10 PM ET/PT Discovery Health's show Mystery Diagnosis will show a story about an AN patient.
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

leapyrtwins

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Re: Mystery Diagnosis cable show will show a story about an AN patient
« Reply #1 on: March 02, 2010, 10:04:54 pm »
Yes, I got this email from the ANA also.

Can't wait for the episode.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Dana

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Re: Mystery Diagnosis cable show will show a story about an AN patient
« Reply #2 on: March 03, 2010, 07:47:21 pm »
As a side note, "acoustic neuroma" was on Jeopardy earlier this week -- among a list of other things that cause hearing loss.  We're gettin' out there!!!
Dana
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1.5 cm AN diagnosed June 2007.   GammaKnife July 19, 2007 at Univ. of Washington/Harborview GK Center, Drs. Rockhill, Rostomily. 
After yearly MRIs for 5 years, it hadn't died. So I'm now leaning strongly toward surgery.

Soundy

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Re: Mystery Diagnosis cable show will show a story about an AN patient
« Reply #3 on: March 05, 2010, 04:10:10 pm »
I am tuning in and making sure my husband , who has never really understood all the symptoms I had pre surgery  and post surgery issues , watches it ...

I like watching this show and trying to see if by clues I can guess what the paitient has before they tell you ... guessed the one wehre a woman had lupus ... we could have been twins
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3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

lori67

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Re: Mystery Diagnosis cable show will show a story about an AN patient
« Reply #4 on: March 05, 2010, 05:38:18 pm »
Dana,

I saw that on Jeopardy too!  Looks like we've hit the big time!   :D

Mystery Diagnosis is my favorite show (after Survivor), so I can't wait to watch this one!  I'm getting tired of the reruns!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

jross

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Re: Mystery Diagnosis cable show will show a story about an AN patient
« Reply #5 on: March 05, 2010, 07:58:43 pm »

 There was also a mention of acoustic neuroma on House a couple of weeks ago as a false diagnosis.  Suggested a hearing test and ruled it 
out.  I'm recording the program on March 8th, however the information says it's about a woman whose leg turned black?
Jill
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sues1953

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Re: Mystery Diagnosis cable show will show a story about an AN patient
« Reply #6 on: March 05, 2010, 08:17:41 pm »

I love that show.  I knew it was just a matter of time before we were noticed.  I will be watching.   Thanks for the heads up.  :)

Sue in Michigan
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3.2 cm AN Right side diagnosed 12/4/09
Translab surgery May 2010 with Dr. Jack Kartush and Daniel Pieper at Michigan Ear Institute.
Successful surgery .5mm left on facial nerve.  Full facial movement. SSD, Tinnitis, tongue and lip numbness.  No headaches.  Back to living life.

sgerrard

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Re: Mystery Diagnosis cable show will show a story about an AN patient
« Reply #7 on: March 05, 2010, 11:39:03 pm »
Quote from: jross on March 05, 2010, 07:58:43 pm
however the information says it's about a woman whose leg turned black?

The synopsis of the episode on the Discovery Health web site says:

"Diane's legs turn black and doctors think she's lost all circulation in her legs; they may need to be amputated. Teresa finds out that she's pregnant, but her joy is short lived when she wakes up to find the right side of her face completely numb."

Teresa is the star in our eyes, but it is Diane who gets top billing. The episode is titled "The Woman Whose Legs Turned Black", so be careful when you tell people it is about a woman with an acoustic neuroma!

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Soundy

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Re: Mystery Diagnosis cable show will show a story about an AN patient
« Reply #8 on: March 07, 2010, 11:22:36 am »
a long time ago somewhere here we talked about the invisibility of ANs ... the woman with her legs turning black probably gets top billing because it is more dramatic looking ...
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3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

leapyrtwins

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Re: Mystery Diagnosis cable show will show a story about an AN patient
« Reply #9 on: March 07, 2010, 11:30:24 am »
Very true, Soundy.

But I for one am glad that the show is doing a segment on Acoustic Neuromas.  As we all know, most people have no idea that they are - and PR is always good.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

leftear

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Re: Mystery Diagnosis cable show will show a story about an AN patient
« Reply #10 on: March 07, 2010, 03:13:20 pm »
I don't get Discovery Health Channel, but I do get The Learning Channel and I know they broadcast Mystery Diagnosis as well.  Does anyone know if TLC will also be showing that episode, and when?  I'm not having any luck finding TLC's schedule.  Thanks in advance!

Karen
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Sub-occipital craniotomy Jan. 2004 (3.5cm AN), CSF leak repair Mar. 2004.  Complete deafness in left ear, tinnitus, facial and mouth weakness (but it has improved a lot), eye issues - dryness, does not fully close, paralyzed eyebrow, some balance issues.  I also have a seizure disorder.

Kaybo

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Re: Mystery Diagnosis cable show will show a story about an AN patient
« Reply #11 on: March 07, 2010, 04:05:45 pm »
setting the DVR now...

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

leapyrtwins

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Re: Mystery Diagnosis cable show will show a story about an AN patient
« Reply #12 on: March 07, 2010, 06:53:07 pm »
I rarely watch TV myself, but make an exception for the Discovery Health channel.

That's where Mystery Diagnosis is in my area.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

saralynn143

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Re: Mystery Diagnosis cable show will show a story about an AN patient
« Reply #13 on: March 07, 2010, 07:23:25 pm »
We don't subscribe to cable, so I won't be able to watch. I always forget to tune in to shows anyway because we are just not in the habit of watching TV.

I'm sure it will be interesting to read everyone's reviews, though.

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Kaybo

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Re: Mystery Diagnosis cable show will show a story about an AN patient
« Reply #14 on: March 07, 2010, 07:26:41 pm »
I wonder if Discovery Health has a web site & if you can watch episodes there like you can with other channels??   ???

K   ;D
Logged
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!
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