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Author Topic: It Moved!  (Read 8894 times)

Nickittynic

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It Moved!
« on: February 03, 2010, 05:30:51 pm »
Is anyone familiar with the Winnie the Pooh movie where Pooh gets stuck in Rabbit's doorway? When Pooh finally gets skinny enough to 'budge' out the door Rabbit is practically delirious with excitement and yells "He bidged! He badged! He budged!"
Well, that's how I feel right now. I am jumping all around the house excited! I was just looking in the mirror and tried to do a closed move smile and the left (AN) corner of my mouth moved! My husband even saw it!
Woohoo!  :D
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25 year old OBGYN nurse, wife, mother of two
5.5cm x 3.1cm left side AN removed via retrosigmoid 9/09 @ Hopkins
SSD, Tinnitus, Chronic Migraines, Facial paralysis (improving!)
Resolved - Left sided weakness, Cognitive issues
Gold weight, upper and lower punctal plugs, tarsorrhaphy

Jim Scott

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Re: It Moved!
« Reply #1 on: February 03, 2010, 05:35:12 pm »
Congratulations, Nikki!  :D
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Jeanlea

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Re: It Moved!
« Reply #2 on: February 03, 2010, 06:36:07 pm »
WhooHoo, Nicky!!!!!!!  That is fantastic!!

Jean
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translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

texsooner

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Re: It Moved!
« Reply #3 on: February 03, 2010, 06:52:48 pm »
Awesome Nikki...congrats!!

Patrick
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3.5cm left side AN; 11 hour retrosigmoid surgery 8/11/08 @ Memorial Hermann, Houston - Texas Medical Center with Drs. Chang and Vollmer; home on 8/13/08;
SSD(w/tinnitus); dry eye; Happy to be here and feeling good.

jerseygirl

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Re: It Moved!
« Reply #4 on: February 03, 2010, 07:50:43 pm »
That's wonderful, Nikki! Congratulations! Many people don't get any movement until much later in their recovery.

            Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

jaylogs

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Re: It Moved!
« Reply #5 on: February 03, 2010, 08:20:12 pm »
YEHAWWWWWWWWW...awesome Nikki! :D
Jay
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8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

lori67

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Re: It Moved!
« Reply #6 on: February 03, 2010, 08:37:32 pm »
Awesome news, Nikki!

I can see you bouncing around the house like Tigger right now!  I remember the first bit of movement I noticed too, and it was a huge deal to me!  My husband did his best to look as thrilled as I was, but I'm sure he thought I was finally losing my mind!   :D

I hope this is the beginning of many more smiles!   ;D

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

saralynn143

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Re: It Moved!
« Reply #7 on: February 03, 2010, 08:45:36 pm »
Ah, I remember how heady that first movement was. Mine was a tiny snarl at the side of my nose three months to the day post-op. I had no movement at the corner of my mouth until six months.

May this be the beginning of much more "budging" for you.

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

leapyrtwins

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Re: It Moved!
« Reply #8 on: February 04, 2010, 06:33:33 am »
Nicki -

this is great news - and SO exciting, too!!

Congratulations!   ;D

As Tigger would say TTFN,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lawmama

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Re: It Moved!
« Reply #9 on: February 04, 2010, 09:15:11 am »
WWWWOOOOHOOOOOO!!!!

Congrats!!!  I know that really had to lift your spirits and make you feel good all day!   :)

Lyn
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9mm X 7mm tumor (left side), diagnosed 10-15-09
Retrosigmoid on 12-14-09 by Drs. Antonelli and Lewis (my heroes!)
Shands in Gainesville, FL
SSD, but no facial issues.  Mild tinnitus.

amymeri

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Re: It Moved!
« Reply #10 on: February 04, 2010, 09:53:10 am »
 ;D Hooray!  Onward and upward!
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Amy

4 cm right AN removed restrosigmoid 4/13/06
Partial facial paralysis, SSD and trigeminal numbness for now

Pooter

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Re: It Moved!
« Reply #11 on: February 04, 2010, 03:16:10 pm »
Yea!  Congrats!  Like others, I remember how excited I was at the first movement..  It just gets better from here..  Continued 'budging' for you!

Regards,
Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

moe

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Re: It Moved!
« Reply #12 on: February 04, 2010, 09:48:43 pm »
Yea Nicki!
So happy for you and good news too. I bet you didn't even notice your headache! (how is that by the way, and how is work going?)
Oops, back on track.

This is GRRREEEEEAAAAT, as Tony the Tiger would say. Only will get better.
Keep trying to smile, every day, every time you look at yourself. The brain/body thing. It will come back.

I was so excited when I got a  teeny tiny twinge of nerve pain after my nerve was cut and reattached. Still getting my twinges...
here's to  more budging for you.
Hugs,
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Nickittynic

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Re: It Moved!
« Reply #13 on: February 05, 2010, 10:25:05 am »
Thanks everybody! I'm really excited, especially since I had pretty much resigned myself to needing more surgery to fix this. Now I can't wait to show the doc in March that I won't!  ;D
This small victory is just what my family and I needed. One good thing finally! My mother-in-law said the news made her cry. (happy cry)  :)

Maureen - Headaches are still bad, especially since we're getting our second dose of snow for the week here in MD and weather events make the headaches worse. The first night of work was fine. It was more a homecoming than anything else so we'll see how it goes when my 'newness' wears off. :p I made it through staying awake all night though, so I'm happy with that! Nervous for tonight since we're expecting a blizzard and if I'm able to make it in tonight I'll probably be stuck there through the rest of the weekend!
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25 year old OBGYN nurse, wife, mother of two
5.5cm x 3.1cm left side AN removed via retrosigmoid 9/09 @ Hopkins
SSD, Tinnitus, Chronic Migraines, Facial paralysis (improving!)
Resolved - Left sided weakness, Cognitive issues
Gold weight, upper and lower punctal plugs, tarsorrhaphy

arkansasfarmgirl

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Re: It Moved!
« Reply #14 on: February 05, 2010, 10:53:19 am »
Yay!!!!!!!!!  (where's the clappy hands emoticon when you need one?)
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