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Author Topic: It Moved!  (Read 8893 times)

Kaybee

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Re: It Moved!
« Reply #15 on: February 06, 2010, 08:23:50 am »
Oh that is such fantastic news!  Here's to many many more movements!
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2 x 3 x 4 cm tumor removed at Methodist Hospital in Indianapolis 10/30/09
Left facial paralyis/SSD (showed first signs of improvement at approximately 6 months post-op)

mimoore

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Re: It Moved!
« Reply #16 on: February 06, 2010, 01:05:38 pm »
This is how it starts !  VERY exciting!
Keep us posted! I never get tired of hearing every little detail!
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

Arasha

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  • El camino es largo y dificil pero no imposible.
Re: It Moved!
« Reply #17 on: February 09, 2010, 09:43:55 am »
Great news Nikki ! Exercise your face, soft massages, and.... smile smile smile (focus in your AN side), this is very important.

Good recovery,
Gloria
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Left side AN 2.5x1.8 removed on 10/17/2007 endosc. by Dr.Shahinian (retrosig) at SBI, LA,Ca. Facial phalsys (almost back). Balance issues. Tinnitus. MRI 8 months later showed AN was resected completelly.TransEar 11/2008. Clinical trial for SoundBite 11/2009. SoundBite user.I have the best family.

Nickittynic

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Re: It Moved!
« Reply #18 on: February 16, 2010, 08:42:23 pm »
I'm hoping this addition will give faith to those who, like me, woke up with complete facial paralysis -
I just got a copy of my medical records and found out that before surgery the tumor was messing with the nerve enough that my Hb score was down to 2/6. Then in surgery, though the nerve was intact, it *did not* stimulate even with high amplitudes. Still, the movement is coming back.  ;D
I'm *not* saying this to brag at all, but just wanted to put that out there since I didn't know it before and if I had I would have been even more convinced that it would be stuck forever. Just wanted to say it *is* possible! (To answer my own question from not so long ago..)

Thanks to all for the words of encouragement!
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25 year old OBGYN nurse, wife, mother of two
5.5cm x 3.1cm left side AN removed via retrosigmoid 9/09 @ Hopkins
SSD, Tinnitus, Chronic Migraines, Facial paralysis (improving!)
Resolved - Left sided weakness, Cognitive issues
Gold weight, upper and lower punctal plugs, tarsorrhaphy

gman100

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Re: It Moved!
« Reply #19 on: February 16, 2010, 10:55:07 pm »
Sounds awesome! That first bit of movement must be so psychologically satisfying.
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8/4/2008 - Pilocytic astrocytoma removed
9/21/2008 - 1.0g Gold weight
6/24/2009 - 7/12 Graft + 1.6g Gold weight
Balance/Dizziness: From 0% to 75%
Double Vision: From 0% to 70%
Facial Paralysis: Corner of mouth just started moving a bit

Wwoodian

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Re: It Moved!
« Reply #20 on: February 17, 2010, 01:56:25 am »
Happy for you!!!
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Diagnosed with 1 cm AN on 10-28-09
Middle Fossa surgery on left side 11-20-09
Dr. Friedman and Dr. Schwartz at House Clinic in LA.
No hearing loss or facial nerve problems
Severe double vision and bouncy vision
Yahoo!  Double Vision gone after 3 months!
Did a full marathon 1 1/2 yrs after surgery!

Kaybee

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Re: It Moved!
« Reply #21 on: February 20, 2010, 10:19:46 am »
Nicky, thanks for reposting the info in your surgical report.  I did not think I had any facial weakness prior to surgery but when I looked back at pix from the summer (about 1-2 months prior to diagnosis), sure enough it's there.  One of my eyes was not squinting as much in sunlight as the other.  So by the time I had my surgery, I'm sure my facial nerve was really stretched.  Nevertheless, still estatic for you about your "snarl".  Keep us posted on any new movement.  I love to read those posts!
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2 x 3 x 4 cm tumor removed at Methodist Hospital in Indianapolis 10/30/09
Left facial paralyis/SSD (showed first signs of improvement at approximately 6 months post-op)

badbadbrain67

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Re: It Moved!
« Reply #22 on: February 20, 2010, 02:03:16 pm »
A victory, no matter how small, is a victory for all of us. Let me correct myself...there are NO small victories. Congrats!!!
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Nickittynic

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Re: It Moved!
« Reply #23 on: March 18, 2010, 09:53:56 am »
Just had to report my happy news that the ENT team I saw today said I'm now up to a HB 3-4/6 from 6/6! Woohoo! They said what I have now at 6 months post-resection is about what they would hope for as the maximum recovery after a 7/12 jump, so they won't be talking reanimation surgery stuff anymore (it was the original thought at 3 months post-op because I was still 6/6 and my nerve was unresponsive at the end of surgery). Yey!
I'll be posting updated pics to my blog soon if anyone's interested.
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25 year old OBGYN nurse, wife, mother of two
5.5cm x 3.1cm left side AN removed via retrosigmoid 9/09 @ Hopkins
SSD, Tinnitus, Chronic Migraines, Facial paralysis (improving!)
Resolved - Left sided weakness, Cognitive issues
Gold weight, upper and lower punctal plugs, tarsorrhaphy

saralynn143

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Re: It Moved!
« Reply #24 on: March 18, 2010, 10:43:00 am »
Fabulous news!

Keep up the healing.

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

nancyann

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Re: It Moved!
« Reply #25 on: March 18, 2010, 10:52:10 am »
Don't know how I missed this Nicki but belated WHOO-HOO ! ! I am so happy for you ! !  Continued healing my friend,
always good thoughts,  Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

moe

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Re: It Moved!
« Reply #26 on: March 19, 2010, 08:56:04 am »
So exciting for you! No re-animation surgery required! You have your hands full with work and kiddo.
Hopefully you will continue to have more facial movement. Keep smiling!! :)
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty
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