Author Topic: Symposium 2009 Pictures  (Read 83211 times)

4cm in Pacific Northwest

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Re: Symposium 2009 Pictures
« Reply #195 on: August 23, 2009, 02:23:53 pm »
I. As her description of one week indicates, she is living life to the fullest. She's back.  :)

DHM, have a great year #3. See you in September!

Steve

You have helped me very much- both on line and being there at meetings. I will cherish the TOQUE forever. Keep doing what you are doing STEVE  :-*

DHM
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

sgerrard

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Re: Symposium 2009 Pictures
« Reply #196 on: August 23, 2009, 03:37:23 pm »
I have a couple of more scenic views of Chicago from Cheryl R. to post.

In the second picture, looking down from the Hancock tower, the Drake Hotel can be identified by a row of red lights along the roof.






8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

saralynn143

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Re: Symposium 2009 Pictures
« Reply #197 on: August 23, 2009, 03:55:55 pm »
The Drake Hotel can be identified by a row of red lights?!?
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

sgerrard

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Re: Symposium 2009 Pictures
« Reply #198 on: August 23, 2009, 04:26:36 pm »
In the middle of the 2nd picture, it looks like this:



The red is running along the top of the Drake.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

saralynn143

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Re: Symposium 2009 Pictures
« Reply #199 on: August 23, 2009, 07:37:07 pm »
Thanks, Steve, I got it. I was just making a little joke at the Drake's expense.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Captain Deb

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Re: Symposium 2009 Pictures
« Reply #200 on: August 23, 2009, 07:46:20 pm »
Jim and I are already talking up plans to go to the next one.

We'll have to ask the ANA to make the ANA Forum Member ribbons in shocking pink or something so we can identify each other easier.

Jan

Well,we told you all to dress like pirates!! No missing each other then.

Maybe next time we will tie big red balloons to our good ears.

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

sgerrard

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Re: Symposium 2009 Pictures
« Reply #201 on: August 23, 2009, 08:01:54 pm »
Thanks, Steve, I got it. I was just making a little joke at the Drake's expense.

Argh. Totally missed that.  :-[

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Captain Deb

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Re: Symposium 2009 Pictures
« Reply #202 on: August 23, 2009, 08:17:23 pm »
Daisy Head Maisy!!

Thanks for all the great pictures.  You are right about this forum and the ANA being such a lifesaver--I really don't know where I would be either without all of you--my despair was so deep and overwhelming after living almost every day with a whopping migraine for two years.  My gratitude is now what is deep and overwhelming!!

I think they must dig up the palm trees every year!!  None 'a dem tings gonna survive de Chicago winter, mon!!

I really enjoyed getting to know you at the Symposium and I truly admire how far you have come in 2 years--just goes to show you that sometimes attitude is everything.

Big HUGE hugs!!

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

chocolatetruffle

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Re: Symposium 2009 Pictures
« Reply #203 on: August 23, 2009, 10:00:01 pm »
i am also kicking myself for not going!!! where is the next symposium???
chocolatetruffle


2.8 cm left AN
Translab @ House/St Vincent's 11/27/07
Drs. Brackmann, Schwartz, Wilkinson, Stefan

4cm in Pacific Northwest

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Re: Symposium 2009 Pictures
« Reply #204 on: August 23, 2009, 10:30:18 pm »
i am also kicking myself for not going!!! where is the next symposium???

Cincinnati! 2011

We want you to come!

DHM


4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

moe

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Re: Symposium 2009 Pictures
« Reply #205 on: August 24, 2009, 01:41:14 pm »
Great photo bucket photos, DHM!!!! They look so clear :)
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Debbi

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Re: Symposium 2009 Pictures
« Reply #206 on: August 24, 2009, 03:28:33 pm »
DHM - Awesome pics!  And, I loved your update - it's amazing what happens in two years, isn't it? 

Keep smiling!

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Goldie

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Re: Symposium 2009 Pictures
« Reply #207 on: August 24, 2009, 07:44:36 pm »
What great photos of everyone.  I got to meet a couple of you at the conference and kind of wish I had the photos before so I could know who was who!  Somehow those little photos on this site just don't do the trick. 

I am a post gamma knife patient (possibly failed) and will find out more next month with my next MRI.  My fear all along has been the facial paralysis that seems to accompany microsurgery, but I have to say after attending the conference that that fear was greatly eased.  Yes, some have crooked smiles, but so what?  What a beautiful bunch!  Every one of you has grace and I suspect have grown quite a bit in character after having gone through what you have.   :)  It really was very reassuring, and I just want to let you know that you made an impact of encouraging me without giving a pep talk and just being yourselves.  Like Debbi said, keep smiling!

Denise
GK 5/06 at Mayo for small AN after balance and slight hearing issues.  Progressive hearing loss following GK.
3/09 - facial spasms began.  MRI shows tumor growth.
9/09 - MRI shows further growth.  "GK failure."  Translab 10/1/09 success!  BAHA 10/8/10.

leapyrtwins

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Re: Symposium 2009 Pictures
« Reply #208 on: August 24, 2009, 08:11:22 pm »
Denise -

I'm not sure I met you at the symposium - where are you from?  and what doc did you go to for the GK?

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Goldie

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Re: Symposium 2009 Pictures
« Reply #209 on: August 24, 2009, 09:14:37 pm »
Jan, I'm from near Rochester, MN, and had my gamma knife 3-1/2 yrs ago for a small AN at Mayo Clinic by Dr. Michael Link (who is on the ANA board and was a panelist/consultant at the symposium).  As of my last MRI in March, my tumor has either started growing or I might have a second tumor along the facial nerve.  I am still hopeful microsurgery isn't in my future, but time will tell.

I'm sorry we didn't meet.  I met many people, but interestingly almost all were microsurgery patients.  I wonder what the breakdown was of GK patients, etc., attending?

I also want to add that I hope I didn't (and I didn't mean to) offend anyone with my "so what" comment about crooked smiles.  I know everyone's been through a lot and I don't want to downplay it.  (And is there a way to edit once you've posted?  I'm obviously new at this.)

Denise
GK 5/06 at Mayo for small AN after balance and slight hearing issues.  Progressive hearing loss following GK.
3/09 - facial spasms began.  MRI shows tumor growth.
9/09 - MRI shows further growth.  "GK failure."  Translab 10/1/09 success!  BAHA 10/8/10.