survery....Facial paralysis.

[CROOKEDSMILE]

At what point in your recovery did you notice your biggest improvement in function and overall appearance? This is for folks that "woke up" with facial paralysis and House Brackmann 6. In other words complete paralysis immediately after surgery. Delayed Facial Palsy usually heals pretty quick so this survery is for those people like me that woke up with total paralysis.

A. 0-6 months after surgery
B. 6-12 months after surgery
C. 12-24 months after surgery
D. 24-36 months after surgery

I am 2 years post op on July 5th, 2009 and so far I have seen my biggest improvement at C. 12-24 months.

Angie

[nancyann]

Hi Angie:   I had my AN surgery 3 years ago yesterday,  & I still have a Brackmann Scale of 6.
I woke up with facial paralysis & it never improved,  but thank science for surgeries that give
a normal face at rest ! !
Always good thoughts,  Nancy

ps:  it will be interesting to see how the survey goes - time spans when movement came back (or didn't).

[saralynn143]

So far it's B) 6-12 months, but I am only 12 months out. I'm all for even more improvement next year and beyond.

Sara

[mimoore]

Hi Ang,
It is exciting to read that I could maybe expect even more recovery.
I am like Sarah 6-12 months, I saw the biggest improvement. Surgery was 12 months ago.
Michelle 

wow three years nancyann. happy anniversary!

[jazzfunkanne]

i seen the biggest improvement 24 - 30 months , and hoping for more

[4cm in Pacific Northwest]

6- 12 months

...Then more started up again here at 18 months

The synkensis we are still working on with therapy and botox ... but in this last month more of my upper teeth became visible in my smile.

DHM

[Dan]

Most improvement first 4 months, since then very very slow gradual improvement now 21 months post OP.

Dan in Germany   

[MKLady]

B. 6 to 12 months.  I'm only at 14 months though.

[Kaybo]

Z. mine was at 147 months (thanks to the T3)        

K

[mimoore]

I am reading your post Kaybo thinking "WHAT!?! Then giggled.
You're so funny! I am so glad things are getting better for you!
Hugs Michelle 

[lori67]

Kay, I think in your case you should count the years - or maybe even the decades.  Keeps the math a little easier!   

Lori

[epodjn]

I am finding this survery is really boosting my moral. Since I'm only at 6 months and have only had slight improvement and that has been in the last two weeks I really can't add anything but it's so good to hear that for many of you the biggest jumps have been after a year. THat's really giving me hope. I also want to publicly thank DHM (4cm in Pacific Northwest) who helped me find a neuromuscular therapist. I'm so excited to get started! Let the movement begin!! (and I don't mean bowel, haha)

[4cm in Pacific Northwest]

I'm so excited to get started! Let the movement begin!! (and I don't mean bowel, haha)

Now THAT was funny!
 

DHM

[cinnamon]

mine was 6-12 months, next month will be my 3 yr anniversary. I have been doing botox treatments for a little over a year now.

Lisa

[clr]

My daughter has undergone 3 surgeries. One on 12/29/08, the next one on 1/19/09.  Her face was looking 99% normal, when she had to go for her 3rd on 6/22/09. Now, her mouth is drooping again and she is right back where she started. So, after her 1/19/09 surgery, I would say it took about 5 months for the left side (tumor side) of her face to match her right side. Who knows how long it will take now because to me, it looks more droopy than it has before. But, she is ok with it, just happy to have made it through the surgeries and that she is alive.

Cindy