My husband was diagnosed with a 3.5 mm acoustic neuroma last week. He has had partial numbness of his tongue and lip for about 6 years, but it was something he could live with and there never seemed to be a sense of urgency about having it checked out. Over the years, he mentioned it to our family dentist and internist, but there wasn't any follow up. My daughter and I urged him to see a neurologist, but he didn't think it was that much of a problem. He had also noticed a hearing loss, so he finally went for a hearing test and a significant loss was detected in his right ear. He was then sent to a neurotologist who discovered a middle ear infection that husband wasn't aware of! He said he never felt any pain. The neurotologist sent him for a contrast MRI to rule out a mass in the middle ear. The MRI was done on a Saturday and when Monday came and we didn't hear anything, I breathed a sigh of relief....but the phone rang at 8 pm with the news that there was a large tumor.
In the past week, we have been gathering information about doctors and educating ourselves about this new world we find ourselves in. The neurotologist feels surgery within the next few months is needed. We are in NYC and are seeing doctors here to get opinions. So far we have seen Ian Storpor who works with Dr Sisti. Next week, we see Dr. Sisti, Also have appointments with Drs. Roland, Seleskind and Gutin. I was also thinking of sending his records to the House Clinic for a complimentary consultation. When I called this morning, I was told I could request a doctor for the consult or without a specified doctor they would assign it to one of the staff. Any suggestions as to how to approach this consultation and the whole new world of an would be appreciated. It is great to have the resource and thanks to all of you who so generously share your experience, wisdom and support.