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Author Topic: 18 month Trilogy update  (Read 2164 times)

Betsy

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18 month Trilogy update
« on: April 24, 2009, 09:39:52 pm »
It's been awhile since I logged on but I wanted to share the good news!  My 18 month MRI shows areas of necrosis, and "overall minimal decrease in size".  I hoped for necrosis, but the decrease in size came as a pleasant surprise.

Plus, my hearing test was identical to the one taken when I was first diagnosed around two years ago.  My radiologist is happy, and so am I!  It's kinda nice to get good news, isn't it?

Betsy

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15mm left side AN, diagnosed 4/25/07, radiosurgery via Trilogy 8/22/07.  Necrosis & shrinkage to 12.8mm April 2009

Kathy M

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Re: 18 month Trilogy update
« Reply #1 on: April 25, 2009, 09:06:10 am »
Hi Betsy!

That is great news!!!!  You have to be ecstatic.  Re-growth has been a pretty recurring topic lately on the forum -  a very scary possibility in the AN world, and something that is always in the back of my mind.  It is so good to read about necrosis and reduction - I am very happy for you.   Maintaining your hearing is icing on the cake!!  Go do the happy dance!  You deserve it...

Kathy
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AN diagnosed 11/14/08, 3+cm, Retrosigmoid 1/13/09, Univ. Hosp., Cincinnati, Drs. Tew and Pensak
no facial nerve or eye issues!
3 more surgeries related to staph infections & osteomylitis over next 13 months.  New diagnosis of breast cancer.  Treatment completed 08/27/10.  Moving on!!!

Jim Scott

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Re: 18 month Trilogy update
« Reply #2 on: April 25, 2009, 01:59:34 pm »
Congratulations, Betsy!  Good news is always welcome here.  Feel free to share yours, anytime.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

cin605

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Re: 18 month Trilogy update
« Reply #3 on: April 25, 2009, 02:41:33 pm »
Woo-hoo!Congrat's!
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

leapyrtwins

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Re: 18 month Trilogy update
« Reply #4 on: April 25, 2009, 07:01:45 pm »
Wonderful news, Betsy!

Congratulations!  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

suboo73

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Re: 18 month Trilogy update
« Reply #5 on: April 27, 2009, 03:49:21 am »
Congratulations, Betsy!
As someone who would strongly consider radiation treatment, if necessary, this is wonderful!

My best wishes to you and your family!
Sincerely,
Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W
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