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Author Topic: Photo Updates ...Facial Paralysis  (Read 9869 times)

Jim Scott

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Re: Photo Updates ...Facial Paralysis
« Reply #15 on: February 17, 2009, 10:36:59 am »
Michelle:

Kudos to you for posting your series of photos that so clearly demonstrate your excellent progress in regaining facial symmetry.  Those who are dealing with post-op situations similar to yours can take heart from the obvious, real-world healing you're experiencing as you slowly but steadily regain normalcy.  Yes, the pace is glacial and often frustrating, we know, but those photos are awesome in their ability to show how AN post-op facial mobility is gradually regained.  I can't thank you enough for the courage and compassion you've demonstrated with the posting of that photo series. Bravo! 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

GM

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Re: Photo Updates ...Facial Paralysis
« Reply #16 on: February 17, 2009, 07:02:55 pm »
Thanks for posting your photo's...what a great recovery!!   It took a great deal of personal courage to post them...thanks.
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Originally 1.8cm (left ear)...Swelled to 2.1 cm...and holding after GK treatment (Nov 2003)
Gamma Knife University of Virginia  http://www.medicine.virginia.edu/clinical/departments/neurosurgery/gammaknife/home-page
Note: Riverside Hospital in Newport News Virginia now has GK!!

jazzfunkanne

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Re: Photo Updates ...Facial Paralysis
« Reply #17 on: February 18, 2009, 03:29:28 am »
you are looking great, i am seeing improvements in my face at just over two years, i am now feeling more confident to talk to people i meet in the street, where as before i would have hurried by them.
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over 4.5cm AN removed dec 06

LisaP

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Re: Photo Updates ...Facial Paralysis
« Reply #18 on: February 18, 2009, 06:12:27 am »
thanks for sharing your photo, for those of us in the "watch & wait" status, everybit of information is useful.  Your smile is more beautiful then ever.

thanks again

LisaP ;D
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

mimoore

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Re: Photo Updates ...Facial Paralysis
« Reply #19 on: February 18, 2009, 07:17:27 am »
Thank you everyone. The AN experience is quite a journey isn't it?
K the internal strength the you and others with permanet facial paralysis hold is extremely admirable. No one can truly understand how much courage it takes to take the bull by the horns and live your life to the fullest. Hope is a wonderful thing and today it is possible to make facial improvements  making permanent facial paralysis better. I pray for you and others taking that journey that you continue to improve and enjoy lifes blessings.
Hugs to all - life is good.
Michelle  ;D
I still have remaining tumour to deal with... but right now I can't go there. I know though that the strength is deep inside should I need it.
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

leapyrtwins

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Re: Photo Updates ...Facial Paralysis
« Reply #20 on: February 18, 2009, 07:51:02 am »
Michelle -

the difference in your photos is phenomenal.

Thanks so much for posting them - and congratulations on the progress  ;D

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

LADavid

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Re: Photo Updates ...Facial Paralysis
« Reply #21 on: February 20, 2009, 10:21:27 am »
Great pictures, Michelle!  And as others have said, thank you for doing a picture progression.  It is a huge help to those who are in the initial stages to see that there is improvement.
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Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

MKLady

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Re: Photo Updates ...Facial Paralysis
« Reply #22 on: February 23, 2009, 08:49:55 am »
Michelle,

Great progress.  Thank you so much for sharing!

Susan
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Translab 4/10/2008; 1.3 cm; total facial paralysis left side.

MAlegant

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Re: Photo Updates ...Facial Paralysis
« Reply #23 on: February 23, 2009, 09:29:33 am »
Michelle,
The pictures show an amazing recovery.  You look fabulous.
Marci
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

Tisha

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Re: Photo Updates ...Facial Paralysis
« Reply #24 on: February 23, 2009, 11:15:09 am »
That is tremendous!  That is wonderful for you to share to give hope for others!  You look wonderful, look out SUMMER!

Tisha
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1.7 x 1.0 x .9 cm (diagnosed Oct 2008)
1.8 x 1.2 x 1.1 cm  (July 2010-swelling)
1.5 x .9 x .9 cm  (Mar 2013 - 5 yr MRI)
Cyberknife at Stanford, week of 1/12/09 -  Drs. Chang and Soltys

lori67

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Re: Photo Updates ...Facial Paralysis
« Reply #25 on: February 23, 2009, 01:26:22 pm »
Michelle,

Looking good!!!  And only 8 months out!  Good for you!  You've got lots to smile about!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

moe

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Re: Photo Updates ...Facial Paralysis
« Reply #26 on: February 27, 2009, 09:33:07 am »
What dramatic results! I'm new to the forum. Can you tell me what kind of surgery you had? I had the 12/7 one year ago, and am not getting great results- some results, but not enough.
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

mimoore

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Re: Photo Updates ...Facial Paralysis
« Reply #27 on: March 01, 2009, 03:55:33 pm »
Hi Maureen,
I had retrosigmond on June 4th, 2008 for partial removal of my AN. My facial nerve was pretty beaten up but not cut. I did not have any movement for 3 months - nothing. Most of my recovery has occured between 6 and 8 months.
I hope that you find the surgery that is right for you so you to can experience movement.
Hugs Michelle  ;D
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

moe

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Re: Photo Updates ...Facial Paralysis
« Reply #28 on: March 01, 2009, 11:44:22 pm »
BEEEAUUUUUUTIFUL!!!!!! I hope to look the same some day...... :-\
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

msmaggie

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Re: Photo Updates ...Facial Paralysis
« Reply #29 on: March 02, 2009, 12:47:33 pm »
That really is remarkable progress from month 3 to month 8.  Thank you for sharing your journey with the rest of us.  You truly look wonderful!  Just imagine what the 1 year mile marker will bring :D

Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.
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