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Author Topic: what would you want back ?  (Read 6681 times)

satman

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what would you want back ?
« on: December 05, 2008, 10:53:26 am »
just out of curiousity, what would you like to have back, your smile,hearing or blink reflex ?
me personally i would like to have my blink reflex back
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kicked my little 8cm buddy to the curb-c ya !

lori67

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Re: what would you want back ?
« Reply #1 on: December 05, 2008, 01:08:21 pm »
Definitely my smile.  I never thought I had a perfect smile before, but I sure would appreciate having it now!   ;D

I asked Santa for it for Christmas this year.  Let's hope!!!!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

nancyann

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Re: what would you want back ?
« Reply #2 on: December 05, 2008, 01:39:58 pm »
That's a tough one John...hhhhmmmmm...  smile or blink, blink or smile.......SMILE, no wait,  BLINK (I think)
Always good thoughts,  Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Syl

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Re: what would you want back ?
« Reply #3 on: December 05, 2008, 02:15:33 pm »
Pain free days.

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

cin605

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Re: what would you want back ?
« Reply #4 on: December 05, 2008, 03:07:24 pm »
To be able to move freely w/o feeling like i have a cinder block in the right side of my head. :(
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

amymeri

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Re: what would you want back ?
« Reply #5 on: December 05, 2008, 03:31:45 pm »
Early on I would have said my blink...the dry eye was painful and made my daily life uncomfortable.  Now I would say my smile.  Or just a more normal face.
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Amy

4 cm right AN removed restrosigmoid 4/13/06
Partial facial paralysis, SSD and trigeminal numbness for now

calimama

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Re: what would you want back ?
« Reply #6 on: December 05, 2008, 05:12:36 pm »
smile for sure.

in the early days i thought the eye was the worst part (ok, for me was the double vision, then the eye). but now having dealt with eye care for so long you kind of get used to the glasses, drops, ointment, tape etc. But the smile cannot be helped or corrected so easily.

hearing losses + tinitus can be pretty nasty at times too... like in a restaurant... but most of the time it is no bigger. I am glad i work in an office... relatively quiet workplace.

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Left 2.9cm CP Angle AN discovered Jan 2008. Retrosig surgery June 2, 2008 Toronto, Canada. Facial paralysis and numbness, double vision (4th nerve), SSD. DV totally recovered in 4th month; palsy started to recover slowly around month 7. Had twin boys 13 months after surgery. Doing great.

Debbi

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Re: what would you want back ?
« Reply #7 on: December 05, 2008, 05:26:48 pm »
Well, since my smile is slowing coming back, I'm going to have to go for tears.  I would just love to produce some big ol' tears from my AN eye.  And, yes, the blink would be nice too.

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Brendalu

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Re: what would you want back ?
« Reply #8 on: December 05, 2008, 05:32:59 pm »
Definitely my hearing.  It was perfect before the surgery.  My smile has always been lopsided so it doesn't matter that it isn't perfect.  I can blink just fine and don't have dry eye, so hearing gets my vote!

Brenda
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Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

Sue

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Re: what would you want back ?
« Reply #9 on: December 05, 2008, 05:57:25 pm »
I can blink and I can smile. However, I have limited hearing in my AN ear.  But, of my symptoms that I'd like to get rid of, it depends on the day.  Most days it's tinnitus, and the other days it's facial numbness.  My hearing is at least 3rd on the list.

Sue in Vancouver USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


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Catflower

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Re: what would you want back ?
« Reply #10 on: December 05, 2008, 06:58:21 pm »
I can blink & smile, but oh do I miss my hearing.  It was perfect before surgery.  I think if I could hear on both sides it would probably help my balance and "wonky" head.

Linda
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wendysig

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Re: what would you want back ?
« Reply #11 on: December 05, 2008, 07:14:56 pm »
I'm with Linda, I'm fortunate enough not to have facial problems, but I do miss my hearing, especially directionality.  I forgot where I parked today so I set off the alarm from my key fob, I still couldn't figure it out and had to ask someone else in the parking lot which direction they thought the  sound was coming from.  Not exactly a great idea, I know, but as it turned out,  I was actually looking in the wrong direction.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Lainie181818

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Re: what would you want back ?
« Reply #12 on: December 05, 2008, 07:45:36 pm »
I would want my smile back, and most of all the confidence that went with it. But they are coming back, just in a different way.
Lainie
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LADavid

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Re: what would you want back ?
« Reply #13 on: December 05, 2008, 08:06:27 pm »
Definitely my smile.  It's my personality.  I don't feel like me without it. But I started Botox treatments today and hopefully soon it will start to return.

But I do have to admit, the balance/wonkheadedness issue is a close second.

David
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Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

texsooner

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Re: what would you want back ?
« Reply #14 on: December 05, 2008, 08:22:10 pm »
I'm with Debbi. I'd like to have tears from the AN eye. A little less tinnitus would be nice too.

Patrick
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3.5cm left side AN; 11 hour retrosigmoid surgery 8/11/08 @ Memorial Hermann, Houston - Texas Medical Center with Drs. Chang and Vollmer; home on 8/13/08;
SSD(w/tinnitus); dry eye; Happy to be here and feeling good.
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