Author Topic: Wonderful explanation of balance and balance problems - Newbies read this!!  (Read 21236 times)

Sue

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Re: Wonderful explanation of balance and balance problems
« Reply #15 on: October 28, 2009, 03:15:56 pm »
Your welcome.  Everything is all interconnected.  One thing affects another thing which affects another thing.  Who would have thought that some minor brain misfires would be the result of balance problems.  That never would have occurred to me.

Sue in Vancouver USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

nancyann

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Re: Wonderful explanation of balance and balance problems
« Reply #16 on: October 28, 2009, 05:24:27 pm »
Sue:  I just got to this post,  all I can say is WOW,  doesn't the shoe fit for all of us ! !
Thank you for the article.   Always good thoughts,  Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

lawmama

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Re: Wonderful explanation of balance and balance problems
« Reply #17 on: October 28, 2009, 06:27:38 pm »
This was fantastic!  It made me feel so much better about what I have been feeling.  I made my husband listen while I read parts of it to him so he could see that I'm not making this stuff up!

Lyn
9mm X 7mm tumor (left side), diagnosed 10-15-09
Retrosigmoid on 12-14-09 by Drs. Antonelli and Lewis (my heroes!)
Shands in Gainesville, FL
SSD, but no facial issues.  Mild tinnitus.

Sue

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Re: Wonderful explanation of balance and balance problems
« Reply #18 on: October 28, 2009, 07:54:03 pm »
For several years prior to my diagnosis I was having difficulty being a passenger in the car.  It was the weirdest thing.  I became uncomfortable and did the "braking", you know?  I was going with my friend to her out of town jobs for a while, keeping her company, and I'm sure I made her nervous because I was a screaming mimi when we'd get into heavy traffic.  I felt badly about it, but couldn't help myself.  NOW I know why!  I apologized to her and explained the problem when I found all this out. 

Sue in Vancouver, USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Sue

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Re: Wonderful explanation of balance and balance problems
« Reply #19 on: October 30, 2009, 06:49:36 pm »
Yes, Donnalynn,  you were the angel who found this.  A little bit down from the start of the posts, you are given credit, finally!!  I think everybody should read this!!

Sue in Vancouver, USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

jaylogs

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Re: Wonderful explanation of balance and balance problems
« Reply #20 on: October 30, 2009, 09:53:02 pm »
Thank Sue, and especially Donnalynn for sharing this with us.  It was really an AHA moment for me reading it, so I am going to pass this on to my family and now maybe that won't think me so crazy...well, ok...they still will,but at least I got a plausible excuse now! lol
Jay
8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

Sue

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Re: Wonderful explanation of balance and balance problems
« Reply #21 on: November 02, 2009, 01:47:43 am »
Yep, that old "I've got a brain tumor, what's your excuse?" thing.  hee hee.  Although I do hate to say I have a brain tumor, because it's not "really" a brain tumor.  But "I've got a skull based tumor, what's your excuse?" just doesn't have the same ring to it!  ;)

Sue in Vancouver USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

sgerrard

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Re: Wonderful explanation of balance and balance problems
« Reply #22 on: November 10, 2009, 10:26:40 pm »
In case you are wondering, I have moved the discussion of a Winter Gathering in Canada to a new topic in AN Community:

http://anausa.org/forum/index.php?topic=11000.0

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Tricia (horsekayak)

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Re: Wonderful explanation of balance and balance problems
« Reply #23 on: November 10, 2009, 11:56:29 pm »
Hoo boy...i've got to chime in on this one.  Just read the article, and have bookmarked it, and have copied the link and sent it in email to myself so i can forward it on to several friends and family.  ...i have to admit i was beginning to think i was losing my mind when i started noticing my typing was becoming so slow and contained with tons of reversed letters or doubled letters, etc.  (It took me a while to get this post "cleaned" up so it is readable)  AFter reading this article i realize that i'm not a "drama queen", this is real.

This week I finally had to tell my working partner that I need to take a leave of absence.  It's the job of my dreams, but she and I agree that we cant bill our clients for the time it takes me to type and retype and correct things for folks who are paying by the hour for our work. And believe me, my work speed, thought speed, typing speed has dropped.

 Up until now all this (even the existence of the AN) just seemed unreal.  Now it is like things are becoming real.  Yuck.  I am not even ridiing horses right now and that really bothers me.  I do have a great friend who picks me up and drives me to the barn so i can sit with / and be around/ the horses .  Great therapy, and i now have a great excuse for not being able to muck out stalls!!!  Altho at this point i will be glad to once again have the balance to shovel horse poop !

Tricia (horsekayak)-Diagnosed 8/10/09
1.5 cm right side AN
Gainesville, GA (near horses and Lake Lanier)
Linac radiosurgery at Shands Hospital/Univ of Florida  12/1/09  Go Gators!!!

"Excellence is to do a common thing in an uncommon way"...BT Washington

sgerrard

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Re: Wonderful explanation of balance and balance problems
« Reply #24 on: November 11, 2009, 12:11:50 am »
Tricia, you need to read about Vonda, who goes by arkansasfarmgirl.

She was pretty despondent about not being able to ride horses for a while, I think she may even have sold hers. Now she is back in the saddle and going great guns, so to speak. Here is a sample: http://anausa.org/forum/index.php?topic=10051.msg115340#msg115340

You are embarking on what we like to call an AN journey, but you will make it to the other side and discover life after AN ain't so bad after all. You'll see.  ;)

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Sue

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Re: Wonderful explanation of balance and balance problems
« Reply #25 on: November 11, 2009, 01:52:24 pm »
So happy this got popped back up for the newbies.  I thank Donnalynn for finding it in the first place.  This just should be in the newbie packet of information that the doctor hands you.  Not everybody gets all of these symptoms, but I think everybody has something, however subtle, and it sure helps to have it explained the reason WHY this is happening.  Who knew that tiny little balance nerve would have such an important part to play in our lives. 

Sue in Vancouver USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Yvette

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Re: Wonderful explanation of balance and balance problems
« Reply #26 on: November 16, 2009, 09:37:08 pm »
Excellent article, thank you!!!
3cm translab Jan. 2007 performed at Mayo Clinic MN. by Drs. Link and Driscoll. SSD but doing great!

CHD63

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Re: Wonderful explanation of balance and balance problems
« Reply #27 on: November 17, 2009, 07:46:10 am »
Glad this information came back up to the top again ..... all newbies need to read it because it answers many, many questions on post-treatment issues.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Sue

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Re: Wonderful explanation of balance and balance problems - Newbies read this!!
« Reply #28 on: February 14, 2010, 03:07:09 pm »
Up to the top it goes!
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Sue

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Bumping this to the top.  I think this is so informative....everyone should read this.

Pop quiz:
Why am I dizzy in the dark?
I keep forgetting things.  Why is that?
I feel like I have fog in my brain.  I wonder why?
I'm really tired....what's that got to do with having an AN, for Pete's sake?
I'm okay at home, but take me to the mall, and I go crazy....doesn't make sense...
Why do I have car anxiety? 

Read this article and find out.  But wait, there's more!!  Find out how your balance system is a three way deal. 
Your Amazing Balance System.  And you don't have to pay a dime to find out all about it!!   Not even $19.99.  ;D ;D ;)

Okay, trying to be clever....not sure it worked.   ^-^

Sue in Vancouver, USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode