Author Topic: Exciting news  (Read 2948 times)

saralynn143

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Exciting news
« on: June 04, 2009, 08:38:16 am »
At one year and one day post-op, I can close my left eye not quite halfway WITHOUT closing the right one.

I'm taking all the good news I can get.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Debbi

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Re: Exciting news
« Reply #1 on: June 04, 2009, 08:47:18 am »
Sara, wonderful news!!  I still have trouble closing the AN eye without my good eye closing too, so I think that takes time and practice.  I'm doing a happy-dance (AN style) for you!

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

leapyrtwins

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Re: Exciting news
« Reply #2 on: June 04, 2009, 11:11:17 pm »
Sara -

great milestone!  Congratulations!  ;D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

ppearl214

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Re: Exciting news
« Reply #3 on: June 05, 2009, 06:11:07 am »
Sara,

congrats!  well done and continued wellness wishes your way!

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Kaybo

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Re: Exciting news
« Reply #4 on: June 05, 2009, 02:09:37 pm »
YIPEEEEEEEE!!!!!   ;D
K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

CROOKEDSMILE

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Re: Exciting news
« Reply #5 on: June 07, 2009, 02:52:03 pm »
Awesome Sara,
It is like little ones getting excited about riding a bike without training wheels for the first time. Who would ever know that we would be sooooooooooo excited to blink and close our eyes. Boy...things we took for granted for all these years. Helps put things into perspective, huh? So glad for you sweetie. I know exactly how you feel as I am closing my eye better but my blink is still delayed/slower than my good side. Guess it gets stronger and faster over time.
Angie
« Last Edit: June 07, 2009, 04:47:37 pm by CROOKEDSMILE »

wendysig

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Re: Exciting news
« Reply #6 on: June 07, 2009, 11:52:47 pm »
Congratulations Sara!

All victores should be celebraded!!!  I hope things continue to improve.

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Jim Scott

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Re: Exciting news
« Reply #7 on: June 08, 2009, 04:23:09 pm »
Sara ~

We always celebrate any ANers accomplishment, no matter how 'small' it might seem to others.  Your ability to partially close one eye is no exception.  Congratulations...and keep pushing!  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

mimoore

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Re: Exciting news
« Reply #8 on: June 09, 2009, 07:39:11 pm »
That is exciting Sara. Okay so just so I can try this... is your good eye closed half way as well? Are you looking straight ahead and just closing your AN side eye and the other is staying completely open.
I want to try.
Michelle  ;)
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

 


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