Author Topic: Beaten Up  (Read 8068 times)

yardtick

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Beaten Up
« on: August 30, 2008, 11:58:48 am »
From the top of my eyebrow, the leftside of my nose, down along my jaw and part of my neck feels like Mike Tyson has been using my face as a punching bag.  Not to mention I have a headache.  Am I the only one who feels this way?  Is it because my facial nerve is slowly being strangled by the tumour?  Every other day this week I have been battling this.  My ear is also bothering me, its so itchy inside.  The bone behind my ear is so sore to touch.  The entire area feels like it is swollen and I cannot lay on it.  I really feel like I've been beaten up!!  I see my GP on Thurs and the specialist on the 24th.

Anne Marie :'(
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Kaybo

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Re: Beaten Up
« Reply #1 on: August 30, 2008, 01:18:17 pm »
Anne Marie~
I am so sorry you are having this pain...I hope that the doctor can do SOMETHING to ease your discomfort.  I will say a little prayer for you!!

<3  <3  <3  <3  <3  <3  <3
(sideways) Hearts to YOU!!

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

LADavid

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Re: Beaten Up
« Reply #2 on: August 30, 2008, 03:37:38 pm »
I feel very badly for you, Anne Marie.  That must be something very grueling to deal with.  I do have face pain, but it comes from the stress of bunched up muscles that are confused by synkinesis.  And the pain is nothing compared to yours.

My prayers are with you.

David
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

Debbi

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Re: Beaten Up
« Reply #3 on: August 30, 2008, 03:46:42 pm »
Anne Marie-

I am just so sorry that you are going through this.  I hope that your doctors come up with a plan this week to get rid of the pain.  What you are describing makes my random head pains pale in comparison.  Try to rest, okay?  And, have Louie make you something tasty to eat...

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

nancyann

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Re: Beaten Up
« Reply #4 on: August 30, 2008, 04:28:57 pm »
Anne Marie:  I'm also sorry this is happening to you.   Sending healing thoughts & prayers your way.    Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

leapyrtwins

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Re: Beaten Up
« Reply #5 on: August 30, 2008, 08:18:16 pm »
Anne Marie -

sorry to hear you are having such bad pain  :'(

Thursday seems like a long time to wait when you are feeling this way  :(  Is there any way the doctor could move your appointment up?  Or maybe prescribe something that would help alleviate the pain before your appointment?  Perhaps you should contact him.  I know it's a weekend, but surely he has an answering service that could reach him.

Kisses to you  :-*

Jan

Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lori67

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Re: Beaten Up
« Reply #6 on: August 30, 2008, 09:43:04 pm »
Anne Marie -

I agree with Jan that it sounds like a long time to suffer!  Maybe if you call, he can at least suggest something you can do to be comfortable until your appointment.  I know when the inside of my ears itch, it's allergy related.  That wouldn't explain the pain, but maybe the itchiness.

And I know you feel like Mike Tyson has beaten you up, but if he actually had, you'd be missing your ear altogether, so it probably wouldn't hurt or itch!   :D  Sorry, couldn't resist and I was hoping to get you to laugh!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

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Re: Beaten Up
« Reply #7 on: August 31, 2008, 10:46:13 am »
And I know you feel like Mike Tyson has beaten you up, but if he actually had, you'd be missing your ear altogether, so it probably wouldn't hurt or itch!   :D  Sorry, couldn't resist and I was hoping to get you to laugh!

I don't know if this made Anne Marie laugh, but it surely made me chuckle!

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Mickey

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Re: Beaten Up
« Reply #8 on: August 31, 2008, 08:16:26 pm »
Hope you feel better Ann Marie! Prayers are with you, Mickey

hruss

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Re: Beaten Up
« Reply #9 on: September 01, 2008, 01:05:46 pm »
Anne Marie ,
how are yo today?

Hrissy
4.5cm right AN pressing on the brain stem, dn Sept 2007
2 Retrosigm surgeries in Oct 2007 and Jan 2008 by the Bulgarian prof. Kyrkeselian partially removed.
3rd retro surgery in Hannover,Germany by prof Samii, Oct 2008. SSD
Got rid of my bugger, temp facial paresis
hrissysexperiences.blogspot.co

yardtick

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Re: Beaten Up
« Reply #10 on: September 01, 2008, 07:49:04 pm »
I had a pretty good day today.  Thanks everyone for your concern.  Tomorrow is another day and I'm hoping for two in a row.  It will be a record considering how the last few weeks have been.

Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

yardtick

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Re: Beaten Up
« Reply #11 on: September 08, 2008, 05:03:27 pm »
What a day today it is!!  I'm back in the neurontin since Friday and it is helping.  I still have the headaches and all of my other complaints but its not as frequent or intense, so I'm coping better.  Today is the 2nd year anniversary of my 1st surgery and late this afternoon I got a phone call from the insurance company and.... it looks like its a go for my long term disability.  I'm faxing over the written MRI and CT reports.  I'm doing the "Happy Dance" Steve.  I just hope I don't loose my balance and break my neck! ;D

I will hear more tomorrow afternoon.  I can feel the stress being lifted off of my shoulders.  My benefits will remain in tacked.  Thank God!  Neurontin, Effexor, Toradol, Ativan and all of Louie's meds are a fortune.  My boys all have dental appointments this month and we know how expensive that is. 

I'll keep everyone posted,
Anne Marie
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Debbi

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Re: Beaten Up
« Reply #12 on: September 08, 2008, 05:16:07 pm »
Anne Marie-

This is definitely some good news!  I will join you in the bobbly happy dance.  I hope this is just the beginning of a lot more good news - you deserve it.

Keep us posted, okay?

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Kaybo

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Re: Beaten Up
« Reply #13 on: September 08, 2008, 05:43:47 pm »
Anne Marie~
Glad you got some good news!!   ;D
K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Jim Scott

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Re: Beaten Up
« Reply #14 on: September 08, 2008, 05:58:42 pm »
Anne Marie:

I've followed this thread but neglected to post earlier.  I'm happy to do so now as it means I can offer you my congratulations on (a) being approved for disability and, (b) getting at least some relief from your headaches, etc.  Go ahead and do the Happy Dance but just be sure to do it where you have something to grab onto or at least do it on something soft, like your bed.  :D

I wish you much more good news and of course, even better days ahead.  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.