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Author Topic: I survived  (Read 12899 times)

yardtick

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Re: I survived
« Reply #45 on: July 26, 2008, 08:40:45 am »
Thanks Jan & Debbi for the words of encouragement!  We had company last night and it was midnight before they left.....poor Louie was up at 6:00 am for work.  As soon as they left I run for the computer, I wanted to check in to see how Wendy was doing.  Sounds like she is on her way to recovery.  What a relief!!  I think we all hold our breath collectively until we hear our friends are doing. 

I slept until 10:00 am..............I was really tired, I'm normally up before 8:00am.  No plans for today, except a piece of Italian rum torte or two and NO company tonight!!

I need a cappuccino ;)

Anne Marie
 

 
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

4cm in Pacific Northwest

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Re: I survived
« Reply #46 on: July 26, 2008, 08:56:45 am »
I need an Oregon hazelnut  caramel latte... ;)

Yawn

DHM
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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

Debbi

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Re: I survived
« Reply #47 on: July 26, 2008, 09:11:59 am »
Oh, could you have one for me, DHM - and Anne Marie, you'd better have a piece of that rum torte for me as well!

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

nancyann

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Re: I survived
« Reply #48 on: July 26, 2008, 09:13:29 am »
Hi Anne Marie:  Congratulations to you ! (I haven't been on the forum much, so I notice I'm a bit late).    So glad to hear all went well.

Always good thoughts,  Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

yardtick

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Re: I survived
« Reply #49 on: July 26, 2008, 09:31:56 am »
Come on up Debbi......

I've got just about half left.  I'll see you in about 10-12 hrs.  I'll leave the light on and the key underneath the flower pot ;)

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

4cm in Pacific Northwest

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Re: I survived
« Reply #50 on: July 26, 2008, 09:52:57 am »
Nancy Ann,

You are back!

I missed you...

Hopefully you have been off somewhere fun?!?

DHM (the old "4")
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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

nancyann

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Re: I survived
« Reply #51 on: July 26, 2008, 12:52:00 pm »
Hi there '4'      I've been lurking around but I have so much difficulty keeping up with everyone on the forum, I don't know why, I just find it overwhelming alot of the time.  I had my platinum weight put in 2 weeks ago, have had some cornea issues that are clearing up,  along with blood pressure problems,  unfortunately nothing fun.

I'm always glad to see others are doing so well (including you !).

Always good thoughts,  Nancy
Logged
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

yardtick

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Re: I survived
« Reply #52 on: July 26, 2008, 03:37:27 pm »
Nancy,

I noticed also you hadn't posted in awhile.  So sorry to hear about your BP problems, are you on med's or are you watching it with your diet?  I hope this new platinum weight does the trick for you.  Good to hear your cornea issues are clearing up. 

So glad you are on the road to recovery.  You have been missed!!

Anne Marie
Logged
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

sgerrard

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Re: I survived
« Reply #53 on: July 26, 2008, 03:58:09 pm »
Hi Nancy,

I am also glad to see you are still around. I hope the latest batch of issues clears up soon; I think you have had your share already.

Always good thoughts back at you.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

nancyann

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Re: I survived
« Reply #54 on: July 26, 2008, 05:14:56 pm »
Hi guys:     Yes Anne Marie, I was on then off now on again with the blood pressure meds, had an echocardiagram yesterday,  so I'll see what's up.
& this eye weight is PERFECT ! !    1.6 grams       
I tell ya Steve, between work & doctors' appts. lately, I'm pooped !

Always good thoughts,    Nancy
Logged
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

yardtick

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  • I have to keep smiling, or else I WILL cry.
Re: I survived
« Reply #55 on: July 26, 2008, 07:29:57 pm »
Okay this is a inquiry for all of the medical staff out there.  My incision is driving me crazy, tender, itchy and it feels really tight, so do you think it would be all right for me to put some polysporin on it.  Even the area where I was buzzed is irritated.  Its like I can feel my hair growing in.  Sounds weird....I know ???

Anyone suffering today from weather related headaches?  Violent thunderstorms roller through again!  I had to take 2 t-3's and go to bed this afternoon.    I can't believe I slept since I slept for 10 hrs last night.  No dinner tonight for my family...it was leftovers and lots of torte.

Anne Marie
Logged
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

leapyrtwins

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Re: I survived
« Reply #56 on: July 26, 2008, 08:36:55 pm »
Anne Marie -

I'm no medical person, but I think polysporin would be okay.  I put polysporin on my BAHA incision and it wasn't a problem.

Nancy -

nice to hear from you.  You've been missed!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

yardtick

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Re: I survived
« Reply #57 on: July 30, 2008, 02:16:18 pm »
I survived another hectic day!!!  My stitches are out, thankfully and of course the Dr was admiring his handy work.  The pathology reports are not back, but once they are he will call me.  I really do not need to see him for another three months, unless something comes up.  I'm also to wean myself of the neurontin in two weeks.  He wants me completely healed from this surgery before I think about returning to work.

So I'm hoping that after I'm off the med's I will not have the killer headaches and the back of my scar will no longer hurt.  I'm also hoping to drop the weight I gained from the med's!!!  I'm not a fan of the extra lbs I've been accumulating.  I also hope the fatigue will dissipate.  I have never slept more than I have slept in the past week. 

Well I'm off tonight to see Momma Mia.....

Anne MArie
Logged
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

ppearl214

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Re: I survived
« Reply #58 on: July 30, 2008, 02:31:46 pm »
great news, Anne Marie.. at when you see the movie.... look for C. Baranski and J. Walters singing to M. Streep... check out their "microphones"... you'll know what I mean! :)  Saw it this past weekend... enjoy!

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

wendysig

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Re: I survived
« Reply #59 on: August 01, 2008, 04:31:54 pm »
Hi Anne Marie -
Just wanted to stop in and thank you for your good wishes about my surgery.  Tell Louie he brought me good luck and I hope he had a wonderful birthday!  If any of that rum torte is left have a piece for me too --  it sounds heavenly!!  I'm glad you seem to be doing so well.  I'm sure waiiting to get the pathology report  is not easy.  I am hoping to see Mama Mia too and hope I will be up to it while it is still playing in the theaters.  Let me know how it is!

Best wishes and crossing all figners and toes for you,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!
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