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Author Topic: Marci's (MAlgent) Surgery Update  (Read 17664 times)

Debbi

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Marci's (MAlgent) Surgery Update
« on: July 22, 2008, 12:44:43 pm »
Hi all-

I just got a very quick email from Marci's friend, Andrea, saying that she made it through surgery very well and that she is still in recovery. Here's what Andrea said:

"The surgery was successful and in fact went as well as it possibly could have.  She's out of surgery (and is offering ARS tickets to everyone in the vicinity!)."

I will post back as soon as I hear anything else.  I'll also copy everyone's comments into one email to Andrea so she can read them to Marci later.

Marci - we're all cheering you on!!!!

Debbi, Marci's press secretary
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

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Pembo

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Re: Marci's (MAlgent) Surgery Update
« Reply #1 on: July 22, 2008, 01:14:16 pm »
Thanks for the update Debbi. It's good to hear that she is out of surgery so EARLY! I was in Marci's town this morning and she has been in my thoughts......Go Marci.......
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Surgery June 3, 2004, University Hospitals Cleveland, BAHA received in 2005, Facial Therapy at UPMC 2006

Jim Scott

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Re: Marci's (MAlgent) Surgery Update
« Reply #2 on: July 22, 2008, 01:21:47 pm »
Thanks Debbi.

This is excellent news - very encouraging.  Apparently, prayers have been answered.  We await further news but are quite pleased with what we have, now.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Kathleen5306

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Re: Marci's (MAlgent) Surgery Update
« Reply #3 on: July 22, 2008, 03:16:57 pm »
Marci

You are my hero!  I have been thinking about you all day and am so glad your surgery went well and that now you can start recovering.  Take care of yourself and let your body heal.  I will keep thinking of you and look forward to more details about your progress.

All the best,

Kathleen
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Right side AN 19 x 9 x 8 treated CK 2002
Stanford Dr. Chang and Dr. Gibbs
Total hearing loss and tinnitus
Tumor has grown since CK treatment
Measures 20 x 13 x 14 June 2008
Translab Surgery HEI 7/30/2008
Dr. Friedman and Dr. Schwartz

Pooter

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Re: Marci's (MAlgent) Surgery Update
« Reply #4 on: July 22, 2008, 04:37:07 pm »
Marci - Great news!  I'm glad the surgery went well.  Now, let your body heal.  Take it easy as long as you can!  :)

Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

wendysig

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Re: Marci's (MAlgent) Surgery Update
« Reply #5 on: July 22, 2008, 05:39:32 pm »
Hi Marcii -
Conggrats!  It sounds like you are dong great and I am very happy to hear that !!  I look forward to reading further posts about your experience.  Wishing you a smooth and speedy recovery.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

wendysig

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Re: Marci's (MAlgent) Surgery Update
« Reply #6 on: July 22, 2008, 05:40:31 pm »
Debbi -
I forgot to say thanks for the update on Marci!

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

yardtick

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Re: Marci's (MAlgent) Surgery Update
« Reply #7 on: July 22, 2008, 05:46:07 pm »
Way to go my surgery sister.  Looks like the two of us kicked some butt today!!

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

leapyrtwins

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Re: Marci's (MAlgent) Surgery Update
« Reply #8 on: July 22, 2008, 07:12:02 pm »
Marci -

welcome to postie land  ;D

Glad to hear things went well.  I was thinking a lot about you and I'm so glad that Andrea updated Debbi so fast - it takes away a lot of our anxiety here - and we're not even the ones who had the surgery today  :D

You'll be back among us and posting again before you know it.

Get lots of rest!

Jan

 - many thanks to Press Secretary, Debbi.  Hey, Debbi, how does this salary compare to the moderator's salary?  I've been thinking of taking on another job to pay the bills  ;)
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Tamara

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Re: Marci's (MAlgent) Surgery Update
« Reply #9 on: July 22, 2008, 08:18:01 pm »
Marci,
  Welcome to the other side.  It looks like things went well, and we'll be waiting for further updates.  Quite a trip, isn't it?  Hope to "see" you back online when you feel up to it.  May your recovery be swift and uneventful!

Hugs,
Tammy
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7 mm AN left side
translab 6-12-08
postop issues including CSF leak, eye issues, and facial palsy.  All issues resolved at 9 mos. except slight facial palsy & weakness.  Continuing to improve...

sgerrard

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Re: Marci's (MAlgent) Surgery Update
« Reply #10 on: July 22, 2008, 08:32:31 pm »
Please give Marci a round of wild applause for me (she asked for it).

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

LADavid

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Re: Marci's (MAlgent) Surgery Update
« Reply #11 on: July 22, 2008, 08:41:12 pm »
Yea, Marci!!!!!  Please keep us posted.  It won't be long before you're back running and singing.

And Jan, I'm still waiting for those checks to roll in.  I'm thinking that you may not want to give up your day job (as we say in the HWood biz).

David
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Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
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Kathleen5306

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Re: Marci's (MAlgent) Surgery Update
« Reply #12 on: July 22, 2008, 08:52:35 pm »
Debbi

You do a great job as press secretary.  For my surgery next week, should I have my Vice President of Communications (a totally unpaid position to my very bestest friend!) contact you, or should she just go direct?
I am still a newbie and trying to figure out the ropes, although I am only 7 days from surgery.  I still cannot beilive I joined this forum just one month ago and here we go to surgery next week!

Kathleen
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Right side AN 19 x 9 x 8 treated CK 2002
Stanford Dr. Chang and Dr. Gibbs
Total hearing loss and tinnitus
Tumor has grown since CK treatment
Measures 20 x 13 x 14 June 2008
Translab Surgery HEI 7/30/2008
Dr. Friedman and Dr. Schwartz

leapyrtwins

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Re: Marci's (MAlgent) Surgery Update
« Reply #13 on: July 22, 2008, 10:42:17 pm »
David -

trust me, I'm way too deep in debt to give up my day job  :P

Jan - wildly applauding for Marci  ;D
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

JulieW4

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Re: Marci's (MAlgent) Surgery Update
« Reply #14 on: July 23, 2008, 12:05:20 am »
Marci,  I hope you will have on your new PJ's and slippers on soon and post a picture.  You know how much we love pictures, especially your belly cut.  I'm so glad that everything is going well soon.


Kathleen, I gave my best friend my login info so she could post my update.  She was happy to do it.  She had already heard so many stories about how helpful this forum was that she was glad to do it.

Julie
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2.7mm X 3.7mm AN
misdiagnosed for 13 years
complete hearing loss on right side
Had Translab surgery on June 30th, released from hospital 48 hours after completion of 5 hours of surgery
BAHA abutment surgery on Oct. 31st, received processor on Dec. 4th
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