Author Topic: fire in my face  (Read 13772 times)

leapyrtwins

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Re: fire in my face
« Reply #15 on: July 07, 2008, 10:47:13 pm »
Thanks for the definition, Jim. 

In addition to needing spell check on this forum, I think we also need a thesaurus  :D

I didn't think you were "dissing" me or anything, but I truly wasn't certain what inveterate meant.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

ppearl214

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Re: fire in my face
« Reply #16 on: July 08, 2008, 05:34:32 am »
Jan: inveterate is an adjective meaning 'confirmed' or 'habitual'.  I use it as a salute to your dedication to the boards shown by your high post count, generated by your response to almost every new post.  You are a very dependable poster and valuable member of these forums.  My use of the word 'inveterate' (as applied to you) meant nothing but respect and admiration.

Jim   
Heck, Jim, I didn't even know that one.   ::)  ;)  And, btw, you BOTH are catching up to me in post count! Sheesh!

Now back to topic
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Debbi

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Re: fire in my face
« Reply #17 on: July 08, 2008, 10:45:21 am »
Hi Larry-

Off topic, but I just noticed that you are also a lung cancer survivor and that caught my attention.  First of all - huge congratulations to you on beating the odds and continuing to live a good life with only one lung.  My wonderful, amazing mother is also a lung cancer survivor, although she managed to get out with only 1/3 of her lung gone.  You'd never know it today, and she is my absolute hero. 

I hope you find a "fix" for the nerve firing - you've definitely gone through enough! 

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Tamara

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Re: fire in my face
« Reply #18 on: July 08, 2008, 11:25:14 am »
Maybe Jan thought you meant Invertebrate  ;)

Tammy
7 mm AN left side
translab 6-12-08
postop issues including CSF leak, eye issues, and facial palsy.  All issues resolved at 9 mos. except slight facial palsy & weakness.  Continuing to improve...

leapyrtwins

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Re: fire in my face
« Reply #19 on: July 08, 2008, 07:01:36 pm »
Maybe Jan thought you meant Invertebrate  ;)

Actually that was among my thoughts  ;D

I'm wondering if I'm considered "inveterate" what we'd call Phyl  ???

She's 1,000+ posts ahead of me and if I'm "confirmed or habitual", what does that make her?

Be nice now  :D

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Jim Scott

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Re: fire in my face
« Reply #20 on: July 09, 2008, 02:33:38 pm »

I'm wondering if I'm considered "inveterate" what we'd call Phyl  ???

She's 1,000+ posts ahead of me and if I'm "confirmed or habitual", what does that make her?

Jan

!ncorrigible?  Or, perhaps just dedicated, like you.  :) 

Jim being nice
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

leapyrtwins

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Re: fire in my face
« Reply #21 on: July 09, 2008, 04:58:29 pm »
Jim (being nice) -

I'm actually familiar with the word incorrigible - in The Sound of Music one of the boys tells Maria he's incorrigible and then asks her what that means.

I'm a little disappointed with your response.  I thought for sure you'd come up with a word that I've never heard before  :D

I also look forward to reading your posts - not only because they are always insightful and well-thought out, but also because they help me expand my vocabulary  ;D

Jan (being nice also)
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

4cm in Pacific Northwest

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Re: fire in my face
« Reply #22 on: July 10, 2008, 08:18:28 am »
RE

This is a dumb question, however, There are many different choices on this forum, but no spellcheck?   [/b] [/color]

I just compose everything in “wordâ€? ,first, and then run the grammar and spell check….From there I just cut–and-paste it into the post box… Sometimes I forget to do this and then my spelling skills (or lack of) get revealed to the ANA readers (gasp!  :o  ;)  ;D )


Daisy Head Mazy

4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

Jim Scott

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Re: fire in my face
« Reply #23 on: July 10, 2008, 01:27:03 pm »

I'm actually familiar with the word incorrigible - in The Sound of Music one of the boys tells Maria he's incorrigible and then asks her what that means.

Well, at least you didn't stop with Do-Re-Mi;)

Quote
I'm a little disappointed with your response.  I thought for sure you'd come up with a word that I've never heard before  :D

Sorry.  My intent isn't to confound readers with esoteric words.  Oops.  I think I just did it again.   :-[

Quote
I also look forward to reading your posts - not only because they are always insightful and well-thought out, but also because they help me expand my vocabulary  ;D

Thanks for the compliment.  You're very kind as well as droll and inveterate.  ;)

I think we're all nice.  Well, most of the time. 

Jim


4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

ppearl214

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Re: fire in my face
« Reply #24 on: July 10, 2008, 02:51:53 pm »

I think we're all nice.  Well, most of the time. 

Jim

Speak for yourself... I'm not nice!  ;D

I know the bloke has some adjectives to describe me... as well as some of my foreign customers. Too bad I can't post them here.

Ok, so this thread is going back on topic? ;)
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

amymeri

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Re: fire in my face
« Reply #25 on: August 03, 2008, 02:04:23 pm »
Hi Larry

The first symptom-- and only symptom --I had before my AN was discovered was irritation of my trigeminal.  Specifically electric shocks in my cheek, vague numbness in my chin and a sensation of wetness on the outer corner of my lips.

I think an MRI is in order.  Could be scar tissue irritating the nerve and not AN regrowth or could be trigeminal neurlagia or something totally benign and will go away on it's own.

Tell your doctor and they can check it out!

Good Luck!!!!
Amy
Amy

4 cm right AN removed restrosigmoid 4/13/06
Partial facial paralysis, SSD and trigeminal numbness for now

mrgarlic

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Re: fire in my face
« Reply #26 on: August 08, 2008, 11:07:26 pm »
Greetings again. It has been over a month since last post. WOW, what a month ! I finally saw a neuroligist and was diagnosed with Trigeminal Neuraligia. She then made a big mistake. She put me on Tegretal and gave me a schedule from 200mg once a day to 1200mg twice a day and then left town for a vacation. Within three days my pain quit and I had other questions re the medication. Surprise! Her office had no other Dr to talk to and no way to contact her until she returns. No fax, no messages alowed period! I was advised to write her a letter. BULLCRAP ! Sorry, but I was angry. I went searching and found a TN specialist right here in Portland. I still have not had an MRI but it is coming soon. This past week the pain started again. This time very unusual. Like a sharp poke in the top of my head. It lasted for an hour, stopped and never returned ( yet ). My right side face is still all numb.My friends and family just shake their heads and wonder whats next. AN and TN and lung cancer survivor. All I know for sure is that God loves me and this too shall pass. Thanks for caring,-,-,-,-,-,=- Larry
I am not the person I used to be,
 I am becoming the pereson I am.

AN surgery 2004- Trigeminal Neuroma  surgery scheduled    Nov 2oth 2008

MAlegant

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Re: fire in my face
« Reply #27 on: August 09, 2008, 05:37:55 am »
Hi Larry,
I may be the resident trigeminal forumite.  I experienced TN as a symptom of the AN compressing the trigeminal nerve.  In fact, my AN was really a TN since it originated from the trigeminal nerve and not the acoustic nerve.  I am very familiar with that pain and I agree that it is debilitating.  At almost 4 weeks post-op I have the facial numbness and heavy feeling but no pain yet.  It is one of my biggest fears that the pain will return.  Hopefully not, but here's what I've learned.  Function returns much slower to sensory nerves than to muscular nerves so the trigeminal takes a LONG time to heal.  And the trigeminal is an extremely finicky nerve, hence the misfiring and pain.  I know they have drugs and other theories out there--after googling extensively I found out that marijuana is an affective analgesic to TN.  Of course I'm not advocating illegal drug use, just reporting on the information that I have gleaned. Good luck.

Wishing you only good things and NO PAIN.
Best,
Marci
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

yardtick

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Re: fire in my face
« Reply #28 on: August 09, 2008, 11:29:44 am »
Too funny Marci,

My 19 yr old was just telling me the other day that marijuana would to the trick for me!  In Canada you can get a prescription for marijuana.  Yeah, I'll just go down to the area where I work because I call it "crack alley and hooker ville" and see if I can get a free sample before I bug the Dr for a script.  I do not smoke so smoking marijuana would be quite interesting. 

Just wondering if my 19 could give me a tutorial :o

Anne Marie
« Last Edit: August 09, 2008, 11:41:02 am by yardtick »
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

MAlegant

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Re: fire in my face
« Reply #29 on: August 09, 2008, 11:35:52 am »
Hi Anne Marie,
Your 19 year-old and my 20 year-old can probably tell us way more than we need to know.  But hey, you DO live in Canada.   ;D
Marci
3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.