fire in my face

[yardtick]

Marci,

Yes I do!  In between Toronto and Niagara Falls.  Have you ever been this way?

Anne Marie

[MAlegant]

Well, we lived in Montreal for a long time and made a few trips to Toronto and to Niagara Falls.  Now live west of Cleveland, in Oberlin, a very sweet (and strange) college town.  It's not a place I would ever have imagined I myself living, having spent most of my life in cities, Philadelphia, Rochester, Montreal.

Will you go to the ANA forum next summer in Chicago?

Marci

[saralynn143]

Pardon my ignorance if I am way wrong, but can't you get medicinal cannabis in tablet form so you don't have to smoke it?

Sara

[MAlegant]

I think you can but you can also smoke it through a vaporizer so that you don't hurt your lungs.  I have a friend with MS who does this, and gets relief from many of her symptoms.

[Dealy]

Larry-Noticed your title "Fire in the face" and had to check and respond. I have had TN for the last year. Mine is from radiation damage after treating my AN. I am on 600 MG of Neurontin daily. It controls but weather (cold and rain) stress- being overworked- (who isn't) and certain spicy foods can bring mine on. Mine feels like you just got out of the dentist office. Never rally goes away completely. I sure would get an MRI too be on the safe side. I was told by my neurologist that it can get worse-Geez I hope not-before medication it was the worse pain I have ever experienced in my life. Good Luck on your outcome and choices. Just letting you know other's suffer from this pain also.

[yardtick]

Hi Marci,

I'm hoping and praying about Chicago next Aug.  My husband and I are going on a 10 day Southern Caribbean cruise next July and than we are spending 4 days in Florida to celebrate our 25th wedding anniversary.  I have to see what the holiday schedule is like at work.  I really want to come.

I too take Neurontin.  I have a lot of issues with facial pain, earaches and headaches.  I'm weaning off of 900mgs a day to 600mgs.  Weight gain is a nasty side effect   But if I need the med's I need the med's.  I've been on topamax and tegretol and so far the Neurontin has worked the best.

I agree with Dealy, when the weather is bad like it has been nothing helps.  Actually I'm stressed out about my possible return to work.  My employer isn't all that understanding and I find the Neurontin leaves my slightly confused and my short term memory took a nose dive.  Scary when you work in the financial industry.  I'm making an appointment to see my neurologist so she can refer my to a pain specialist.  My family dr isn't helping and I guess that's because this is way out of his league. 

I'm telling you Marci, if you are in pain.....I'm in pain,
Anne Marie

P.S. Something else we have in common

[MAlegant]

Hi Anne Marie,
Being stressed about work (I am SO stressed about this) will only make it worse, I think.  Can you transition back before you go full-time?  That's my plan.  Of course, I am terrified that once back I won't be able to do my job and all I have worked for will be for naught but I'm trying to not worry about that one in advance.  I am trying to be patient and hoping that some of my AN issues resolve.  I did wake up without pain this morning which is a first. Small victories!

I would love to meet you (it's destiny I fear) so maybe at some point we can do it even if you don't make it to Chicago.  We are about 5 hours from Toronto so perhaps once we are both feeling well, we can meet halfway?  Just a thought.

Hang tough Anne Marie, for some reason we are both meant to be here and to get through all the difficulties. You seem to have more than your share...
Marci