Author Topic: Early trial for NF2 drug ?  (Read 3066 times)


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Early trial for NF2 drug ?
« on: July 01, 2008, 12:50:32 am »
Yes, early days, but seems to be working
interestingly it seems to work by reducing the bodies own
repair/regrowth capability, see below

The good news is that it is more or less an existing drug
so the time to launch should be shorter
Its quite a big jump from "incurable"
to possible cure in the future ?
Have a good day


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Re: Early trial for NF2 drug ?
« Reply #1 on: July 01, 2008, 09:35:44 am »
This sounds promising!  Very interesting read, thanks for the info.  I'm sure there are many people on the edge of their chairs with this bit of good news! 
1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear