Author Topic: a trip to the doctor  (Read 1837 times)

carter

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a trip to the doctor
« on: May 15, 2009, 11:35:57 am »
Ck was in mid January.   

fatique for about 5 weeks then started to taper away relatively quickly.   then stiff neck and a few headaches.  then i had the feelign that i was much better.  a few headaches, a few days of stiff neck ... fatigue - may i say htat i am 90% back at least.

then last week ---- headaches on AN side to top of head.  muffled sounds, "ear ache", a few times a day, sharp or burning feeling from just behind th ear going into head, ringing in ears turned up volume for first time.   called ck dr and was passed to neurosurgeon. 

PA came into romm and asked about all issues.  sweet young lady .. she made note after note.  asked about ck and everything.   only second time to this office.

dr han came in after readign her notes and reviewing the mri taht ck ordered in March--- just said that the Ck beats the surgery and comapred the trama of surgery to CK.  said all was normal for CK.  he said march mri shouwed no growth, no bleeding, or brain stem injury ... was glad that most of the sympthoms have cleared.  he said that  teh tumor is still there to press on nerves oand other tissue ----  so i may have some issues over time.  he said that he would like ot do another mri in November.  my wife chatted ...  about Kansas ....   as i he was trying to get out of the door, i asked about a script of some pain pills ---- sure. an assistant brought in script and we left ...

simple and straight to the point ...  i like that


just to let you know that life continues tog et better - but tah tthere may be some bumps in teh road ...  still glad that i went CK ...  the little Bast*^%$rd is not winning.



i hope that all finds you well
carter
Diagnosed in fall of 2008 with 1.6 * 2.9cm AN on left side. 

Scheduled CK at Oklahoma Cyber Knife in December, 2008 and decided not to proceede on 2nd date that CK was scheduled.  I fired them.

CK performed at St John's Hospital (Tulsa)Jan 2009

ppearl214

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Re: a trip to the doctor
« Reply #1 on: May 15, 2009, 12:16:49 pm »
Hi Carter and happy 5 mos as a Postie Toastie :)  Based on what you are sharing, sounds about right for AN'ers and CK (and most radio treatments). Sending wishes for continued wellness.....  onward and upward!  For the fatigue (I posted here numerous times about Brain Tumors (all kinds) and Fatigue) and the key to combating it is... diet, exercise and a good night's sleep!

Hang tough!
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Jim Scott

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Re: a trip to the doctor
« Reply #2 on: May 15, 2009, 01:34:49 pm »
carter:

Thanks for the update.  Although you've had a few 'speedbumps', you seem to be moving forward quite well - and your doctor agrees.  You really are winning!

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

sher

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Re: a trip to the doctor
« Reply #3 on: June 10, 2009, 12:21:28 pm »
Carter,
Hang in... it does get better!
Sherry
1.2cm x 0.6 cm extracanicular component (7 mm) 05/08/08
MRI in AUG 08  showed 30 % growth
Having CK 9/30, 10/1 and 10/2/08
1/12/08 MRI shows swelling