A few things rush to mind when reading your post and the first is that your son is very young with his whole life ahead of him. He also has a tumor that would be on the large side. You need an expert who has operated on many AN's. This is one time, you want to be a garden variety. Your husband's discovery of House is formidable as they operate on the greatest number of AN's per year. (according to their website 200).
I traveled there from Illinois and felt that the short term inconvenience of being in California was worth the best possible long term outcome. Know that they provide affordable housing to families in Seton Hall. It used to be thirty something per night back in 2001. Althought the rates may have risen, I am sure that they are still reasonable. The facility has a kitchen, laundry facilities, and the rooms are the same caliber as a standard hotel/motel room with a seating area and a sleeping area.
Your son has one first best chance at surgery and I'd at least do a free consult with House. Send his MRI's and the report to them and they will call and provide their expertise.
While I was there, an 18 year old boy from Michigan was undergoing an operation.
From the House Ear Clinic Website:
House Ear Clinic CONSULTATIONS
If you, a family member, or someone you know has been diagnosed with an acoustic neuroma, you may consult with a doctor from the House Ear Clinic team. We will be happy to review the MRI scans and audiogram and speak with you by telephone (we must have a copy of the actual MRI film, reports are not sufficient by themselves).
Send the MRI scans by express delivery (be sure that you are able to track the package) to:
House Ear Clinic
Attn: Acoustic Neuroma Website Consultations
2100 W. Third Street, 1st Floor
Los Angeles, CA 90057
You can expect to hear from a House Ear Clinic physician within 24 hours of our receipt of your information. You may also call or fax a House Ear Clinic physician at:
Telephone: (213) 483-9930
FAX: (213) 484-5900
All the best to you and your family,