schwannoma acoustic neuroma

[meredith]

  24 months ago I had cyber knife at Stanford Hospital I just started having a metal taste about 2 weeks ago, my surgeon is out of the country has anyone heard of this

[Jim Scott]

Hi, meredith:

Strange things often follow AN radiation treatment (and surgery) that are all relatively 'normal', under the circumstances.  I'm not sure what is happening but I would consult another doctor if the 'metal taste' continues much longer and he remains unavailable.  He should have someone 'filling in' for him.  Ask.  You shouldn't have to remain in suspense while your doctor is absent.


Jim

[Betsy]

Hello Meredith,

Are you having the metal taste all the time, or does it come and go?  Is the taste associated with any other symptoms?

When that happens to me, I know I better sit down 'cause the crazy vertigo is coming.  The taste seems to start from the sides of my tongue, then after about a minute the room starts tumbling and I collapse.  I asked the ENT doc about it and he didn't think it was related to the AN, but that it was possibly migraine related.

You should definitely have it checked out.  There should be someone standing in for your doctor.  Let us know what happens, okay?

Betsy

[Sue]

A lot of people have that metallic or salty taste going on.  If you search for that word you'll probably find lots of posts regarding that.  I have that on occassion myself since my GK treatment.  But always consult your doctor if you have any particular fears or concerns. I certainly wouldn't want to tell you that it's "normal" and then you not talk to your doctor about it. But our nerves do all sorts of strange things after our procedures have upset them. 

Sue in Vancouver