Author Topic: Actual doctor consultations  (Read 3500 times)

SteveWWD

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  • www.myacousticneuroma.com
    • http://www.myacousticneuroma.com
Actual doctor consultations
« on: December 11, 2006, 10:02:28 pm »
My name is Steve and I am a 26 year old who just recently had an acoustic neuroma removed.  I had a 1.5 cm tumor, and it has been completely removed and I still have some hearing in the ear on the operated side.  My furstration in finding out information about younger people with acoustic neuroma and their experience has prompted me to create a website of my own experience.  Please take a look, I hope it is helpful to someone.  I have posted the actual doctor consultations that I went on.   It is http://www.myacousticneuroma.com/

Thanks.

Jim Scott

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Re: Actual doctor consultations
« Reply #1 on: December 12, 2006, 03:55:52 pm »
Steve:

I visited your website and was very impressed.  Certainly worth a look for any AN patient. and younger folks will certainly relate to it, I'm sure.  Good job!
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

ixta

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Re: Actual doctor consultations
« Reply #2 on: December 15, 2006, 08:47:44 pm »
Hey Steve Sweet Site man! I wish I wouldve caught mine at your age! mine was probably your size when I was 26, but I didnt know I had one until 10 yrs later 36 and it was 5cm measured from IAC to the compressed side.

Excellent site! that pulsating animation of the tumor is pretty funny, looks like some Tom Clancy Video Game.
Check out my blog

http://thestatus.com/index.cfm?fa=patient_login&sid=0

h

biologyfly06

perhaps i should be moving mine onto my own domain soon like you did, Ill link you on my site, GOOD JOB!

36 aint old! ;D you only have 10 yrs to go!
I got a big thread on the microsurgical forum area
5cm left AN from IAC to cerebellum/brainstem.
Zapped out by Shahinian @ SBI over the course of 6.5 hrs on Monday 11/27 2006.
thestatus.com   h   biologyfly06

 


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