Author Topic: My story with a neuroma before and after surgery  (Read 324 times)

WALEED KHALID

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My story with a neuroma before and after surgery
« on: May 13, 2025, 05:44:37 am »
I had the symptoms of the tumor at the beginning of tinnitus. I gradually lost my hearing. In 2018, I went to the ear doctor and he told me that you lost the auditory nerve. You may have been exposed to high noise or it was inflammation. Two years later, I felt double vision and I went to the ophthalmologist and he told me that you have a simple syndrome.

And until before the discovery of the tumor, I had pressure in my head and an electric current was going down to the head of my face from time to time.

Then I went to the doctor on 25/11/2024 and did the tests

I have a tumor in my brain 5 cm in size on the left side

It's called vestibric acoustic neuroma

All these years, the doctors I reviewed did not think of performing an MRI for me and because of them the tumor grew and I lost my hearing

I underwent the operation at four o'clock in the evening 2024/12/5

And on 6/12/2024 in the evening, I came out of intensive care, and my family came near me and I talked to them

In 2025/3, I had physical therapy sessions on my face because the seventh nerve is stopped and my eyes are not tearing

A month ago I changed the therapist because I didn't feel comfortable with him

And on 25/5/28, I have the first session with an excellent therapist.

My feeling now and after 5 and a half months

Normal eye duplication

Walking is normal, but I still feel that I have weakness on my left side

The doctor told me this will go away gradually but slowly

And I have a slight tremor sometimes if I'm tired or I'm out of the house with my family and when I come back I feel a slight and now it's light I'm still sure it will go away because I'm sitting in my house

My interest in my eyes is very high, I put a sticker at night, moisten my eyes all day and wear sunglasses when I leave the house

And I spend most of my time at home

And now half of my face is paralyzed and the time has become 5 and a half months and I can't move it knowing that sometimes I feel some light sensations in my lips, cheeks and eyebrows

I asked my doctor on 2025/5/11 to take some vitamins such as D3, B1, B2 and B6

I wonder if my time is normal and when I feel the first movement in my face and improve the tears of the eye?

ESH

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Re: My story with a neuroma before and after surgery
« Reply #1 on: May 14, 2025, 11:39:05 am »
I really don't have much to offer here except that I can listen. My acoustic neuroma is not nearly as big and has not caused nearly as much trouble. I also have not had surgery. But I did not want this message up here with you thinking you were all alone and no one was listening. Maybe someone else will have something more for you.
01/16/25 MRI diagnosis 17 mm x 8 mm
Currently watch & wait
Tinnitus, hearing loss

WALEED KHALID

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Re: My story with a neuroma before and after surgery
« Reply #2 on: May 15, 2025, 03:32:40 am »
Don't neglect it so that it doesn't grow up, but if it's less than 3 cm, you can size it with a Kama Knife device.