Author Topic: Ear pain 4 years post CK -UPDATE  (Read 1862 times)

mwatto

  • Sr. Member
  • ****
  • Posts: 416
Ear pain 4 years post CK -UPDATE
« on: August 14, 2022, 07:43:27 pm »
I am doing very well re hearing and balance but for 3 and a hlf years have had stabbing ear pain at night (this was my only presenting symptom of the AN). I just dont understand it! Sometimes its behiind that side eye. Does any one else have ear pain? I have not been able to sleep long on that side since CK. The specialist says he doubts its radiation related (I had 3 fractions). No other symptoms or side effects. 3 and half years. 4th MRI coming up. This is an update as I have found CBD THC full spectrum helps me with the nerve pain. Update so in fact my nerve pain was either not the AN but TMJ OR it was the AN shrinking. Its much better now.
« Last Edit: March 16, 2023, 07:39:57 pm by mwatto »
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

gbly

  • Full Member
  • ***
  • Posts: 149
Re: Ear pain 3 years post CK
« Reply #1 on: August 17, 2022, 12:05:14 pm »
mwatto,
my AN side below ear at jaw line will have flare ups.  I believe it is the salivary gland, and the facial nerve does run through. 

I have find that trying to pop my ears and gently massage from ear to neck helps the area too.  Kind of like the lymph node massage, gentle and kind of opens up or at least makes it feel better.

Otherwise I have been doing your recommendation and I think the aspirin does help too.  Keep us posted what you do, always looking for a better way.
v/r GB

mwatto

  • Sr. Member
  • ****
  • Posts: 416
Re: Ear pain 3 years post CK
« Reply #2 on: August 18, 2022, 01:55:49 am »
Hi the GBLY I am using Herbs of Gold PEA (google palmidrol for pain relief)  and thats def helping! Also I am trialling a CBD tincture. I tried LDN but that really flared it- no idea why. I think melatonin helps too. I have no pain in day (mostly) only lying down. Might be blood flow. Thanks for the tip - I will def try that. Otherwise all going well.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

donjehle

  • Hero Member
  • *****
  • Posts: 500
Re: Ear pain 3 years post CK
« Reply #3 on: August 18, 2022, 06:19:58 pm »
Thanks for sharing the update, michele, on your condition.  And thanks for sharing some of the natural remedies you use.  All of this is really helpful.  You are a great help to these forums!
Burning Tongue, Loss of Hearing & Balance, and Tinnitus led to MRI. Very small AN found on 11/23/2021
While watching and waiting, lost significant hearing. WRS now at 12% (down from 100%). Was fitted with CROS system on 3/7/22.  Stable MRI on 7/29/22
No treatment yet.

mwatto

  • Sr. Member
  • ****
  • Posts: 416
Re: Ear pain 3 years post CK
« Reply #4 on: August 18, 2022, 08:21:04 pm »
Thanks donjehle!

I am really doing well despite a cold at the moment which I am taking some goos quality propolis and also nigella sativa. GBLY I had some nerve pain yesterday and the massage does help! I massaged in some magnesium cream- I might try menthol (vicks) also.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

gbly

  • Full Member
  • ***
  • Posts: 149
Re: Ear pain 3 years post CK
« Reply #5 on: August 26, 2022, 02:02:07 pm »
mwatto,
I might try the Vicks as well!  also helps keep a smooth flow in the message.
GB