Thanks, JohnOnEasternShore, for that update! On March 25, I have a video consultation with the Mayo Clinic (except it's the one in Rochester). It sounds like the procedure for GK is pretty much the same at all the Mayo locations in Jacksonville, Arizona, or Minnesota. Let me ask you a question. You mentioned by noon, you were back on the road to Alabama with your wife. Did you do any of the driving? Or did your wife do it all? I don't think my wife could drive all the way back from Minnesota to Georgia by herself. But I don't know how bad the dizziness would be right after the procedure. I can drive now without a problem, but I don't know what it would be like then. It almost sounds like your dizziness became worse over time. From your experience, do you think I will be able to drive right after GK?
Another question for you: Did you have the headframe for GK? Or did they use a mask? My understanding is that the latest model of the Gamma Knife, the Icon, allows either one. What was your experience like with keeping your head from moving?
It does make sense to me that your balance would be worse after the tumor swells (which normally eventually happens after GK). I can see why you wanted to delay your vestibular therapy. How bad was your balance prior to having GK? Someone told me that you come out of GK with maybe a little greater intensity of the symptoms you had going into GK. So, if you have headaches going into GK, you might have worse headaches after the procedure. But if you don't have headaches prior to GK, you probably won't have any coming out. And they said the same thing was true with balance. So, I'm wondering from your experience if you found that to be true?
In terms of your hearing, I knew that it could get worse after GK, but I did not expect it to fluctuate wildly like you describe. But for me, I'm only at 12% now, and my audiologist said that I was deaf in that ear for all practical purposes. So, I don't think that GK will make it much worse for me, but for you, that must be terribly frustrating with it fluctuating like that. Do you know why it is worse on some days than on others? Have you discovered any connection on why that is.
Thanks for the tip on the Claritin-D! That makes a lot of sense to me.
I think inability to concentrate and general irritability often occurs with an AN. Some people seek counseling to help them through it. I'm currently seeing a life coach to help me with my work experience while having an AN. I know for me, the AN has affected my mood and my patience. I was hoping that having GK would alleviate that somewhat.
One last question: how big was your AN when you had GK? It doesn't seem like there is a direct correlation between the size of the tumor and how it affects one's balance. And I don't understand that.
Thank you for all the information you have provided! And best wishes on your recovery!!!