Author Topic: AN Specialists in Sydney AU  (Read 697 times)

DodgeAU

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AN Specialists in Sydney AU
« on: July 18, 2019, 01:11:23 am »
Hello all,

I recently moved from Melbourne to Sydney AU. Appreciate if anyone has experience or recommend specialists to consult for monitoring or treatment of AN.


Best regards
Oct 2019:  12x7 mm
                 Watch mode
Mar 2019: 7.5x5.5 mm              
                Watch mode
Aug 2018: Diagnosed 6x4x4 mm AN left
                Severe hearing loss and mild tinnitus

SP

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Re: AN Specialists in Sydney AU
« Reply #1 on: July 25, 2019, 01:58:17 am »
Hi DodgeAU,

Welcome to SYD, and to the world of AN . I did the rounds of many Sydney neurosurgeons a few years ago, before I decided on CK treatment in US. I now monitor my AN locally with Dr Ben Jonker (neurosurgeon), he works out of St Vincents in Sydney.

Happy to chat with you if you'd like to send a PM.

best luck

Stella
2.9 cm Left-side AN (Aug 2018)
2.9 cm Left-side AN (Aug 2017)
3.2 cm Left-side AN (Aug 2015)
CK @ Stanford, August 17 - 19, 2015 (Drs. Chang & Soltys)

DodgeAU

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Re: AN Specialists in Sydney AU
« Reply #2 on: October 14, 2019, 06:12:53 pm »
Thank you Stella,

I have just attended a consultation with Dr Biggs also works at St Vincents in Sydney. I have also got my MRI one year after diagnosis. Unfortunately my AN has rapidly grown from 6mm to now 12mm in year. My next MRI is after 6 months and the Dr has told me to start thinking about treatment either surgery or radiation.

Besides tinnitus and hearing loss, no additional symptoms within 1 year after diagnosis.

I really want to wait and watch as long as possible before jumping into treatment but I'm not sure for how long.
« Last Edit: October 14, 2019, 06:26:26 pm by DodgeAU »
Oct 2019:  12x7 mm
                 Watch mode
Mar 2019: 7.5x5.5 mm              
                Watch mode
Aug 2018: Diagnosed 6x4x4 mm AN left
                Severe hearing loss and mild tinnitus

SP

  • Full Member
  • ***
  • Posts: 114
Re: AN Specialists in Sydney AU
« Reply #3 on: November 01, 2019, 05:34:50 am »
Hi DodgeAU,

I'm sorry to hear of the rapid growth, 6mm in 1 year is a lot more than the usual 1-2mm. It makes sense to be consulting for your next steps and Dr Biggs is a very well respected surgeon too. All the best for the next MRI, i know how stressful they can be.

take good care

Stella
2.9 cm Left-side AN (Aug 2018)
2.9 cm Left-side AN (Aug 2017)
3.2 cm Left-side AN (Aug 2015)
CK @ Stanford, August 17 - 19, 2015 (Drs. Chang & Soltys)

 


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