Author Topic: AN Specialists in Sydney AU  (Read 1544 times)

DodgeAU

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AN Specialists in Sydney AU
« on: July 18, 2019, 01:11:23 am »
Hello all,

I recently moved from Melbourne to Sydney AU. Appreciate if anyone has experience or recommend specialists to consult for monitoring or treatment of AN.


Best regards
Oct 2019:  12x7 mm
                 Watch mode
Mar 2019: 7.5x5.5 mm              
                Watch mode
Aug 2018: Diagnosed 6x4x4 mm AN left
                Severe hearing loss and mild tinnitus

SP

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Re: AN Specialists in Sydney AU
« Reply #1 on: July 25, 2019, 01:58:17 am »
Hi DodgeAU,

Welcome to SYD, and to the world of AN . I did the rounds of many Sydney neurosurgeons a few years ago, before I decided on CK treatment in US. I now monitor my AN locally with Dr Ben Jonker (neurosurgeon), he works out of St Vincents in Sydney.

Happy to chat with you if you'd like to send a PM.

best luck

Stella
2.9 cm Left AN (Mar 2019)
2.9 cm Left AN (Aug 2018)
3.1 cm Left AN (Aug 2017)
3.2 cm Left AN (Aug 2016)
3.2 x 3.0 x 2.5cm Left AN (Aug 2015) ==> CK @ Stanford, August 17 - 19, 2015 (Drs. Chang & Soltys)

DodgeAU

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Re: AN Specialists in Sydney AU
« Reply #2 on: October 14, 2019, 06:12:53 pm »
Thank you Stella,

I have just attended a consultation with Dr Biggs also works at St Vincents in Sydney. I have also got my MRI one year after diagnosis. Unfortunately my AN has rapidly grown from 6mm to now 12mm in year. My next MRI is after 6 months and the Dr has told me to start thinking about treatment either surgery or radiation.

Besides tinnitus and hearing loss, no additional symptoms within 1 year after diagnosis.

I really want to wait and watch as long as possible before jumping into treatment but I'm not sure for how long.
« Last Edit: October 14, 2019, 06:26:26 pm by DodgeAU »
Oct 2019:  12x7 mm
                 Watch mode
Mar 2019: 7.5x5.5 mm              
                Watch mode
Aug 2018: Diagnosed 6x4x4 mm AN left
                Severe hearing loss and mild tinnitus

SP

  • Full Member
  • ***
  • Posts: 120
Re: AN Specialists in Sydney AU
« Reply #3 on: November 01, 2019, 05:34:50 am »
Hi DodgeAU,

I'm sorry to hear of the rapid growth, 6mm in 1 year is a lot more than the usual 1-2mm. It makes sense to be consulting for your next steps and Dr Biggs is a very well respected surgeon too. All the best for the next MRI, i know how stressful they can be.

take good care

Stella
2.9 cm Left AN (Mar 2019)
2.9 cm Left AN (Aug 2018)
3.1 cm Left AN (Aug 2017)
3.2 cm Left AN (Aug 2016)
3.2 x 3.0 x 2.5cm Left AN (Aug 2015) ==> CK @ Stanford, August 17 - 19, 2015 (Drs. Chang & Soltys)

 


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