I'll be as brief as possible, only facts. I've been reading posts here past 8 months. In April of 2014, my dentist sent me to an oral surgeon to have tooth #5 extracted. He did horrible job and removed bone above #5 causing a huge valley, had to get 4 tooth bridge. When I left his office I heard something I've never heard before---TINNITUS! Intermittent for 8 months then went away in December of 2014. So 2015 and 2016 were silent but I moved to this trash area in 2016 and needed root canal on #31,back lower molar. The endodonist I saw 10-12-16 pushed #31 roots into IA nerve so every time I ate sent food particles directly into nerve, causing vice-like grip on my face for 20-40 minutes after eating. 18 months on Oxycodone. Tooth #31 removed by "specialist" 11-24-16, he started Hydrocodone. He took numerous X-rays on ancient skull cap X-ray machine then wrote to head/neck surgeon and told her I had AN. The following is so important. She tells me in January of 2017 after 1st MRI and talking to "specialist" that I have tiny fly speck 0.8 AN and shows me on blow up that it is growing on side and I should get cyberknife but I've heard of this procedure and effects it has on people, increased tinnitus, pulling, crawling sensation on face for months, years after, i tell her NO WAY! On 4-24-17 I go to 32 year old rookie doctor who does nerve block surgery to try to alleviate coming and going pinching, squeezing, crushing pain throughout my entire lower jaw, unbelievable pain 6 months! After this procedure in recovery room I hear TINNITUS for first time since December 2014 and tell this pathetic doctor who says it will go away. It did, for 2 days then back! It has followed same pattern for almost 3 years now, just maddening. He puts me on Nucuynta. 3 different opiates and they knew I take 4 mg of Ativan since 1981. Hard to believe I am still alive, new doc says I was 4x more likely to die mixing benzos and hard opiates together for 18 months. I complained about these dentists until I was blue in the face to the dental agencies and they did nothing. I sued and lost to the one that did the root canal. Over $15K just in costs he owes me. Would not even return my money for the so-called root canal "procedure" which has taken away over 3 years of my life so far.
So I go back to see this head/neck surgeon about a splint she had designed for me that broke. Saw her last week. Now this is what she tells me, how crazy is this? She says: "I am positive that the 1.2 AN is causing 100% of the tinnitus and it is growing making the tinnitus more severe but if you think you know more than me then forget the MRI.." I reminded her that she diagnosed the 0.8 an in January of 2017 and I still had no tinnitus! The tinnitus started after the nerve block on 4-24-17. BUT SHE STILL INSISTS THE 1.2 AN IS CAUSING THE SCREECHING TINNITUS!
Next week my 3rd MRI, all those bangs and pops in little claustrophobic tunnel over an hour. First MRI in 2017 showed 0.8 AN, 2nd in January 2019 was 1.2 and next week probably little bigger. This melodramatic brain surgeon has been phoning me and telling me: "30% chance of PERMANENT hearing loss in both ears, you could wake up and be deaf except for the tinnitus!" He had cyberknife doctor phone me and he tells me: "You could live another 30 years before the AN would kill you (I am 62) and I would not know if Cyberknife made tinnitus better or worse for 6 MONTHS!" I was on Trigeminal Neuralgia site where people wailed about tinnitus CAUSED by cyberknife as well as crawling/pulling sensations on face. Everything OTC I have tried on the tinnitus has worked for 4-5 days but then, like a super soldier, the Tinnitus adapts and overcomes and comes back louder than ever. I put on white noise and hold cell phone right to my right ear and at first it made it go down 2-3 days but again it has adapted and now just gets louder. Hours of white noise through blue tooth but now left ear has tiny bit of tinnitus too. 25 USA vets commit suicide every day on average and many have tinnitus, per tinnitus class I attended. Someone said COQ 10 works on tinnitus? Another said Klonopin works. My doctor won't give me Klonopin because I take 4 mg/day of Ativan. Now they are concerned about me dying, not before with all those opiates mixed with Ativan. I'm a 50 year member of this HMO. I hope this is not too long. I WELCOME ANY COMMENTS/ADVICE? Thank you.