Author Topic: 5 year update- Still a Great Outcome!  (Read 1309 times)

KeepSmiling

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5 year update- Still a Great Outcome!
« on: March 01, 2018, 10:21:23 am »
Great news! My 60 year old husband had a conversation with the nurse and confirmed that the most recent MRI (taken Feb 23, 2018 for his five year anniversary of the Proton radiation treatment), actually showed shrinkage of the 1.5 cm tumor in the range of 1/3 to 1/2. In July- Aug of 2013 he had Proton Beam Treatment which, for him , involved  28 treatments in somewhat uncomfortable customized devices that kept him immobile. He had no pain before the proton therapy , during , or afterward. He continued to work each day (full time), using a virtual office we created at the library for cancer patients and even participated in teleconferences with hundreds of colleagues. Treatments each day took an hour and a half- most of which was preparation. He had no balance issues. He had no numbness or paralysis. We did incur expenses- the expense of relocating to that area for 6 weeks.  If anyone needs any info we have many detailed notes. Specifics: Deaf in one ear. Wears a special hearing aid. Gets occasional tinnitus. Is sensitive to loud noises with other ear and wears earplugs in loud environments. Previous 1.5 cm tumor is now .5cm (AP) x .8 cm (TV) x .8 cm (CC). Dr. Loeffler Massachusetts General Hospital (The MGH Francis H. Burr Proton Therapy Center uses proton beam therapy to irradiate cancer and benign tumors. Proton beam therapy can be precisely aimed at a tumor with minimal dose to the surrounding healthy tissues.) Good luck to all of you!
12/O6/2O12: 1.5 cm lesion.Proton Therapy-July/Aug, 2013 Massachusetts General Hospital. 2/23/2018 MRI: 1. Small .5 cm x(AP) x .8 cm (TV) x .8 cm (CC )left intracanicular acoustic schwannoma) Completely deaf in one ear. Occasional tinnitus. Zero side effects.

leek

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Re: 5 year update- Still a Great Outcome!
« Reply #1 on: April 16, 2021, 09:37:44 am »
Would love to get an update on this Proton beam therapy outcome. Any problems with facial paralysis?

MarlaB

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Re: 5 year update- Still a Great Outcome!
« Reply #2 on: April 16, 2021, 11:09:05 am »
I just wanted to let you know that sometimes, after a while (it's been three years since this post) people might not log on to the forum...do not despair!

You can do a search in the forum archives for other folks who posted about proton therapy.

Wishing you the best!

Marla B.

gbly

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Re: 5 year update- Still a Great Outcome!
« Reply #3 on: April 25, 2021, 09:57:54 pm »
Leek,
I had proton therapy in Sept. 2020 and just got my 6 month MRI.  I had great results for the tumor, but my face on the AN side has lost a lot of muscle paralysis.  Doctor said that I responded well from the proton and because of the swelling the nerve is pinched.  However, he did give good odds that I will have the swelling go down and that most of my facial expressions will come back.  I do a lot of facial exercises everyday to make sure to keep everything moving.

Did you have a similar issue?
GB

 


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