Hi. Diagnosed last week, 1.4 x .7 x .9 (age 54)
Very much appreciating the awesome content and intelligent people frequenting this board !!! Sent packets to Chang@Stanford, and Schwartz@House already. Also exploring local option in Dallas at UT Southwestern, but doubt that they have the same level of expertise as some of the other centers/docs referenced a lot here. Will probably send to Lunsford for GK opinion and maybe UCLA or Keck as well.
Saw a very encouraging Youtube video by Mark Ruffalo - recommended viewing!: https://www.youtube.com/watch?v=gxmHPXcp2b4
interesting that Mark R found Acupuncture as possibly very helpful for him in recovering facial movement post-op. I'm more of a mainstream than alternative medicine person, but for AN, I think we want to incorporate anything that may help with the healing !!
Is anyone out there familiar w/ the AN team in Dallas at Univ Texas Southwestern? (Kutz, Isaacson, Barnett) ?? interested in first hand experience if anyone has. seems like they are not as "focused" on AN as House, Keck, UCLA etc.
Do most people get an overall physical ASAP to detect if any other issues may be going on / might impact surgery? I'm planning to do that ASAP.
Am somewhat concerned about traveling for surgery and "what if" we have infection or CSF leak or something after coming home - how has that worked out for people who traveled?