Author Topic: Dealing with a re-occurance  (Read 3604 times)

swordjock

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Dealing with a re-occurance
« on: August 31, 2015, 09:05:34 am »
Does anyone here have experience going through a re-occurrence of an AN?

I had 3 surgeries to remove one in 2013 and it looks like I'm going to be having surgery again soon. I'm looking for information on dealing with not only the re-occurrence but dealing with the psychological/emotional issues surrounding another surgery (pre and post).

Cheers,
Scott

CHD63

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Re: Dealing with a re-occurance
« Reply #1 on: August 31, 2015, 11:00:06 am »
Hi Scott and welcome to this forum of caring, supportive friends .....

Yes, I had a regrowth of my acoustic neuroma following total surgical removal via retrosigmoid approach.  Three years after the first surgery I had the second surgery for the regrowth via translab approach.  The second surgery was four years ago and my MRI in May of this year showed all to be stable.

I chose my second surgeons very, very carefully because I wanted the best possible outcome.

I will say this, recovery from the second surgery was way easier than the first one, since I had already compensated for the missing vestibular system.

Like you, it was an emotional roller coaster for several years in there, but I can assure you that I have fully recovered now, but with some "new normals" in place.

Let us know if you have further questions.

Thoughts and prayers.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

 


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