Author Topic: Dr. Chang at Stanford / radiation  (Read 15241 times)

CattAN

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Re: Dr. Chang at Stanford / radiation
« Reply #30 on: March 24, 2016, 08:31:35 am »
Great re-count TW.  I did not know about the Ativan, but my advice is to play soothing music.  Did you experience mouth numbness on the AN side?  I am going through this now, and wondering if this will resolve someday.

CattAN
Right side AN diagnosed 6/7/2015
12x11 mm
Swelling to 15x13 mm @ six months
SSD, tinnitus, some balance issues....
~~~~~~~~~
Stanford CyberKnife1 9/2/2015 (single fraction)
Dr. Steven Chang & Dr. Iris Gibbs

Blw

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Re: Dr. Chang at Stanford / radiation
« Reply #31 on: March 24, 2016, 10:17:18 pm »
Yes with Gk. It is irritation of the facial nerve and should clear. It is more radiation resistant than the hearing nerve. Complications of the facial nerve after radiation are very rare.

Tumbleweed

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Re: Dr. Chang at Stanford / radiation
« Reply #32 on: April 10, 2016, 12:28:23 pm »
I didn't have any numbness after my CK treatments. I suffered increased dizziness and extreme fatigue for a couple months afterwards, but these symptoms all resolved over time. In fact, my dizziness is now 90% recovered from its state before I had CK - almost completely normal for me, and better than for many people who are not active. I also have had around a 90% reduction in the level of my tinnitus since getting CK. (These are atypically dramatic results, but they show how effective the treatment can be for some.)

Best wishes to all,
TW
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

mcrue

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Re: Dr. Chang at Stanford / radiation
« Reply #33 on: April 11, 2016, 03:29:29 am »
my dizziness is now 90% recovered from its state before I had CK - almost completely normal for me, I also have had around a 90% reduction in the level of my tinnitus since getting CK.

Always happy to hear fantastic news regarding your successful radiation treatment!
5/19/2015 - 40% sudden hearing loss + tinnitus right ear

6/26/2015 - AN diagnosed by MRI - 14mm x 7mm + 3mm extension

8/26/2015 - WIDEX "ZEN" hearing aid for my catastrophic tinnitus

12/15/2015: 18mm x 9mm + 9mm extension (5mm AGGRESSIVE GROWTH in 5 months)

3/03/2016:   Gamma Knife - Dr. Sheehan