Author Topic: We are really all very lucky!  (Read 2021 times)

luckyone

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We are really all very lucky!
« on: September 25, 2014, 05:15:55 pm »
For those of you who just found out you have AN... we are actually all very lucky to have this diagnosis.  I was diagnosed in March 2012, got Gamma Knife in April 2012, tumor stopped growing and showed some shrinkage in February 2014.  My brother's father in law found out two weeks ago after fainting that he has Glioblastoma Multiforme, went into surgery a week later and has less than 6 months to live.  So I don't know about you all, but I feel blessed.

AN is definitely scary though, even today, I have some sharp ear to brain pains, but that's probably likely from five glasses of excellent red wine I had last night!

Good luck to all.
03/03/2012 Lost partial hearing left ear
03/12/2012 MRI showing 0.8cm x 1.59cm x ?
03/13/2012 Diagnosed with AN left ear
03/13/2012 - 03/16/2012 Depressed like there was no tomorrow
04/03/2012 GK with Dr Duma @ Hoag
02/17/2014 Tumor stopped growing, shrank a bit!

Julia

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Re: We are really all very lucky!
« Reply #1 on: December 01, 2014, 12:54:13 am »
Very True! I work with patients who have GBM's.

Believe me when i say that we all have the best of the worst!
8/28/14 first diagnosis: Rt med-large size
11/18/14 first neurosurgery consult
1/6/15 scheduled for GK

SXS: facial numbness, loss of taste, unsteadiness, swishing head sounds

 


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