Author Topic: Headaches with no help  (Read 3271 times)


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Headaches with no help
« on: February 02, 2014, 11:49:23 am »
My husband is 53 and suffers daily from migraines. He is not able to work. He is in bed all the time. The only thing that helps in pain shots and that just allows him to sleep. He tried to work some until he started passing out with no warning about one month ago. He has tried all preventative and rescue meds. He has had surgery to clip the occipital nerve and Botox. The dr thinks it is Occipital Neuralgia. Absolutely nothing has helped except for about one month after the surgery he had no pain but then it started again. We are at our and and do not know where to turn.

Gloria Nailor

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Re: Headaches with no help
« Reply #1 on: April 28, 2014, 07:01:00 pm »
I am hoping your husband is doing better.  I have suffered headaches and migraines all of my life.  they resolved after my surgery but then I needed Gamma Knife treatment and they have returned 10 months after the radiation.  My heart goes out to your husband, daily headaches/migraines must be horrible. here's hope that we find a way to treat our pain.
4/2011 diagnosed with 3 cm AN on right side
6/15/2011 retrosigmoid craniotomy which resulted in SSD, severe facial paralysis
7/2011 gold weight placed right eye lid
5/2012 tarsorrpapny right eye
6/2012 woke up with a smile
1/2013 cranioplasty because a screw came out of my head!
6-7/13 regrowth, GK


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Re: Headaches with no help
« Reply #2 on: May 02, 2014, 10:20:18 am »
Search the Forum for posts by Capt Deb related to headaches.  I think you'll find them very helpful.

Deb has had a long history of AN headaches and has gone through numerous "fixes".  If I remember correctly, she finally found something to help.  Unfortunately, I don't recall what it was.

Hope your husband finds relief soon.



Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways


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Re: Headaches with no help
« Reply #3 on: December 26, 2017, 09:14:51 am »
Hope that your husband feels much better.
I decided to share my experience, maybe it will work too for somebody.
My father suffered from everyday headaches and no treatment didn`t help, the dr concluded different diagnosis, but no one suited.
Then we tried non-traditional treatment such as acupuncture. It has taken few months, but the result was really fantastic and father`s headaches passed.
Maybe, it will be helpful for somebody.


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Re: Headaches with no help
« Reply #4 on: February 03, 2018, 05:36:01 pm »
I hope your husband has gotten some relief.  I have had severe headaches for 1 1/2 years after retro surgery and they've recently gotten better.  I attribute it to several things.  Maybe he can test some of these to see if they help him.

1.  There is something about the position of our couch: if I sit there I will have headaches later.  I've heard reclining backward is not good.
2.  If I am on the computer for too long, I will get a headache.
3.  Sleep position - try to avoid sleeping on your stomach - it bends your neck.  Ideally, sleep on your back if possible.
4.  Diet - This is the hard one but if you are desperate enough like me, you will try anything.  For just ONE WEEK, try eating no dairy, meat, or oil and see how you feel.  For the first time in 1 1/2 years, I haven't needed Tylenol and Aleve around the clock.  This is the 3rd day without medicine and I am really amazed.  My head is still sensitive and I still need to be careful not to move too quickly and trigger it, but this is amazing.  Some cookbooks with recipes are by Alan Goldhamer, Caldwell Esselstyn and John McDougal.
5.  Sometimes fruit gives me a headache if I eat it on an empty stomach - so try eating it after something more substantial.

I hope he may be able to glean something helpful from this. 
Take care!


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Re: Headaches with no help
« Reply #5 on: February 06, 2018, 06:24:16 am »
Someone else suggested Claritin-D and that helps.  They say it is safe to take it long term.