Author Topic: Medical Marijuana  (Read 101 times)

Patti

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Medical Marijuana
« on: August 14, 2018, 07:04:36 am »
I live in NYS and my PT suggested that I would be a good candidate for medical marijuana (can't smoke-it would have to be a tincture).  I have trigeminal neuralgia which wakes me up at night. I have taken ambien and a small dose of clonapin for over a decade and i would like to try something not so "medical". I have an appointment with a family doctor who is certified. I went to the NYSDOH and found many listings.  Surprising! I didn't realize it was so mainstream now.  It is a financial commitment, but my husband is on board.  Has anyone had any success with this?
4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

Gtmochi

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Re: Medical Marijuana
« Reply #1 on: August 14, 2018, 06:02:00 pm »
Hi Patti,

I live in LA, CA (land of legal marijuana!), but am from Maryland. I have tingling along the face and tongue on the AN side. Before diagnosis, I thought my TMJ was getting worse! No such luck ;-). Anyway based on what you describe experiencing, my issues are not as severe. That said, when I got diagnosed I couldn't stay asleep, and it was making everything worse - including the trigeminal nerve issues. Anyway, I ended up going to a dispensary for CBD tincture (I don't smoke , and have never smoked pot, if you can believe it).  It worked a treat! I have never had problems falling asleep, but the staying asleep had become an issue because of anxiety. That went away straight away, and my facial tingling abated. I had CK in April, and have been taking tincture since March. After CK my tingling reduced, but I believe the CBD to have played a huge hand in that.  CBD tincture has been used for people with traumatic brain injuries, and a dear friend with MS takes it for neurologic issues - it helped her a lot.   I have read that it does not help everyone - I recently read an article in The Washington Post about a boy who took an experimental CBD medication for seizures and who had excellent results, but that not everyone has the same result. That said, the CBD certainly can't hurt! Most CBD tinctures have trace amounts of THC, which I understand helps them be effective. However, it does not impair or make you high at all :). I certainly have not had any kind of weird experiences! Just be forewarned - the tincture tastes like the water that collects in a lawnmower bag. I take it, leave it under my tongue as long as I can stand, and then eat a starburst or something to kill the taste.
1.8cm x 2.2 cm x 2.5 cm Right Side AN
CK at Stanford  with Dr. Chang and Dr. Hancock 4/23-4/25, 2018

Patti

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Re: Medical Marijuana
« Reply #2 on: August 14, 2018, 09:00:18 pm »
Thanks for the encouragement at trying a different thing! I'll keep you posted but it wont be for another 6 weeks  :(   
4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

JLR

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Re: Medical Marijuana
« Reply #3 on: August 15, 2018, 06:08:13 am »
Sounds good! I never tasted water from a lawn mower lol but if it helps that's very good. Keep us posted.

Gtmochi

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Re: Medical Marijuana
« Reply #4 on: August 15, 2018, 03:51:02 pm »
Lol!! JLR, I should have said it LOOKS like lawnmower water tastes ;D. I am telling you - the CBD tincture tastes like what I imagine licking algae to be like - HA! So gnarly. But it's worth it!

Patti, Yes! I so endorse the trying of different things  and CBD tincture. Bummer you have to wait 6 weeks though  :P.  I hope it helps you, and am looking forward to updates!



 
1.8cm x 2.2 cm x 2.5 cm Right Side AN
CK at Stanford  with Dr. Chang and Dr. Hancock 4/23-4/25, 2018

 


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