Author Topic: My personal gamma knife experience 1-24-13  (Read 85237 times)

robinb

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Re: My personal gamma knife experience 1-24-13
« Reply #165 on: January 16, 2017, 10:51:30 am »
I started the gabapentin 6 days ago and am now up to 100. Mg. 3  times daily.

Hi Cathy-

It seems like your dosage hasn't ramped up yet; I increased gradually to 400 mg 3x daily by day 17; started at 100mg 2x then 3x, etc. So maybe you haven't given it enough time. Push Lana for weekly consults via email or phone.

I did see a neurologist during this period, they found nothing.

Hang in there and reach out any time for support.

-Robin
AN Diagnosed 11-2012 right side
13mm x 7.2 mm
Gamma Knife 1/24/13
UPMC w/Dr. Lunsford
Officially a postie toastie!
See my treatment journal at: http://www.anausa.org/smf/index.php?topic=18291.0

robinb

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Re: My personal gamma knife experience 1-24-13
« Reply #166 on: January 21, 2017, 03:54:41 pm »
I am just a few days shy of my 4 year anniversary post GK and received the following from Dr. Lunsford after reviewing my MRI.

Thank you for your recent communication and the opportunity to see follow up imaging studies. You underwent gamma knife radiosurgery 4 years ago. We are pleased that the tumor is stable if not slightly smaller, with no evidence of recurrent growth. We are very pleased with the current appearance, and would like you to get a new scan done anywhere from 2 - 4 years, if all symptoms remain stable.

So happy with this outcome, and I have lost 12 lbs!
AN Diagnosed 11-2012 right side
13mm x 7.2 mm
Gamma Knife 1/24/13
UPMC w/Dr. Lunsford
Officially a postie toastie!
See my treatment journal at: http://www.anausa.org/smf/index.php?topic=18291.0

cathyroe

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Re: My personal gamma knife experience 1-24-13
« Reply #167 on: January 25, 2017, 09:55:16 am »
Wow! Fantastic!
11/02/12  Diagnosed with AN  11mm X 5mm
05/29/13  MRI reports no change, stable
11/20/13  MRI reports 13mm X 7mm X5mm
5/20/14 MRI reports 14mm x 8 mm x 6 mm
7/29/14 GK at UPMC Lunsford. Now a Postie Toastie
1/14/15 Six Month MRI growth. 16mm X 8 mm
11/09/15  16 mm X 9 mm
9/15/16   17 mm x 11 mm x 8

robinb

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Re: My personal gamma knife experience 1-24-13
« Reply #168 on: May 02, 2017, 12:06:47 pm »
Hi Cathyroe-

Thank you and I hope your spasms have subsided; haven't heard from you in a while;

For me life is normal and am leading a more healthy and fit lifestyle overall and as a result have now lost 38 lbs; 32 to go to hit goal!

Be well!
AN Diagnosed 11-2012 right side
13mm x 7.2 mm
Gamma Knife 1/24/13
UPMC w/Dr. Lunsford
Officially a postie toastie!
See my treatment journal at: http://www.anausa.org/smf/index.php?topic=18291.0

Echo

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Re: My personal gamma knife experience 1-24-13
« Reply #169 on: May 02, 2017, 08:13:08 pm »
Hi Robin, 

Delighted to read that you are doing so well.  Thanks for posting the update.  Always nice to see how others are doing that had GK in and around the same time I did.  I'll have my 4 year GK anniversary this Sept. and I'm also doing great.

Congrats on the weight loss!!!

Cathie
Diagnosed: June 2012, right side AN 1.8cm
June 2013: AN has grown to 2.4 cm.
Gamma Knife: Sept. 11, 2013 Toronto Western Hospital

robinb

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Re: My personal gamma knife experience 1-24-13
« Reply #170 on: March 08, 2018, 12:31:46 pm »
My 5 year diagnosis/treatment anniversary came and went with no fanfare. That's a good thing!

I'm amazed at how many times this thread has been viewed!

Life is better than good, I have lost almost 80 lbs!

Be well everyone!
AN Diagnosed 11-2012 right side
13mm x 7.2 mm
Gamma Knife 1/24/13
UPMC w/Dr. Lunsford
Officially a postie toastie!
See my treatment journal at: http://www.anausa.org/smf/index.php?topic=18291.0

SP

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Re: My personal gamma knife experience 1-24-13
« Reply #171 on: March 12, 2018, 01:54:27 pm »
That's fantastic news!! Congratulations and continue to be well.

Stella
2.9 cm Left-side AN (Aug 2017)
3.2 cm Left-side AN (Aug 2015)
CK @ Stanford, August 17 - 19, 2015 (Drs. Chang & Soltys)

robinb

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Re: My personal gamma knife experience 1-24-13
« Reply #172 on: June 02, 2018, 05:37:53 pm »
Thanks Stella-

For all the newbies, life can get better as you go through this experience. I wrote an article in the current ANA newsletter, Notes, about how my new normal is better than before. Down almost 84 lbs and in the best fitness shape I have ever been in my entire life (and I am 63!)

I remain on the volunteer list, please dm or reach out through the contact info provided through ANA.

-Robin
AN Diagnosed 11-2012 right side
13mm x 7.2 mm
Gamma Knife 1/24/13
UPMC w/Dr. Lunsford
Officially a postie toastie!
See my treatment journal at: http://www.anausa.org/smf/index.php?topic=18291.0

 


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