My name is Rachel. Im 33 yo with a 3mo daughter. I was diagnosed with a 2cm cranial AN on my left side just a few days ago. Its been a very difficult past few days to say the least. Finding the right surgeons as well as multimodal support (like this site) is what is important to me now. My family and I have done hours of research and networking. We have appts on Monday with Golfinos/Roland at NYU and then Sisti at Columbia. Have any of you used either? If so, would any of you be comfortable sending me their recommendation and why. I am looking for the best possible outcome (who isnt). I want the triple play!!! no tumor, no deafness, and no facial paralysis. Im praying hard.
If any of you have similar stories or have worked with these surgeons, I would be most grateful to hear from you.