First, let me thank everyone that have been calling and inquiring about my upcoming appt, which was yesterday.... so, here goes!
Well, I got my answers and all positive!
Well, all in all, it was prelim good.
Tumor is at same size (or possibly 1mm smaller, based on +/-2mm for MRI's), which is great. It doesn't look like its growing (since it was growing at a good clip from last May until Apri's treatment, so we may have stunted it's growth). No sign of tumor death yet as it's still too soon. No more indication of brain swelling so the meds worked. So, I go back in Feb for hearing test (last test was 2 wks ago, only lost another 10-15 db and hearing is still reasonably good!), MRI and next appt. So, I'm taking today as prelim good. No indication of further growth. It was growing at a good pace, so I'll take this news.
Yesterday, they were very pleased with what they saw on the MRI (all walked in smiling). Granted it's only 4 months out. I did ask about my slow rebound and it really does stem to "individual results may vary", plus... my chiari may also be bringing on some symptoms. (they took a close look at it on the MRI as well). No cyst growth with the Chiari but tonsils definately feeling pressure. I asked about the 30 Gy and those noting to me their concern... but, I have to say that now, when I sit back and see that all critical structures look great on the MRI (ie: brainstem, trigeminal, etc), I now understand and accept mentally why they did. They played it safe by fractioning out by 2 more days than other CK to keep all structures safe as possible. Now that I sit back and rethink the 30 Gy and what they shared with me yesterday, I am now totally understanding the approach and do not question it. And if by seeing yesterday that the booger (thanks Mark for the term!) that there has been no further growth, no further swelling, everything on track, then, you know what.... I'm so fine with it!ÂÂ
I'm actually smiling today knowing the outcome of the appt. No more growth spotted and I'm on track for the CK process. I'll take it!
I'm still a firm believer in what I have done and after yesterday's appt, I feel even better about it. Tickled with my outcome thus far, even if it's only been 4 mos. The next appt is next Feb so that will be key... hoping to see necrosis then. Appt booked 2 days before bday... hoping I get the bday present I want!
shhhhhhhhhhhh... elopement plans still on track... got my dress, ordered flowers, rings all set, just need to get the Cheeky Bloke here. Oct 7 should be a great day all the way around! shhhhhhhhhhhhhhh
xoxoxooxox to you all and I apologize for not logging back on sooner. Life has been VERY stressful for me lately with numerous issues, but know you are ALL thought of daily. BTW, told they docs yesterday about "wonky" head (Thanks Captn Deb!) and reminded them of the symposium next year... I know of 2 in the appt that are planning on being there... told them to watch out for the crew of the PBW!!!!!!!
So, there it is for now.... my manta lives on.. day by day, inch by inch.ÂÂ
xoxoxox
