Author Topic: Drum roll and cartwheels please...  (Read 13713 times)

kixit

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Drum roll and cartwheels please...
« on: July 10, 2012, 02:43:32 pm »
My Baha surgery has been scheduled for Aug 1st at UVA!!! I called Anthem this morning to double check (again)about the processor. I want no surprises when I get my processor and they say that will be $5100.00 please-- cash, credit/debit or cashiers check. The Anthem lady said all UVA needs to do is call medical management and they will add the processor code to the surgery.

I am sooo thankful my appeal was approved. Words can't express how I feel.  And- although I didn't have a big fight (thanks to God and Cochlear), I urge everyone to fight your denials down to the last one. Leapyrtwins (Jan) was so right about insurance companies. If you fight they will cave  ;)
left side AN 9mm diagnosed 2/2012
SSD, loud tinnitis left ear
Translab 5/24/12
Baha surgery 8/1/2012 at UVA
Baha hook up 11/09/2012  : ) 

I am a happy camper : )

Jim Scott

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Re: Drum roll and cartwheels please...
« Reply #1 on: July 10, 2012, 03:00:50 pm »
Kix ~

A hearty congratulations to you!  Persevering pays! 

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

jaylogs

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Re: Drum roll and cartwheels please...
« Reply #2 on: July 10, 2012, 04:31:54 pm »
Yayyyy!!! Whoever thought one tiny little blip on an MRI could eventually lead to so many issues, and not just medically!! You will be so happy once your "gotcha" date arrives!  Take care!
Jay
8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

Manders

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Re: Drum roll and cartwheels please...
« Reply #3 on: July 10, 2012, 04:59:18 pm »
What AMAZING news!! So happy for you, Kixit! You persevered and it all worked out in the end. What an inspiration to each of us. Congrats!!  ;D

Diagnosed February 2012 * 1.3cm tumor * Experienced sudden & total hearing loss in 2007 in right ear * Translab scheduled for May 11, 2012*Follow my blog at: www.awkwardturtlesan.blogspot.com

It is what it is

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Re: Drum roll and cartwheels please...
« Reply #4 on: July 10, 2012, 08:14:57 pm »
I'm giving you a drum role and turning cartwheels for you.  Congratulations!

Karen
.7cm, left side AN , Tinnitus, Hearing preserved, Middle Fossa 8/1/12 at HEI, Drs Friedman and Schwartz, Sharing your story is extremely helpful to me.

LizAN

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Re: Drum roll and cartwheels please...
« Reply #5 on: July 10, 2012, 09:59:08 pm »
Woohoo!  Go Kixit!  Can't wait to hear how you like it!

Liz
8/20/2010 - 9mm AN on left side 
Fullness, tinnitus, mild hearing loss
2/20/2011 - 8mm
4/20/2012 - 12.4 mm
Moderate to severe hearing loss, LOUD tinnitus, deteriorating balance
Facial numbness and twitching, which subsided pre-surgery
Translab at House, 7/3/2012, Slattery and Schwartz

Tod

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Re: Drum roll and cartwheels please...
« Reply #6 on: July 11, 2012, 06:52:28 am »
Very happy for you!

-Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

kixit

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Re: Drum roll and cartwheels please...
« Reply #7 on: July 11, 2012, 03:03:48 pm »
Thanks peeps! It was truely amazing that my appeal was approved the first go around.

I'm wondering what it's going to feel like having the abutment. I had a few subcutaneous sutures pop through my translab incision and they irritated me (I wanted to pull at them) for a spell.

For those that have a "baha" device, I ask- what is it like to have the hardware? Any special way you have to sleep? I sleep on the left side with my head down (the AN and Baha side).
left side AN 9mm diagnosed 2/2012
SSD, loud tinnitis left ear
Translab 5/24/12
Baha surgery 8/1/2012 at UVA
Baha hook up 11/09/2012  : ) 

I am a happy camper : )

Tod

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Re: Drum roll and cartwheels please...
« Reply #8 on: July 11, 2012, 06:49:05 pm »
No worries, most nights I sleep on my abutment. Rarely I am aware of it.

-Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

dalern

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Re: Drum roll and cartwheels please...
« Reply #9 on: July 11, 2012, 10:03:11 pm »
I am never aware it is there.  I think the first week or so I noticed it, but not at all after that.
Dale
Dale Barnes, RN, MSN, CLNC
Tarzana, CA
1998 Sudden Onset Idiopathic Sensorineural  hearing loss diagnosed at House Ear Institute, Los Angeles
BAHA June 30, 2010 Dr. Jeffrey Harris UCSD San Diego

james e

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Re: Drum roll and cartwheels please...
« Reply #10 on: July 12, 2012, 10:07:10 am »
I don't ever notice mine. The wound recovery requires you keep it dry...just follow your doctors instructions.

James

leapyrtwins

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Re: Drum roll and cartwheels please...
« Reply #11 on: July 13, 2012, 08:55:13 pm »
It's crucial that I hear the alarm, etc., so I always sleep on my deaf ear.  Naturally my abutment is on that side also.  Never been a problem for me.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

nftwoed

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Re: Drum roll and cartwheels please...
« Reply #12 on: July 25, 2012, 12:05:28 pm »
Hi kixit;

  Um; No cash here, but I suppose I could try a drum roll and cart wheel. I will this afternoon. Geesh, what more will be asked of us NF-2ers anyhow?  :-)
  So great you won the appeal!

leapyrtwins

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Re: Drum roll and cartwheels please...
« Reply #13 on: July 31, 2012, 09:32:55 am »
Kixit -

tomorrow's your big day!   ;D

Hope your surgery goes as smoothly as mine did - most are VERY easy - and that you have quick, uneventful, healing.

Your Gotcha Day (the day you get to attach your processor) will be here before you know it.

Best,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

james e

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  • 72 years, 1.7cm, trans lab Mar 2010, BAHA 5
Re: Drum roll and cartwheels please...
« Reply #14 on: July 31, 2012, 01:09:38 pm »
I have a buckwheat hull pillow. I sleep on my BAHA abutment side. A buckwheat hull pillow can be manipulated so there is a void where you wound will be, and the pillow will support your head and the wound will basically be "floating" in the void. It worked well for me. Good luck with procedure. Let us know how you did.

James