Hi All. I was newly diagnosed in October 2011 with a 10.2 mm AN on the left side. Saw my neurosurgeon for the first time last Friday and am scheduled for Vestibular Testing this week and then extensive hearing test the first week in January since my hearing has diminished considerably and I have several â€œstrangeâ€ noises in my left ear 24/7.
As Dr. Bartels, my neurosurgeon in Tampa, said to me, he cannot make the decision for me, he can only inform me. He did say that for me radiation would leave me totally deaf in the left ear, surgery MAY give me 40% hearing but then I could also have facial paralysis; this scares me more than being deaf. Anyway, at this point my choice is to wait and watch which is what Iâ€™ll discuss with Dr. Bartels in January.
I have done days of research on the Internet but these forms and the ANA website have been the best. The packet that ANA sent to me was very informative; however, when I read that this was not an ear thing but a brain thing it did upset me terribly. I have tried to come to terms with my tumor since other than some hearing loss and some imbalance it has not caused me much problems but Iâ€™ll have to say it has not been easy. When I read the other posts and learn what others have and have survived it gives me much hope.
I asked my husband, so when people say, â€œHow are you?â€ do I say, â€œFine, for a person with a brain tumor!â€ (Try to find some humor in all this)
So the bottom line to this post is - I just wanted to say thank you to all that have posted and answered on this forum. Every post and answer that Iâ€™ve read has been very informative, given me hope and more understanding.