Hi, My husband was diagnosed a week ago today with AN. We're feeling a little calmer about it now as we become more informed about different treatments, recommended doctors & facilities, questions to ask, etc. Today though, I remembered that our oldest son (now 36) was determined to have a hearing loss to high frequencies when he was in 5th grade & again in 6th grade. The audiologist wasn't concerned at the time & said he would be able to function normally with it -- he didn't recommend any follow ups or further testing. My husband's father also had severe hearing loss -- no hearing in one ear & very little in the other..... Is it correct that AN is not hereditary, but NF2 is? My husband's MRI only revealed the tumor in one ear; if you have NF2, would the tumors show up in both ears at the same time, or could my husband have NF2 & not be aware of it until later? Our son doesn't have any other symptoms, but we've suggested he get his hearing checked by an audiologist. Anyone have any information they could pass along to us, or thoughts on the possibility of this?
Judy