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Author Topic: Getting Nervous  (Read 13251 times)

Mark241

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Getting Nervous
« on: December 16, 2010, 09:13:15 pm »
Well its' that time again, MRI on Jan 3rd. Hoping the little hitchhiker's on the lower spine arnt' acting up, and they didnt' invite some friends over to hang out. I have only been on Bio 30 for a month, but have been taking turmeric for the past year, I had seen an article on its' possible tumor suppression, guess will see. Thanks everyone.
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4cm C1  16hrs                 Barrows, Jan 06      NF2
3.5 cm  Right AN retro       Barrows, Oct 06   
Cranial Plate removal           UNM Nov 07
LP                                   Barrows  Jan,2011
Wound revision                 Barrows Feb, 2011
5mm left middle Fossa,  (2) 2mm spine w&w

Keri

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Re: Getting Nervous
« Reply #1 on: December 17, 2010, 10:30:55 pm »
Hi Mark,
I don't know your whole story; I do remember reading your post over on the deployed troop thread. I hope your MRI shows no problems. I never have even been on the NF2 threads because I just don't know much about them. I just want to let you know that we're here for you and I hope and pray that all is well with you. Keep us posted.

Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Mark241

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Re: Getting Nervous
« Reply #2 on: December 17, 2010, 11:35:16 pm »
Thanks Keri ! That helps' me out a lot.  :D
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4cm C1  16hrs                 Barrows, Jan 06      NF2
3.5 cm  Right AN retro       Barrows, Oct 06   
Cranial Plate removal           UNM Nov 07
LP                                   Barrows  Jan,2011
Wound revision                 Barrows Feb, 2011
5mm left middle Fossa,  (2) 2mm spine w&w

jerseygirl

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Re: Getting Nervous
« Reply #3 on: December 18, 2010, 06:30:21 pm »
Mark,

Good luck with your MRI! I would think that Bio 30 and turmeric take more than a month to work, so don't be upset if there is no change. That in itself will be positive news.

     Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

Mark241

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Re: Getting Nervous
« Reply #4 on: January 03, 2011, 10:21:10 pm »
Well, took the 4 hour MRI, complete spine and brain, I think its' comparable to water boarding. Should hear the results tomorrow, after my LP shunt surgery, fingers' crossed.
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4cm C1  16hrs                 Barrows, Jan 06      NF2
3.5 cm  Right AN retro       Barrows, Oct 06   
Cranial Plate removal           UNM Nov 07
LP                                   Barrows  Jan,2011
Wound revision                 Barrows Feb, 2011
5mm left middle Fossa,  (2) 2mm spine w&w

Keri

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Re: Getting Nervous
« Reply #5 on: January 04, 2011, 11:35:34 pm »
Mark,
How are you doing?
Keep us posted as you're able.
Praying for you too!
Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Raven

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Re: Getting Nervous
« Reply #6 on: January 05, 2011, 06:50:55 pm »
Good luck Mark.........please keep us posted.........I know where you are coming from.

You don't need to answer this if you don't want - how many tumors do you have on your spine and have they ever been a problem?

Keep the faith

John
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7/10/07 hearing gone in left ear overnight
7/25/07 diagnosed with bilateral acoustic neuromas - aka NF2
11/7/07 left side tumor removal via middle fossa - 12 hrs.
11/15/07 right side decompression via middle fossa - 8 hrs.
Dr. Eisenman - University of Maryland Medical Center

Mark241

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Re: Getting Nervous
« Reply #7 on: January 06, 2011, 09:54:18 am »
Hey everyone! Thanks' so much for the posts', you guys put put a smile on my face, (A little crooked smile Ha Ha) My son spoke to the Doc about my MRI while I was in Post-OP from the shunt placement, He told him that nothing in the image raised any important concerns, but was waiting for the reading by the radiologist. Which I will take as good news, for now. Returned home yesterday, I thought the LP shunt was a walk in the park, not really, compared to other surgeries I have had, It kinda is, Have the the low CSF headaches, and light head if I walk around for a long period, which I've been told should subside in a week or two. The incision on the stomach however, OUCH, glad to be home, finally had a good night sleep.
Raven, I have three spinal tumors, L1, L2, and L3. They have stayed quite small, 2mm- 4mm, waiting to see if and how much they have grown, since my last spine MRI 2yrs ago. My brain is clear, thank God. Haven't had any symptoms from them as of yet, and hope I never do.
Thanks again everyone! 
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4cm C1  16hrs                 Barrows, Jan 06      NF2
3.5 cm  Right AN retro       Barrows, Oct 06   
Cranial Plate removal           UNM Nov 07
LP                                   Barrows  Jan,2011
Wound revision                 Barrows Feb, 2011
5mm left middle Fossa,  (2) 2mm spine w&w

Raven

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Re: Getting Nervous
« Reply #8 on: January 06, 2011, 10:04:33 am »
Mark,

Great news on your MRI!!!.......Reason I was asking about you spine, is I have 5 small tumors on my spine that have never been a problem. Just wondering if you had a plan if they became a problem. My Dr. did not seem at all concerned about them and said they may never be a problem. Probably be a walk in the park compared to brain surgery.

Take care Mark,

John
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7/10/07 hearing gone in left ear overnight
7/25/07 diagnosed with bilateral acoustic neuromas - aka NF2
11/7/07 left side tumor removal via middle fossa - 12 hrs.
11/15/07 right side decompression via middle fossa - 8 hrs.
Dr. Eisenman - University of Maryland Medical Center

Mark241

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Re: Getting Nervous
« Reply #9 on: January 06, 2011, 10:19:05 am »
Hey Raven, sorry about your spinal "Hitch Hikers" That's what my Docs' have said also, Like I said, still waiting to talk to my Doc about them. I have a boat load of MRIs' but the this last one I took at a new self proclaimed state of the art imaging center, "Barrows Brain and Spine Imaging" was a trip. The skin on my hands was actually "Jumping" at certain times, when I asked my friend about it, "ENT at Barrows" he said the magnet is one of the most powerful in the Country, and the images are very detailed. But I'm taking it as good news none the less, If one of those tumors needed attention, I'm sure they would have delt with it then and postponed my minor LP shunt surgery, which is pretty much the same area where mine are located. I had one surgeon tell me that radiosurgery would be an option if they became a problem, I never asked what the symptoms would be, dont want my mind creating them.   
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4cm C1  16hrs                 Barrows, Jan 06      NF2
3.5 cm  Right AN retro       Barrows, Oct 06   
Cranial Plate removal           UNM Nov 07
LP                                   Barrows  Jan,2011
Wound revision                 Barrows Feb, 2011
5mm left middle Fossa,  (2) 2mm spine w&w

Mark241

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Re: Getting Nervous
« Reply #10 on: January 12, 2011, 08:47:00 pm »
Well surprising MRI results, good news' is there are no new tumors, better news', the ones I do have, haven't' grown, great news', one of tumors that was measured at about 2mm is gone from my L1!! I'm chalking that one up to prayers, and everyone who has thought good thoughts for me!

Thank You All!
Mark   
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4cm C1  16hrs                 Barrows, Jan 06      NF2
3.5 cm  Right AN retro       Barrows, Oct 06   
Cranial Plate removal           UNM Nov 07
LP                                   Barrows  Jan,2011
Wound revision                 Barrows Feb, 2011
5mm left middle Fossa,  (2) 2mm spine w&w

CHD63

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Re: Getting Nervous
« Reply #11 on: January 12, 2011, 09:00:45 pm »
Mark .....

That is terrific news!  Just the kind we like to hear.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Jim Scott

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Re: Getting Nervous
« Reply #12 on: January 13, 2011, 01:52:49 pm »
Mark ~

Congratulations on the very positive MRI report! 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

lori67

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Re: Getting Nervous
« Reply #13 on: January 13, 2011, 03:18:07 pm »
Mark,

Great news about the MRI! 

I'm still trying to get over the part about it being 4 hours long!  AHHHH!  I enjoy my 45 nap in the tube, but 4 hours!  I can't sit still for that long!   :o

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Keri

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Re: Getting Nervous
« Reply #14 on: January 14, 2011, 10:23:46 am »
Mark,
We're happy for you - that's so great to hear!

Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!
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